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1.
  • Jönsson, Johan (författare)
  • Performing Numbers : An Ethnography of Numbers in Everyday Organisational Life
  • 2024
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • This thesis presents a study of the interplay between what numbers do and what people do with numbers in everyday organisational life. Couched in an ethnographic perspective, the study draws on rich empirical material crafted from participant observations conducted at a Scandinavian hospital. The study focuses on how numbers work in everyday social interactions between doctors, nurses, patients, administrators, and managers. Three different kinds of numbers are analysed within the context of renal care – a clinical measure, a performance target, and a hygiene compliance rate. The theoretical framework draws on Austin’s theory of performativity and Goffman’s idea of dramaturgical performances. The thesis contributes to critical accounting studies and the field of sociology of quantification by extending, developing and, occasionally, challenging dominant notions of the performativity of numbers and numerical reactivity. Recent critical studies of quantification show that numbers are far from neutral, impersonal, and or objective; instead, they function as powerful actants. In much of the previous research, numbers appear to be so powerful, leaving little room for actors to resist their impact. While embracing the potential power of numbers, this thesis challenges the overly deterministic view of numbers by highlighting the agential leeway available to individuals in their everyday work. The thesis develops four types of possible interactions and outcomes between numbers and actors: ignoration, manipulation, metamorphosis, and transformation. In addition, it suggests three dichotomies to understand the reciprocal relationship between people and numbers as ways to engage with the dialectics of numbers in everyday organisational life.
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2.
  • Meili, Kaspar Walter, 1989- (författare)
  • Capability for broader cost-effectiveness in public health and social welfare : developing, valuing, and applyingcapability-adjusted life years Sweden (CALY-SWE)
  • 2024
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Spending in social welfare areas such as healthcare, wider public health, education, and social care consumes a major part of the public budget. Cost-effective resource allocation is a moral obligation towards both taxpayers and beneficiaries: tax money should be used efficiently, and it should be transparently accounted for. After all, economical management of resources is important for sustaining future prosperity and for addressing fundamental challenges such as climate change and demographic shift. In healthcare, cost‐effectiveness using quality-adjusted life years (QALYs) is a well-established tool to inform policymakers. Using cost per QALY implies that health-related quality of life (QoL), and not money, is an end on its own. Moreover, cost per QALY allows one to compare unrelated interventions by measuring the effects on the common QALY scale. However, for actors concerned with broader social welfare, such as the Swedish municipalities, QALYs may be less useful because their measurement focus is largely limited to health. Comparable outcome measures for broader social welfare are still sparsely available and employed, and a context-specific measure for Sweden is lacking. The aim of this thesis was to develop, value, and apply capability-adjusted life years Sweden (CALY‐SWE), a QoL outcome measure conceptually based on the capability approach, for broader social welfare and specific for Sweden.Within study 1, we organized a Delphi panel to select relevant capability attributes and then developed the phrasing for the questionnaire. The resulting questionnaire contains six attributes –health, social relations, financial situation & housing, security, occupation, and political & civil rights – each with three answer levels. The phrasing integrates an implicit threshold so that the sensitivity is focused on the lower range of the scale, thus incorporating equity considerations that relate to sufficientarianism and prioritarianism. In study 2, we developed a value set consisting of all quality weights for the 729 possible CALY-SWE states. We relied on health economic outcome methodology, namely hybrid modelling of discrete choice and time trade-off data that we collected in a cross-sectional web survey with representative sampling. This value set allows to aggregate the CALY-SWE answers into a single quality weight that can be used in cost‐effectiveness analysis to calculate CALYs. In study 3, we applied the CALY-SWE questionnaire and value set to describe the capability distribution in a cross-sectional representative sample of the Swedish population. In a framework of group comparisons, we estimated capability inequalities and shortfalls for different population groups. The results showed that there are capability inequalities for *disadvantage groups* as well as for groups with discriminative inequalities – *plurality groups*, for example between lower and higher education. For study 4, we applied CALY‐SWE in a cost‐effectiveness application to model the effects of a payroll tax reduction in Sweden from 2007 to 2016 (during the financial crisis) on young people not in employment, education, or training (NEET). The intervention was likely cost-effective from a societal perspective, but only with limited probability from a fiscal perspective, although definite statements regarding cost-effectiveness are challenging because a threshold value for a CALY is still lacking. The final chapter discusses the measure’s development, including normative choices, in relation to the Swedish social welfare and policy context, the capability framework as suggested by Amartya Sen, distributive justice, and other outcome measures in cost‐effectiveness evaluations. Important work remains – for example, assessing psychometric properties, developing the conceptualization of the 0 to 1 anchor scale for capability weights, and assessing a threshold value for a CALY. In conclusion, with the questionnaire development, value set elicitation, and demonstration of applications, important steps for CALY‐SWE were accomplished. Cost‐effectiveness evaluations in wider social welfare and public health using CALY-SWE are now possible. 
