1.
Andréasson, Frida
(författare)
Doing informal care : Identity, couplehood, social health and information and communication technologies in older people’s everyday lives
2021
Doktorsavhandling (övrigt vetenskapligt/konstnärligt) abstract
The aim of the thesis has been a) to analyse how informal care influences the identity of carers and care recipients, their sense of couplehood and social health, and b) to explore the use of Information and Communication Technology (ICT) in the context of informal care and the everyday lives of older people. Study I focused on how older carers conceptualised their identity as carers on a Swedish online social forum, using a netnographic methodology. The findings indicated a change in self-perception as the carer role was acquired. Carers’ capacities were filtered through the needs of the care recipient, making their carer identities into invisible selves. The findings revealed that online communication had the potential to create a virtual space of social recognition. Study II aimed to reflect on carers’ experiences of participation in a co-design process consisting of user group sessions with carers and researchers. The goal was to develop a web-based support programme for carers. The findings emphasised a need to consider carers’ lifeworlds and to develop flexible human-centred design methodologies, that are able to balance carers’ needs and ideas with proposed research outcomes. Studies III and IV utilised an ethnographic methodology. In study III, the notion of couplehood in informal care was analysed. The findings showed that in the process of becoming a carer and a care recipient previous (often gendered) responsibilities were re- negotiated and new practicalities emerged. Although these changes were understood as a natural part of family life, they nevertheless led to changes in the (power) balance between spouses, expressed in terms of a professionalised relationship and a sense of social isolation. ICT was used as a means to get a respite from caring and uphold a social connection with others. In study IV, the social implications and consequences of spousal informal care and carers and care recipients’ experiences of illness and the ill body was explored. The findings showed that the participants experienced barriers to living life as before. Thoughts about or the presence of ill and “leaking” bodies thus lead to “self-chosen” social isolation or social distancing by others. The thesis highlights that informal care needs to be understood as an identity forming practice, having a significant impact on involved parties’ sense of couplehood, their social health and that ICT can contribute to ease carers’ and care recipients’ daily life.
2.
Holm, Marie-Louise
(författare)
Fleshing out the self : Reimagining intersexed and trans embodied lives through (auto)biographical accounts of the past
2017
Doktorsavhandling (övrigt vetenskapligt/konstnärligt) abstract
This thesis explores how current ways of imagining possibilities for intersexed and trans embodied lives within medical contexts might be informed by and reimagined through the historical lived experiences of intersexed and trans individuals as they have been articulated in autobiographical accounts.Postmodern, queer, intersex, and trans researchers and activists have criticised existing standards of intersex and trans healthcare for limiting the possibilities for diverse embodied lives by articulating certain forms of embodiment and selfhood as more likely to enable a liveable life than others. This has often been done in a medico-legal context by referring to experiences in the past of the unliveability of corporealities and gendersexed situations that differ from privileged positions. With a point of departure in these critiques, this thesis reopens questions about how intersexed and trans people may be embodied and have relations with others by reflecting upon the period of the first three-quarters of the 20th century, when the present standards of care and diagnostic categories were emerging, but had not yet become established.Drawing upon a unique set of historical source material from the archives of the Danish Ministry of Justice and the Medico-Legal Council, intersexed and trans persons’ life stories are rearticulated from their own and medico-legal experts’ accounts written in relation to applications for change of legal gendersex status and medical transition. In this way, the process is traced through which these life stories have been repeatedly rearticulated in order to become a usable basis for diagnosis and decision-making. At the same time, the stories are unfolded once more in a rearticulation focusing on their complexity and diversity.
3.
Wallroth, Veronika, 1978-
(författare)
Men do care! : A gender-aware and masculinity-informed contribution to caregiving scholarship
2016
Doktorsavhandling (övrigt vetenskapligt/konstnärligt) abstract
In caregiving literature, it is often the female gender that has been the focus of attention, and in particular women’s unpaid labor. Studies also tend to make comparisons between men’s and women’s caregiving, using men’s caregiving experiences to show not only that women face greater burdens, but also that men’s needs can be minimized. This means that while gender analysis is not uncommon in the caregiving literature, gender tends to be equated with womanhood. This is impeding us from moving the debates on care and caregiving forward. The dissertation argues – through a phenomenological analysis of men’s motives, experiences and perceptions of care and caregiving – that much could be gained if we were to rectify the gender bias by bringing attention to caregiving men in the gender-aware and masculinity-informed way that is lacking in the family caregiving literature at present. For this dissertation, 19 caregiving adult sons and sons-in-law were interviewed. The aim of the study is twofold. Firstly, it attempts to contribute to the rectification of the gender bias found in the literature on family caregiving by focusing on men’s caregiving and answering the following research questions: What motivates men to provide care for their elderly parents? How do adult sons experience caregiving? What do adult sons think that care and caregiving are, i.e. what are their perspectives on care? Secondly, this dissertation also aims to explore whether a gender-aware and masculinity-informed perspective can be used to enhance our understanding of caregiving. This study discusses how motives, experiences and perspectives, which have so far been interpreted as unique to women, are also matters that men talk about and consider important in caregiving. Thus, this study shows that a gender-aware and masculinity-informed perspective on care can increase our understanding of family caregiving and contribute to rectify the gender bias that care research suffers from. The study suggests that caregiving men should not solely be regarded as empirically interesting. This is because they are an unexploited and theoretically profuse source of information about caregiving.
