The reliability of the DISABKIDS health-related quality-of-life (HrQoL) questionnaire in Swedish children with diabetes

• Aim: To determine the reliability of the DISABKIDS chronic generic questionnaire and diabetes module in children. The questionnaire is being evaluated for repeated routine health-related quality-of-life (HRQoL) assessment and in association with the Swedish national paediatric diabetes registry (Swediabkids) which is a tool for regular clinical use. Methods: Children and parents completed the questionnaire during a routine visit to the diabetes clinic. In total 120 families completed the test and retest. Split-half reliability correlation and intraclass correlation coefficients were calculated. Bland & Altman plots were calculated on the generic HRQoL domain. Results: Both child and parent versions showed good internal consistency. Test-retest intraclass correlation coefficients for the generic HrQoL module was 0.913 for the children and 0.820 for the parent version. All generic domains independently showed good reliability. The diabetes module had a score of 0.855 for children and 0.823 for parents. Split-half correlation for generic and diabetes modules were 0.930, and 0.848 for children, 0.953 and 0.903 for parents. Bland and Altman plots showed substantial agreement between the two administrations for both children and parents. Conclusion: The DISABKIDS questionnaire is a reliable instrument for the repeated measurements of HrQoL in children with diabetes.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Pediatrik (hsv//swe)

MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Pediatrics (hsv//eng)

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Endokrinologi och diabetes (hsv//swe)

MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Endocrinology and Diabetes (hsv//eng)

Nyckelord

Children; Diabetes; Disabled children’s quality-of-life measure; Health-related quality-of-life; Reliability

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