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3.
  • Rostami, Arian, 1973- (författare)
  • Police officers under pressure : sexual and gender-based harassment, stress, and job satisfaction in Sweden
  • 2024
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Police officers encounter challenging and stressful situations at work, which negatively impact their health, job performance, and aspects of their lives. Regarding the gendered structure and competitive work environment of police organizations, women are under extra pressure from the pervasive gendered norms within the police organization. The aim of this dissertation is to study sexual and gender-based harassment and work-related stress as important work environment elements from a gender perspective, and to explore if and how these elements can affect police officers’ job satisfaction in the context of Swedish police work.This thesis is based on three studies: a scoping review, a quantitative study, and a qualitative study, resulting in four articles. In the scoping review study on sexual and gender-based harassment in police work in the European context 16 articles on sexual and gender-based harassment against police employees were studied. Thematic analysis was applied to obtain the main patterns across and within the included studies. In the qualitative study, data collection included one group interview and 12 individual interviews with male and female police officers. Thematic and content analysis were conducted to analyze the interviews. During the quantitative study, data were collected from 152 male and female police officers applying a set of questionnaires including sociodemographic questions, the Police Stress Identification Questionnaire (PSIQ), Sexual and gender-based harassment questions, and Job Descriptive Index (JDI).  The scoping review showed that most of the European studies were focused on sexual harassment, while gender-based harassment was often overlooked or mixed with other types of harassment and discrimination. Six main themes were found in the studies; the existence of sexual and gender-based harassment, perpetrators, associated factors, consequences, individual response, and impact of organizational policies. In the mixed methods article, results from the quantitative and qualitative studies on sexual and gender-based harassment indicated that female police officers experienced a statistically significant higher percentage of gender-based harassment compared to male officers. However, there was not any significant gender difference in sexual harassment. “Sexual comments and jokes” and “mocking or telling jokes about the #MeToo campaign” by colleagues were reported as the most frequent sexual harassment and gender-based harassment items. Additionally, police officers identified the presence of toxic jargon and a culture of silence, along with ineffective or negative management styles, as organizational factors that can contribute to the perpetuation of such harassment. Also, the quantitative results on police work stress showed that police officers rated higher on the “impact on significant others” stress and “operational stress” subscales. In addition, female officers reported higher stress in these subscales compared to their male counterparts. The police officers who had experienced sexual harassment reported higher “self-image stress” and “operational stress”. Moreover, in studying job satisfaction among Swedish police officers, both male and female officers reported the highest satisfaction with “people on present job” and the lowest satisfaction with “opportunity for promotion” and then “pay”. No significant gender gap was found in job satisfaction subscales, nor was there a significant association between these subscales and experiences of harassment. However, organizational stress was negatively related to three domains of job satisfaction; “job in general”, “pay” and “supervision”. The research findings revealed that despite substantial changes in the Swedish police organization and work culture during recent decades, the issue of sexual and gender-based harassment remains persistent. This finding highlights the need for more attention to organizational factors (cultural and managerial issues) enabling sexual and gender-based harassment. The findings also underscore the higher levels of work pressure and challenges faced by female officers and the importance of challenging prevailing gender norms affecting both female and male police officers. Moreover, addressing organizational sources of stress can improve the working conditions and job satisfaction of police officers. Finally, the thesis highlights the importance of considering sexual and gender-based harassment along with work stress to create a safer and more productive police work environment.
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4.
