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Sökning: hsv:(SAMHÄLLSVETENSKAP) > Luleå tekniska universitet > (2005-2009)

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  • Wihlborg, Elin (författare)
  • Flexible use of time to overcome constraints : A time-geographical discussion about power and flexibility
  • 2005
  • Ingår i: Home-Oriented Informatics and Telematics. - Boston : Encyclopedia of Global Archaeology/Springer Verlag. - 0387251782 - 9780387251783 - 9781441937773 - 9780387251790 ; , s. 1-14
  • Konferensbidrag (refereegranskat)abstract
    • Flexibility is often a keyword for people working in project-oriented organisations. It definitely influences their everyday life, since they are expected to be available and engaged anytime and anywhere and often with different types of obligations. However, there are constraints limiting people's possibilities in every specific time-space. The time-geographical perspective provides concepts for analysing constraints, by identifying: Capacity, coupling, steering or authority constraints. The aim of this paper is to discuss the time-geographical concept of constraints and analyse how they are overcame by a flexible use of time. The paper is based on two field studies. The first was conducted in twelve households and included in-depth interviews at two occasions and in between the household members wrote time-diaries during a week. The second was more extensive. Two focus groups, each with 24 persons, who all had written time-diaries, were interviewed. The conclusion of these studies is that different forms of constraints define the outcome of flexibility and that the use of time can be an expression of power.
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  • Anclair, Malin, et al. (författare)
  • Parental fears following their child's brain tumor diagnosis and treatment.
  • 2009
  • Ingår i: Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. - : SAGE Publications. - 1043-4542 .- 1532-8457. ; 26:2, s. 68-74
  • Tidskriftsartikel (refereegranskat)abstract
    • The objective of this study is to portray the illness-related threats experienced by parents of children after the diagnosis of central nervous system (CNS) tumor. Parents were asked to rate the extent to which they experienced a set of specific fears related to their child's brain tumor and its treatment. Outcomes for parents of CNS tumor patients (n = 82) were compared with those of reference parents of patients treated for acute lymphoblastic leukemia (n = 208). The fears about an illness recurrence and the late effects of treatment were most prominent among parents of CNS tumor patients. For 7 out of 11 kinds of fear, parents of CNS tumor patients expressed a stronger fear than the reference group. More than a quarter of the parents of children treated for CNS tumors feared a complete decline of the child. Parents of CNS tumor patients experience relatively heightened cancer related fears in several domains. The fear of devastating consequences felt by one fourth of parents signals the need of individualized psychological support and information at diagnosis and follow-up to facilitate parental coping with the posttreatment situation.
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  • Boman, K K, et al. (författare)
  • Health and persistent functional late effects in adult survivors of childhood CNS tumours: a population-based cohort study.
  • 2009
  • Ingår i: European journal of cancer (Oxford, England : 1990). - : Elsevier BV. - 1879-0852 .- 0959-8049. ; 45:14, s. 2552-61
  • Tidskriftsartikel (refereegranskat)abstract
    • Survivors of central nervous system (CNS) tumours are particularly vulnerable to tumour- and treatment-related disability. We present the incidence of specific and overall functional and health-related late effects in a national adult survivor cohort. Diagnostic subgroups at particular risk for persistent sequels are identified. Data collection targeted 708 eligible >18 years old survivors, 708 parent proxies and 1000 general population controls. Functional disability including sensory and cognitive impairment, emotional status and pain was assessed using the Health Utilities Index Mark 2/3 (HUI2/3). Survivors and controls, and diagnostic subgroups were contrasted to identify the general and relative risk for late effects by sub-diagnosis. Survivors had persistent late effects in sensation, mobility, self-care and cognition. Deficits in these domains indicated clinically important disability in overall health, although indices of emotion and pain were unaffected compared to controls. Late effects tended to aggravate with time, and female survivors had poorer health. Oligodendroglioma, mixed/unspecified glioma, intracranial germ cell tumour and medulloblastoma survivors had poorest overall health. Least late effects were found for other specified/unspecified CNS tumours (including meningeoma and nerve sheath tumours), and for astrocytoma. An impact on educational, vocational and family-related outcomes, and higher utilisation of social insurance or government subsidies validated health-related sequelae in adulthood. Comparisons with controls confirm persistent disability in multiple functional domains in adult CNS tumour survivors. The heightened proportion of survivors presenting severe disability is a factor that specifically differentiates survivors from controls, although diagnostic subgroups differ significantly regarding the amount and severity of late effects.
