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Concepts of functio...
Concepts of functioning and health important to people with systemic sclerosis : a qualitative study in four European countries
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- Stamm, Tanja A. (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Mattsson, Malin (author)
- Luleå tekniska universitet,Hälsa och rehabilitering
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- Mihai, Carina (author)
- Internal Medicine and Rheumatology Department, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest
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- Stöcker, Juliane (author)
- Department of Rheumatology and Institute for Physical Medicine, University Hospital Zurich
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- Binder, Alexia (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Bauernfeind, Bettina (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Stumvoll, Georg (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Gard, Gunvor (author)
- Luleå University of Technology,Luleå tekniska universitet,Hälsa och rehabilitering
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- Hesselstrand, Roger (author)
- Lund University,Lunds universitet,Reumatologi och molekylär skelettbiologi,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Rheumatology,Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,Department of Rheumatology, Lund University
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- Sandqvist, Gunnel (author)
- Lund University,Lunds universitet,Reumatologi och molekylär skelettbiologi,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Rheumatology,Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,Department of Rheumatology, Lund University
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- Draghicescu, Oana (author)
- Internal Medicine and Rheumatology Department, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest
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- Gherghe, Ana Maria (author)
- Internal Medicine and Rheumatology Department, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest
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- Voicu, Malina (author)
- Research Institute for Quality of Life, Romanian Academy of Science, Bucharest
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- Machold, Klaus P. (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Distler, Oliver (author)
- Department of Rheumatology and Institute for Physical Medicine, University Hospital Zurich
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- Smolen, Josef S. (author)
- Department of Internal Medicine III, Division of Rheumatology, Medical University of Vienna
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- Boström, Carina (author)
- Karolinska Institutet,Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska Institutet
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(creator_code:org_t)
- 2011-05-02
- 2011
- English.
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In: Annals of the Rheumatic Diseases. - : BMJ. - 0003-4967 .- 1468-2060. ; 70:6, s. 1074-1079
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http://dx.doi.org/10...
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Abstract
Subject headings
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- Objective To describe the experiences of people with systemic sclerosis (SSc) in different European countries of functioning and health and to link these experiences to the WHO International Classification of Functioning, Disability and Health (ICF) to develop a common understanding from a bio-psycho-social perspective. Method A qualitative multicentre study with focus-group interviews was performed in four European countries: Austria, Romania, Sweden and Switzerland. The qualitative data analysis followed a modified form of 'meaning condensation' and the concepts that emerged in the analysis were linked to the ICF. Results 63 people with SSc participated in 13 focus groups. In total, 86 concepts were identified. 32 (37%) of these were linked to the ICF component body functions and structures, 21 (24%) to activities and participation, 26 (30%) to environmental factors, 6 (7%) to personal factors and 1 (1%) to the health condition itself. 19 concepts (22%) were identified in all four countries and included impaired hand function, household activities, paid work, drugs, climate and coldness, support from others and experiences with healthcare institutions, non-pharmacological treatment, social security and benefits. Conclusion Concepts identified in all four countries could be used for guiding clinical assessment, as well as interdisciplinary team care and rheumatological rehabilitation for patients with SSc. For a full understanding of the aspects of the disease that were most relevant to people with SSc, people with SSc from multiple countries needed to be involved.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Sjukgymnastik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Physiotherapy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reumatologi och inflammation (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Rheumatology and Autoimmunity (hsv//eng)
Keyword
- Sjukgymnastik
- Physiotherapy
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Stamm, Tanja A.
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Mattsson, Malin
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Mihai, Carina
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Stöcker, Juliane
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Binder, Alexia
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Bauernfeind, Bet ...
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show more...
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Stumvoll, Georg
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Gard, Gunvor
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Hesselstrand, Ro ...
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Sandqvist, Gunne ...
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Draghicescu, Oan ...
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Gherghe, Ana Mar ...
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Voicu, Malina
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Machold, Klaus P ...
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Distler, Oliver
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Smolen, Josef S.
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Boström, Carina
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Physiotherapy
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Rheumatology and ...
- Articles in the publication
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Annals of the Rh ...
- By the university
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Luleå University of Technology
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Lund University
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Karolinska Institutet