  • Woodworth, Jamie (författare)
  • Our Deaths, Ourselves : An exploration of care, community, and dying in the Swedish welfare state
  • 2024
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • The way that we die and care for the dying today is changing, related to extended life expectancy, neoliberalization, as well as shifting caring roles in relation to gender. In a time of “care crisis”, both formal and informal care resources are under duress, making the question of how to provide “a good death” complex and contested in new ways. Scholars in public health have posited a health promotion approach to palliative care where communities are uplifted as a source of social capital and support for the dying and their significant others. This model invokes the responsibility of civil society to provide support – through volunteerism, cultural engagement, or everyday compassion – during a period of time that will inevitably affect us all. However, this approach lacks a critical perspective which accounts for how gender and welfare shape possibilities for caring and living well until the end. Sweden is an interesting case for examining community perspectives on the end-of-life because of the welfare state context which has enabled a high degree of individual autonomy and independence from family and community throughout the life course. This dissertation fills this gap in research by exploring the relational networks of care which surround dying patients, their significant others, and communities in the unique Swedish context. It examines individual experiences of giving and receiving support in the end-of-life, while relating data back to the socio-political context of care in the welfare state via three empirical studies. Action research, feminist visual methods, and interviewing are employed to understand people’s agency to provide support in the end-of-life context; the different supportive roles played by family, community, and care professionals; and the lived experience of receiving social support in old age. To address the cross-border nature of this research, the dissertation ends with an empirical study examining hindrances and possibilities to interdisciplinary study of the topics of dying, death, and grief. This thesis, which also exemplifies the inquiry of this study, employs a transdisciplinary approach by bringing critical feminist theory into conversation with the literature on public health palliative care. It contributes to both fields by invigorating conversation on a topic seldom discussed in feminist scholarship, and uplifting gender and welfare as critical areas of interrogation in public health research and development.
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5.
  • Caballero, Adelaida, 1986- (författare)
  • Shortchanged : Elderly Women Street Vendors in Malabo, Equatorial Guinea
  • 2023
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Normative assumptions regarding reciprocity between adult children and elderly parents continue to dominate narratives on later life in sub-Saharan Africa. Yet strenuous socioeconomic conditions make it difficult for families to meet expectations of care and support. In Malabo, elderly women commonly engage in economic activities such as street vending for survival. Separation from male partners and high unemployment among men and youths often turn senior women into sole providers in multi-generational households. The cultural script of self-sacrificial motherhood, however, leads people to believe that these senior women are hardly entitled to demand reciprocal support – that as proper mothers and grandmothers, they are merely fulfilling a duty. Gender-based forms of exploitation and feelings of desertion characterize family life for many older Equatoguinean women. Elderly women street vendors who live and work in Malabo are also mistreated outside their homes. Harassment, humiliation, and physical invisibilization are some of the means by which ‘patriotic citizens’ and representatives of state authorities protect the government’s narrative of ‘unprecedented development.’The thesis explores how elderly women street vendors try to counter the routinized types of violence to which they are exposed and how they strive to assert themselves as persons. I approach the women’s articulations of personhood through the concept of moral economy and discuss them with regard to normative African relationality. The empirical basis of the work is fourteen months of uninterrupted ethnographic field research in Malabo between 2017 and 2018. The analyses rely on social gerontological theories on dependency, intergenerational tensions, prosocial behaviors, gender identity, sexuality, and autonomy, as well as on anthropological theories on the category of the person, everyday violence, morality, gossip, and older women’s sexuality in Africa. The thesis aims to contribute to humanistic gerontological literature by highlighting the meanings that autonomy can take for seniors who live in conditions of no institutional support, normalized violence at home, gender prejudice, and the kind of ageism that arises from narratives that equate social advancement with development, hence identifying old age with anti-values such as ignorance and backwardness. Findings suggest that, among elderly women street vendors in Malabo, striving toward a sense of autonomous personhood is not only a means for coping with the challenges of aging in a difficult socioeconomic milieu, but also a more encompassing rejection of ‘retraditionalized’ national politics and authoritarianism.
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6.
