Making it Open and Keeping it Safe: e-Enabled Data-Sharing in Sweden

• This article focuses on data-sharing – a central aspect of an ambitious e-Science programme recently embarked on in Sweden. Data-sharing has become a powerful and promising direction in e-Science in general, even though fraughtwith difficulties. Sweden has a unique position in relation to data-sharing: a worldunique set of social science and medical data collections, a well-established tradition of regulations concerning data protection, a widely used form of personal identification that allows integration of databases, and a population that generally trusts researchers and the Swedish state with personal data. The aim of this study was to find out how Swedish database owners/managers and database users – key actorsin the Swedish e-Science enterprise – anticipate the way that databases will be built up, managed and used in the future, and how this will influence e-Science. For thispurpose, these actors were interviewed and official documents on the topic were studied. It is concluded that openness and the integrity of personal data are particularly critical elements for the success of a range of future e-Science endeavours in Sweden and elsewhere.

Ämnesord

NATURVETENSKAP  -- Data- och informationsvetenskap -- Annan data- och informationsvetenskap (hsv//swe)

NATURAL SCIENCES  -- Computer and Information Sciences -- Other Computer and Information Science (hsv//eng)

SAMHÄLLSVETENSKAP  -- Annan samhällsvetenskap -- Övrig annan samhällsvetenskap (hsv//swe)

SOCIAL SCIENCES  -- Other Social Sciences -- Other Social Sciences not elsewhere specified (hsv//eng)

Nyckelord

data-sharing

e-Science

e-Infrastructure

research ethics

Publikations- och innehållstyp

art (ämneskategori)

ref (ämneskategori)