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  • Jonvallen, Petra, 1971- (författare)
  • Testing Pills, Enacting Obesity : The work of localizing tools in a clinical trial
  • 2005
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • This study examines tools and practices involved in a large scale and multi-sited clinical trial of a potential drug against obesity. Two tools are in focus: a clinical research protocol and a computer control system. The analysis is based on there being different ways in which the tools are localized in order for the work to flow smoothly and to produce reliable data. It does this through delineating different types of work performed: production tasks, classical managerial work, compliance work and the work of coordinating beliefs and goals. The study is based on interviews, observations and documentary analysis.Through describing these types of work and how it is organized, the study emphasizes the trial as being part of an industrial production process. Hence, the tools are used not only to produce reliable data, but also to manage the work of the tools’ users in order to enable a smooth production process. In line with such a description, the protocol and computer control system are seen as objects that discipline practice, something that also resonates in the way staff talk about their work. The dissertation shows how the tools, despite this, leave room for aspects of clinical trial work that are both rational/technical and experiential/contingent.The dissertation also shows that obesity is enacted in different ways in the practices performed in the trial. Making sense of these somewhat contradictory enactments requires work referred to as coordination of beliefs about what obesity is, as well as of the different goals of the trial. By such a focus on invisible work, the dissertation shows that those nurses, dieticians and doctors involved in the everyday follow-through of the trial have a strategic position in mediating between pharmaceutical companies and their potential market for the drug under study, namely the trial participants.
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  • Samuelsson, Jenny (författare)
  • På väg från ingenstans : kritik och emancipation av kunskapsorganisation för feministisk forskning
  • 2008
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • This study deals with knowledge organization of feminist research, in bibliographic catalogues and in a Swedish context. The thesis develops a definition of feminist discourse which incorporates but is not limited to feminist research. Feminist research, in turn, is understood as articulating a critical approach aimed at critiquing and changing inequitable gender relations. The thesis analyzes the meaning of a range of feminist perspectives through a close text analysis of feminist PhD-dissertations. Two universal knowledge organization systems: Svenska ämnesord and Klassifikationssystem för svenska bibliotek; and one subject-specific system: Kvinnohistoriska samlingarnas ämnesord, are studied in order to discuss the extent to which they are able to articulate feminist perspectives, as well as how they actually articulate such perspectives in practice. The two universal systems studied tend to marginalize feminist perspectives as forms of knowledge. This thesis interprets this marginalization in the light of these systems’ putative objectivistic and universalistic epistemology and ontology. It is suggested that they privilege disciplinary knowledge over interdisciplinary knowledge forms, and substantive topics over conceptual perspectives. Guidelines for knowledge organizatory practice tend to encourage indexers and classifiers to search for central substantive themes. In this schema, feminism is understood as a field relating to socio-political women’s issues. Feminist knowledge qua knowledge is marginalized by the systems studied, and is at times given a plain wrong classifycation. further, this thesis suggests that the subject-specific knowledge organization system studied: Kvinnohistoriska samlingarnas ämnesord, is only able to deal with feminist research in an incomplete and inadequate way. Although this index is designed to classify texts within the broad subject field of: women’s studies, masculinity studies and gender research, as well as other material relevant to the field, the structure of the index is too simple and does not allow for associative relationships between terms; nor does it define feminist discourse. The premises and guidelines for knowledge organization practice are also under-developed or not well defined. Successful organization of feminist knowledge needs instead to be based on a particular understanding of knowledge and knowledge organization as contextually shaped (and shaping). Feminist literature is first and foremost about expressing feminist discourse qua theme, perspective, and part of the feminist tradition (such as critical, women-centring, and reflexive feminisms) – an observation that needs to be reflected in the knowledge organization.
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