  • Jemberie, Wossenseged Birhane, 1985- (författare)
  • Alcohol and aging : a multimethod study on heterogeneity and multidimensionality
  • 2023
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Background and Objectives: With an ageing population, the number of older persons with substance use problems, particularly problematic alcohol use, is increasing. Despite grow­ing recognition of the negative consequences of problematic alcohol use on older persons, there is a dearth of knowledge about the alcohol use profiles and the dimensionality of alcohol problems in older people. Moreover, little is known about older persons’ experi­ences and perspectives on alcohol use in relation to their ageing and their personal goals regarding treatment and recovery. This thesis aimed to (i) describe the characteristics of older persons who accessed municipal substance use treatment and care services (addic­tion services) and to investigate their future hospitalization; (ii) examine the heterogeneity and multidimensionality of problematic alcohol use among older persons; and (iii) to shed light on the experiences and perspectives of older persons regarding ageing, alcohol prob­lems and recovery.Methods: For studies I-III, municipal Addiction Severity Index (ASI) assessment data (between 2003 and 2017) from adults aged 50 years and older were used to select the study samples. Generalized linear regression models investigated hospitalization related out­comes among 3624 older persons in Study-I. In Study-II, a latent class analysis was applied on ASI data from 1747 individuals with alcohol problems. Study-III linked the ASI data from Study-II to hospital discharge and mortality data forming time-to-repeated-event dataset; Andersen-Gill regression model with a robust variance estimator was used for the analysis. Study-IV applied qualitative content analysis on interview data from ten older persons re­cruited from a specialist outpatient clinic for alcohol treatment. Results: Nearly three-fourth of older persons assessed for substance use severity at municipal addiction services were later hospitalized (Study-I). Individuals diagnosed with substance use disorders, psychiatric or dual diagnoses had more cumulative hospitalized days, higher rates of hospital readmissions, and shorter time to first admission following an initial ASI assessment at municipal addiction services (Study-I). Five distinct groups of older persons with comparable alcohol problem severity but with variation in onset age, psychiatric comorbidities, polysubstance use, social support and gender composition were identified (Study-II). The five groups varied in risks of repeated hospitalizations due to substance use and psychiatric disorders (Study-III). Older persons experienced their ageing and alcohol use having a dynamic interplay (Study-IV). They needed to constantly negotiate with their environment to maintain a positive ageing trajectory. They perceived moderate alcohol use fosters healthy ageing, but over time, experienced their alcohol use as unsustainable and a threat to their pursuit of healthy ageing. Stigma and ambivalence delayed treatment seeking (Study-IV). They accessed treatment programs which re­spected their preferences and autonomy, engaged them in goal setting and strengthened their agency. After reducing their alcohol use, positive changes in their biopsychosocial functioning encouraged them to continue their recovery journey even in the presence of setbacks (Study-IV).Conclusion: Most older persons who access municipal addiction services are hospitalized repeatedly. Many older persons with alcohol problems live with medical and psychiatric comorbidities suggesting multiple care needs from health and social care services. Incor­porating older persons’ desire for healthy ageing into alcohol treatment plan can facilitate treatment engagement and recovery. Many older persons aim to moderate their alcohol consumption. Clinicians can deliver person-centered care for older persons, by consider­ing their heterogeneity in treatment goals, biopsychosocial functioning, and available re­sources. A multidimensional identification of alcohol use profiles could improve treatment by establishing the variation in alcohol problems among older treatment seekers. Older persons stay engaged in alcohol treatment programs which value their experiences and expertise, incorporate their personal treatment and life goals, respect their autonomy and agency, and involve them as active participants. Sensitizing service providers on old age substance use problems could provide multiple points of contact for screening of older persons and earlier referral to treatment. A streamlined data sharing within and between health and social care services fosters timely and equitable care and facilitates an inte­grated and person-centered care across the continuum. 
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7.
