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Effectiveness of th...
Effectiveness of the STEPSTONES Transition Program for Adolescents With Congenital Heart Disease : A Randomized Controlled Trial
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- Bratt, Ewa-Lena, 1970 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Sahlgrens Univ Hosp, Sweden; Lund Univ, Sweden
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- Mora, Mariela Acuna (författare)
- Gothenburg University,Göteborgs universitet,University of Borås,Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Institute of Health and Care Science, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Academy of Caring Science, Work Life and Social Welfare, University of Borås, Sweden,Extern,Institutionen för vårdvetenskap och hälsa,External,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Univ Boras, Sweden; Lund Univ, Sweden
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- Sparud Lundin, Carina, 1964 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden
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- Saarijärvi, Markus, 1988 (författare)
- Gothenburg University,Göteborgs universitet,Karolinska Institutet,Karolinska Institute,Sahlgrenska Academy,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Karolinska Inst, Sweden; Lund Univ, Sweden
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- Burström, Åsa (författare)
- Karolinska Institutet,Karolinska Institute,Karolinska Inst, Sweden; Lund Univ, Sweden
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- Skogby, Sandra, 1989 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden; Univ Cape Town, South Africa; Queen Silvia Childrens Hosp, Sweden
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- Fernlund, Eva (författare)
- Linköpings universitet,Linköping University,Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Linköping University Hospital,Skåne University Hospital,Avdelningen för barns och kvinnors hälsa,Region Östergötland, H.K.H. Kronprinsessan Victorias barn- och ungdomssjukhus,Lund Univ, Sweden
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- Fadl, Shalan (författare)
- Department of Paediatrics, Örebro University Hospital, Örebro, Sweden,Lund Univ, Sweden; Orebro Univ Hosp, Sweden
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- Rydberg, Annika (författare)
- Umeå University,Umeå universitet,Pediatrik,Department of Clinical Sciences, Umeå University, Umeå, Sweden,Lund Univ, Sweden; Umea Univ, Sweden
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- Hanseus, Katarina (författare)
- Children's Heart Centre, Skåne University Hospital Lund, Lund, Sweden,Lund Univ, Sweden; Skane Univ Hosp, Sweden
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- Kazamia, Kalliopi (författare)
- Karolinska Institutet,Karolinska Institute,Uppsala University Hospital,Lund Univ, Sweden; Karolinska Univ Hosp, Sweden; Akad Univ Hosp, Sweden
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- Moons, Philip (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Univ Gothenburg, Sweden; Lund Univ, Sweden; Karolinska Inst, Sweden; Katholieke Univ Leuven, Belgium
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(creator_code:org_t)
- Elsevier, 2023
- 2023
- Engelska.
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Ingår i: Journal of Adolescent Health. - : Elsevier. - 1054-139X .- 1879-1972.
- Relaterad länk:
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https://doi.org/10.1...
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https://hb.diva-port... (primary) (Raw object)
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https://umu.diva-por... (primary) (Raw object)
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http://dx.doi.org/10... (free)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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http://kipublication...
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https://gup.ub.gu.se...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- Purpose: Adolescents with congenital heart disease transition from childhood to adulthood and transfer from pediatric-oriented to adult-oriented care. High-level empirical evidence on the effectiveness of transitional care is scarce. This study investigated the empowering effect (primary outcome) of a structured person-centered transition program for adolescents with congenital heart disease and studied its effectiveness on transition readiness, patient-reported health, quality of life, health behaviors, disease-related knowledge, and parental outcomes e.g., parental uncertainty, readiness for transition as perceived by the parents (secondary outcomes). Methods: The STEPSTONES-trial comprised a hybrid experimental design whereby a randomized controlled trial was embedded in a longitudinal observational study. The trial was conducted in seven centers in Sweden. Two centers were allocated to the randomized controlled trial-arm, randomizing participants to intervention or control group. The other five centers were intervention-naïve centers and served as contamination check control group. Outcomes were measured at the age of 16 years (baseline), 17 years, and 18.5 years. Results: The change in empowerment from 16 years to 18.5 years differed significantly between the intervention group and control group (mean difference = 3.44; 95% confidence interval = 0.27–6.65; p = .036) in favor of intervention group. For the secondary outcomes, significant differences in change over time were found in parental involvement (p = .008), disease-related knowledge (p = .0002), and satisfaction with physical appearance (p = .039). No differences in primary or secondary outcomes were detected between the control group and contamination check control group, indicating that there was no contamination in the control group. Discussion: The STEPSTONES transition program was effective in increasing patient empowerment, reducing parental involvement, improving satisfaction with physical appearance, and increasing disease-related knowledge. © 2023 Society for Adolescent Health and Medicine
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Nyckelord
- Adolescents
- Congenital
- Empowerment
- Heart disease
- Randomized controlled trial
- Transfer
- Transition
- Människan i vården
- The Human Perspective in Care
- Adolescents
- Congenital
- Empowerment
- Heart disease
- Randomized controlled trial
- Transfer
- Transition
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Till lärosätets databas
- Av författaren/redakt...
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Bratt, Ewa-Lena, ...
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Mora, Mariela Ac ...
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Sparud Lundin, C ...
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Saarijärvi, Mark ...
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Burström, Åsa
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Skogby, Sandra, ...
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Fernlund, Eva
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Fadl, Shalan
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Rydberg, Annika
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Hanseus, Katarin ...
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Kazamia, Kalliop ...
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Moons, Philip
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- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Kardiologi
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Pediatrik
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Omvårdnad
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskap
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och Hälso och sjukvå ...
- Artiklar i publikationen
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Journal of Adole ...
- Av lärosätet
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Högskolan i Borås
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Umeå universitet
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Lunds universitet
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Karolinska Institutet
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Göteborgs universitet
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Linköpings universitet
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