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Is there a choice w...
Is there a choice when a sibling is ill? Experiences of children and adolescents who donated stem cells to a sibling
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- Rinaldo, C. (författare)
- Karolinska Institutet,Karolinska Institute,Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden.;Karolinska Inst, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Tomtebodav 18, SE-17177 Stockholm, Sweden
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- Stenmarker, Margaretha, 1960 (författare)
- Linköpings universitet,Linköping University,Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics,Sahlgrenska Academy,Futurum Acad Hlth & Care, Dept Paediat, Reg Jönköping Cty, Jönköping, Sweden.;Linköping Univ, Dept Biomed & Clin Sci, Linköping, Sweden.;Univ Gothenburg, Inst Clin Sci, Sahlgrenska Acad, Dept Paediat, Gothenburg, Sweden,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten
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- Frost, B M, 1955- (författare)
- Uppsala universitet,Uppsala University,Institutionen för kvinnors och barns hälsa,Uppsala Univ, Sweden
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- Øra, Ingrid (författare)
- Lund University,Lunds universitet,Childhood Cancer Research Unit,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Lund Univ, Dept Clin Sci, Lund, Sweden
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- Pergert, Pernilla, 1971- (författare)
- Karolinska Institutet,Karolinska Institute,Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden
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Karolinska Institute Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden;Karolinska Inst, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Tomtebodav 18, SE-17177 Stockholm, Sweden (creator_code:org_t)
- Elsevier BV, 2022
- 2022
- Engelska.
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Ingår i: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 58
- Relaterad länk:
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http://dx.doi.org/10... (free)
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https://doi.org/10.1...
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https://uu.diva-port... (primary) (Raw object)
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https://liu.diva-por... (primary) (Raw object)
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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https://lup.lub.lu.s...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- Purpose: When healthy children/adolescents are potential stem cell donors to a sibling, ethical questions arise due to reduced autonomy and dependency on their family. This study aimed to explore the experiences of children/ adolescents in Sweden who donated stem cells to a severely ill sibling.Method: Semi-structured interviews were conducted with thirteen donors, aged 6-17 years at the time of the donation, all with surviving siblings. The interviews were transcribed verbatim and analysed using qualitative content analysis.Result: The main category in this study was The presumed 'choice' when a sibling is ill. The experience included being Proud without an actual choice, highlights that the donors were proud to contribute, and perceptions of a request without a choice. Focusing on the ill sibling and the outcomes reveals that they were worried and protected the sibling, and downplayed the importance of their own effort. They experienced a Need of support and information, which derived from receiving information without communication about what they really needed to know, but also the importance of support through play and talk.Conclusion: The donation involves the young donor in the care, implying an opportunity to bring the family back together. They have no real choice, when their sibling is ill and the lack of information about possible alternatives indicate that there was no option to decline. There is also a need to focus on the experiences of young donors whose siblings died after the transplantation.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Medicinsk etik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Medical Ethics (hsv//eng)
- SAMHÄLLSVETENSKAP -- Sociologi -- Socialt arbete (hsv//swe)
- SOCIAL SCIENCES -- Sociology -- Social Work (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Adolescent
- Child
- Decision-making
- Donor
- Experience
- Hematopoietic
- stem cell transplantation
- Qualitative research
- marrow-transplantation
- donors
- risk
- perspectives
- childhood
- blood
- needs
- Oncology
- Nursing
- Hematopoietic stem cell transplantation
- Adolescent
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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