  • Nordin, Therese, 1980- (författare)
  • Harnessing togetherness : perceptions of loneliness and promotion of social participation in the home care context
  • 2023
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Introduction: It is well known that older adults have a higher risk for loneliness, which is detrimental to health. Home care in Sweden has a responsibility to address social needs, but systematic approaches are lacking and there is a know–do gap. The overall aim of this thesis was to develop knowledge about older home care recipients’ and home care providers' perceptions of loneliness and social participation among older adults, and furthermore, to develop a work model for supporting social participation in home care and explore that process.Methods: Four studies were included. In the first study, care recipient interviews explored perceptions of social participation. In the second, a total population survey investigated the association between perceived care quality and loneliness. The third study used individual and group interviews with home care providers to explore discourses on loneliness and social support. The fourth applied a participatory action research(PAR) process with care workers to develop strategies to alleviate care recipients’ loneliness.Findings: Enjoying personally relevant occupations, both in solitude and with others, was found to be important for satisfactory social participation. Low perceived quality in home care quality was statistically associated with loneliness. Two discourses, one in which care recipients were described as valued but vulnerable “others”, and another in which they were described as competent peers, were identified. A work model facilitating social participation was created, and the process was applied to a “framework for occupational enablement for change in community practice”.Conclusion: The understanding of loneliness and social participation in the complex home care context has been nuanced, as have discourses that affect home care practice. The work model itself could become a first step towards systematically addressing loneliness and social needs, and the application of an occupational enablement framework onto the PAR process ties the methodologies together and facilitates participatory research for occupational therapy and science.
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8.
  • Raoust, Gabriel (författare)
  • Decision-making in obstetric emergencies. Individual differences and professional boundaries.
  • 2023
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • In affluent nations, variations in obstetric care, particularly during emergencies, perplexingly manifest in differing intervention and outcome rates. Although these variations mirror systemic disparities, they are also suggested to reflect the interplay of social and professional interactions between obstetricians/gynecologists and midwives, stemming from adherence to distinct professional paradigms and the influence of personal factors on decision-making and collaboration. This thesis sought to unpack these complexities by exploring individual differences and professional perspectives in decision-making during obstetric emergencies through a blend of interpretive and statistical approaches in a series of studies.Utilizing a narrative methodology with in-depth interviews and subsequent thematic analysis, Papers I and IV investigated the experiences of obstetricians/gynecologists (N=17) and midwives (N=27) during obstetric emergencies. Paper I used images of artwork as associative triggers in interviews, helping to illuminate decisionmakingprocesses, while Paper IV critically evaluated its thematic findings through the sociological lens of “boundary work”. Concurrently, Papers II and III employed psychometric instruments, including online questionnaires and the Five Factor Model personality test, to collect and analyze data from obstetricians/gynecologists and midwives (N = 472 for Paper II and N = 447 for Paper III). This involved investigating variables, such as Decision-Making styles, Negative Impact of Inductions, Healthcare Crisis Experience, and Job Satisfaction, alongside personality dimensions and complementary variables through various statistical tests.The studies revealed a diversity of findings: Paper I highlights that obstetricians/gynecologists navigate flexible decision-making environments, crystallizing into one of three distinct styles intertwining with their identities and practice narratives. Paper II unveils a specific personality profile among obstetricians/gynecologists and demonstrates correlations between personality traits, particularly Neuroticism, and distinct decision-making styles, while spotlightinggender and experience as significant influential factors. Paper III identifies divergent perspectives between the professions regarding labor inductions and job satisfaction, and highlights correlations among job satisfaction, views on labor inductions, and Neuroticism. Lastly, Paper IV underscores the multifaceted roles of midwives, who navigate, and sometimes resist, medical hierarchies to advocate for women’s physical and emotional well-being during childbirth, in a manner reshaping healthcare norms yet potentially sustaining historical tensions with obstetricians/gynecologists.This research highlights the intricate ways in which the personal and professional identities of obstetricians/gynecologists and midwives impact decision-making during obstetric emergencies. These insights invite a thoughtful reevaluation: How can training, support systems, and collaboration be recalibrated to encompass theseinfluential dynamics comprehensively? How can we as practitioners create work environments that not only acknowledge but also actively integrate varied personal perspectives and professional values and goals?
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9.
