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Towards a European ...
Towards a European prospective data registry for particle therapy
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Grau, Cai (author)
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- Dasu, Alexandru, 1972- (author)
- Uppsala universitet,Institutionen för immunologi, genetik och patologi
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Troost, Esther G.C. (author)
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Haustermans, Karin (author)
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Weber, Damien C. (author)
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Langendijk, Johannes A. (author)
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Gregoire, Vincent (author)
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Orlandi, Ester (author)
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Thariat, Juliette (author)
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Journy, Neige (author)
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Chaikh, Abdulhamid (author)
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Isambert, Aurelie (author)
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Jereczek-Fossa, Barbara Alicja (author)
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Vaniqui, Ana (author)
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Vitek, Pavel (author)
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Kopec, Renata (author)
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Fijten, Rianne (author)
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Luetgendorf-Caucig, Carola (author)
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Olko, Pawel (author)
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(creator_code:org_t)
- Elsevier, 2024
- 2024
- English.
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In: Radiotherapy and Oncology. - : Elsevier. - 0167-8140 .- 1879-0887. ; 196
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
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- The evidence for the value of particle therapy (PT) is still sparse. While randomized trials remain a cornerstone for robust comparisons with photon-based radiotherapy, data registries collecting real-world data can play a crucial role in building evidence for new developments. This Perspective describes how the European Particle Therapy Network (EPTN) is actively working on establishing a prospective data registry encompassing all patients undergoing PT in European centers. Several obstacles and hurdles are discussed, for instance harmonization of nomenclature and structure of technical and dosimetric data and data protection issues. A preferred approach is the adoption of a federated data registry model with transparent and agile governance to meet European requirements for data protection, transfer, and processing. Funding of the registry, especially for operation after the initial setup process, remains a major challenge.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Grau, Cai
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Dasu, Alexandru, ...
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Troost, Esther G ...
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Haustermans, Kar ...
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Weber, Damien C.
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Langendijk, Joha ...
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show more...
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Gregoire, Vincen ...
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Orlandi, Ester
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Thariat, Juliett ...
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Journy, Neige
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Chaikh, Abdulham ...
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Isambert, Aureli ...
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Jereczek-Fossa, ...
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Vaniqui, Ana
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Vitek, Pavel
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Kopec, Renata
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Fijten, Rianne
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Luetgendorf-Cauc ...
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Olko, Pawel
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show less...
- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cancer and Oncol ...
- Articles in the publication
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Radiotherapy and ...
- By the university
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Uppsala University