The interdependent roles of patients, families and professionals in cystic fibrosis : A system for the coproduction of healthcare and its improvement

• A quality healthcare system is coproduced by patients, families and healthcare professionals working interdependently to cocreate and codeliver care. Cystic fibrosis (CF) patients and families rely on healthcare professionals to provide the best possible care and timely, accurate information. They know that the care at home and in clinical settings needs to be seamless, using shared information and decisions. A parent's journey of better care begins with her son's diagnosis and moves to her involvement to improve the systems and processes of care for others. She reflects on this work and identifies five elements that contributed to the coproduction of improved care: (1) mental and emotional readiness to engage; (2) curiosity and the search for insight; (3) reframe challenges into opportunities for improvement; (4) listen and learn from everyone, bringing home what is relevant; and (5) personal participation. Joined with the reflections of an improvement scientist, they note that chronic care relies on informed, activated patients and prepared, proactive healthcare professionals working together and that it is more than 'patient-centric'. They propose a model for the coimprovement of systems of care.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)

MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)

Nyckelord

article

cystic fibrosis

health care delivery

health care personnel

health care system

human

learning

patient care

adolescent

adult

child

doctor patient relation

female

health care quality

human relation

integrated health care system

interdisciplinary communication

male

nurse patient relationship

organization and management

pathophysiology

preschool child

role playing

total quality management

United States

Child

Preschool

Delivery of Health Care

Integrated

Humans

Interpersonal Relations

Nurse-Patient Relations

Physician-Patient Relations

Professional-Family Relations

Quality Assurance

Health Care

Quality Improvement

Role

Publikations- och innehållstyp

ref (ämneskategori)

art (ämneskategori)