  • Emsing, Mikael, 1980- (författare)
  • Conflict management & mental health among Swedish police officers & recruits
  • 2022
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • Introduction: An essential part of police work is handling people in distress, often related to some form of conflict that police officers are expected to handle in a professional manner. Thus, interpersonal and conflict management skills are essential for police officers. Further, police work has been hailed as one of the most complex and stressful jobs that one can have. While important progress has been made in relation to how the complex and stressful nature of police work affects the individual officers - less is known about the timing and onset of these effects. Similarly, while there is a growing body of research into police conflict management, more research is needed to deepen our understanding of police conflict management, not least in the Swedish context. The overall aim of the present thesis was to contribute to existing knowledge about police work by investigating conflict management and mental health among Swedish police recruits and officers.Materials and methods: The present thesis used a mixed-methods approach and is built on four sub-studies. Sub-study 1 examined the evidence base for current practices, methods, and training in conflict management by means of a scoping review. Sub-study 2 used semi-structured interviews to examine how police officers perceived conflict and conflict-management and their training within the subject. Results from sub-study 2 where also used increating items for the instrument developed in sub-study 4. Sub-study 3 used a quantitative design to examine the mental health status of Swedish police recruits using the SCL-90 questionnaire. Sub-study 4 documented the initial steps towards developing an instrument to measure conflict behaviors and attitudes to conflict management among police officers and evaluated the psychometric properties of this instrument.Results: A large proportion of the studies included in the scoping review were conducted in the US and manyfocused-on use of force. The results also indicate that a lack of available data, unified definitions and experimental as well as longitudinal research designs makes it difficult to draw causal conclusions regarding the effectiveness of training in conflict management. In the interviews, respondents described conflict largely in terms of interpersonal conflicts, and focused less on intrapersonal conflict. The complexity and importance of the role played by instructors during probationary training was also salient in their descriptions. As for mental health status, recruits overall reported scores that where similar to the general population. A small number of recruits (n = 15) reported scores that where above the patient mean of the Swedish general population in the corresponding age group. The intended factor structure of the instrument developed could not be operationalized in the instruments current form, but the instrument could still provide insights and provides a basis for further development of the instrument.Conclusions: To enhance our understanding on police conflict management, scholars and police departments should work together to agree upon unified definitions on key concepts related to this topic. More research using longitudinal and experimental designs are needed to further develop training interventions related to conflict management. While a small number of recruits reported scores above the Swedish patient mean, extant research has indicated that stigmas surrounding mental health among police could lead to unconstructive coping behaviors. Further research on mental health among not only Swedish police officers but also recruits, could focus on helpseeking-behaviors and stigmas related to mental health to provide valuable insights on the topic. The instrument developed within the present thesis needs further development but nonetheless represents a first step towards examining individual differences in relation to police conflict management behaviors and attitudes towards conflict.
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10.
  • Andréasson, Frida (författare)
  • Doing informal care : Identity, couplehood, social health and information and communication technologies in older people’s everyday lives
  • 2021
  • Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
    • The aim of the thesis has been a) to analyse how informal care influences the identity of carers and care recipients, their sense of couplehood and social health, and b) to explore the use of Information and Communication Technology (ICT) in the context of informal care and the everyday lives of older people. Study I focused on how older carers conceptualised their identity as carers on a Swedish online social forum, using a netnographic methodology. The findings indicated a change in self-perception as the carer role was acquired. Carers’ capacities were filtered through the needs of the care recipient, making their carer identities into invisible selves. The findings revealed that online communication had the potential to create a virtual space of social recognition. Study II aimed to reflect on carers’ experiences of participation in a co-design process consisting of user group sessions with carers and researchers. The goal was to develop a web-based support programme for carers. The findings emphasised a need to consider carers’ lifeworlds and to develop flexible human-centred design methodologies, that are able to balance carers’ needs and ideas with proposed research outcomes. Studies III and IV utilised an ethnographic methodology. In study III, the notion of couplehood in informal care was analysed. The findings showed that in the process of becoming a carer and a care recipient previous (often gendered) responsibilities were re- negotiated and new practicalities emerged. Although these changes were understood as a natural part of family life, they nevertheless led to changes in the (power) balance between spouses, expressed in terms of a professionalised relationship and a sense of social isolation. ICT was used as a means to get a respite from caring and uphold a social connection with others. In study IV, the social implications and consequences of spousal informal care and carers and care recipients’ experiences of illness and the ill body was explored. The findings showed that the participants experienced barriers to living life as before. Thoughts about or the presence of ill and “leaking” bodies thus lead to “self-chosen” social isolation or social distancing by others. The thesis highlights that informal care needs to be understood as an identity forming practice, having a significant impact on involved parties’ sense of couplehood, their social health and that ICT can contribute to ease carers’ and care recipients’ daily life.
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