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The voice of caregi...
The voice of caregivers of children and adolescents with spinal cord injuries : A scoping review
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- Salmiranta, Elin (författare)
- Jönköping University,The Jönköping Academy for Improvement of Health and Welfare
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- Areskoug Josefsson, Kristina, 1973- (författare)
- Jönköping University,Högskolan Väst,Avdelningen for hälsopromotion och vårdvetenskap,Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Faculty of Health Science (SWE); Oslo Metropolitan University (NOR),LOVHH,The Jönköping Academy for Improvement of Health and Welfare
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- Ockander, Marlene (författare)
- Jönköping University,HHJ, Avdelningen för kvalitetsförbättring och ledarskap,The Jönköping Academy for Improvement of Health and Welfare
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- Augutis, Marika (författare)
- Karolinska Institutet
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- Masterson, Daniel (författare)
- Jönköping University,HHJ, Avdelningen för kvalitetsförbättring och ledarskap,The Jönköping Academy for Improvement of Health and Welfare
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(creator_code:org_t)
- 2023-02-06
- 2023
- Engelska.
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Ingår i: Journal of Spinal Cord Medicine (JSCM). - : Taylor & Francis Group. - 1079-0268 .- 2045-7723. ; 47:3, s. 315-326
- Relaterad länk:
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https://doi.org/10.1...
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https://hv.diva-port... (primary) (Raw object)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- Context:Participation in SCI research with caregivers of children and adolescents with spinal cord injury (SCI) can occur in a range of different ways. This review explores the extent to which caregivers’ participation is connected to what might be called a voice.Objectives:To explore the voice of caregivers by collating available research with the participation of caregivers of children and adolescents with SCI, and synthesizing how the research has been conducted.Methods:The databases CINAHL, ERIC, MEDLINE, PsycInfo, and Scopus were searched for articles published between January 2008 and March 2022. Descriptive and narrative information was extracted and factors describing how caregivers participated were identified using an inductive approach.Results:Twenty-nine articles were identified, of which 28 had affiliations connected to the USA, and 25 to Shriners Hospitals for Children. In most of the articles, the caregivers were invited to participate in the research to complete or develop measures. Information from the caregivers was often captured using close-structured questions and summarized quantitatively with little or no exploration of the perspectives of the caregivers.Conclusion:The voice of caregivers of children and adolescents with SCI in research is limited by representativeness, the pre-determined emphasis, a lack of involvement in the process, and the reported narrative. By reflecting on voice, caregivers can have their experiences and perspectives acted upon to a greater extent to bring change, ultimately leading to improved care and health for children and adolescents with SCI.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Nyckelord
- Co-production
- Integrated knowledge transfer
- Parents
- Pediatric
- Patient and public involvemen
- Vårdvetenskap
- Nursing science
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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