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NORDeHEALTH – Learning from the Nordic Experiences of Patient Online Record Access

Hägglund, Maria (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
Kharko, Anna (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden; School of Psychology, Faculty of Health, University of Plymouth, Plymouth, Great Britain
Bärkås, Annika (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
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Blease, Charlotte (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden; Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA
Cajander, Åsa (författare)
Department of Information Technology, Uppsala University, Uppsala, Sweden
DesRoches, Catherine (författare)
Department of Medicine, Division of General Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, USA
Johansen Fagerlund, Asbjørn (författare)
Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
Hagström, Josefin (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
Huvila, Isto (författare)
Department of Archives Libraries & Museums, Uppsala University, Uppsala, Sweden
Hörhammer, Iiris (författare)
Department of Computer Science, Aalto University, Espoo, Finland
Kane, Bridget (författare)
Business School, Karlstad University, Karlstad, Sweden
Klein, Gunnar O., 1953- (författare)
Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems
Kristiansen, Eli (författare)
Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
Moll, Jonas, 1982- (författare)
Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems
Muli, Irene (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
Rexhepi, Hanife (författare)
School of Informatics, University of Skövde, Skövde, Sweden
Riggare, Sara (författare)
Participatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden; Medtech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden
Ross, Peeter (författare)
E-Medicine Centre Department of Health Technologies, Tallinn University of Technology, Tallinn, EstoniaE
Scandurra, Isabella, 1973- (författare)
Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information systems
Simola, Saija (författare)
Department of Computer Science, Aalto University, Espoo, Finland
Soone, Hedvig (författare)
E-Medicine Centre Department of Health Technologies, Tallinn University of Technology, Tallinn, EstoniaE
Wang, Bo (författare)
Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway
Ghorbanian Zolbin, Maedeh (författare)
Department of Computer Science, Aalto University, Espoo, Finland
Åhlfeldt, Rose-Mharie (författare)
School of Informatics, University of Skövde, Skövde, Sweden
Kujala, Sari (författare)
Department of Computer Science, Aalto University, Espoo, Finland
Alise Johansen, Monika (författare)
Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway; Department of Clinical Medicine Telemedicine and E-health Research Group, Arctic University of Norway, Tromsø, Norway
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 (creator_code:org_t)
JMIR Publications, 2023
2023
Engelska.
Ingår i: Journal of Medical Internet Research. - : JMIR Publications. - 1438-8871.
Relaterad länk:
https://doi.org/10.2...
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https://urn.kb.se/re...
https://doi.org/10.2...
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  • Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
Abstract Ämnesord
Stäng  
  • The Nordic countries are forerunners in online record access (ORA) which has now become widespread. The importance of accessible and structured health data has also been highlighted by policymakers internationally. To ensure the full realization of ORA’spotential in the short and long term, there is a pressing need to study ORA from a cross-disciplinary, technical, clinical, humanistic, and social sciences perspective that looks beyond strictly technical aspects. In this viewpoint paper, we explore the policy changes in the European Health Data Space (EHDS) proposal to advance ORA across the European Union, and introduce a Nordic-led research project that carries out the first of its kind, large-scale international investigation of patients’ ORA; NORDeHEALTH. We argue that the EHDS proposal will pave the way for patients to access and control third-party access to their electronic health records (EHRs). This will have implications within Europe and globally as it will further extend the boundaries for accessing and using EHRs for primary and secondary data use. Research such as that led by the NORDeHEALTH project is essential in guiding the design and implementation of solutions to meet the requirements of the EHDS proposal. Further international collaboration and research are needed to ensure that socio-technical and contextual factors are considered to ensure successful and secure implementation.

Ämnesord

NATURVETENSKAP  -- Data- och informationsvetenskap -- Systemvetenskap, informationssystem och informatik (hsv//swe)
NATURAL SCIENCES  -- Computer and Information Sciences -- Information Systems (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)

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