| 1. |
- Ewertzon, Mats, 1956-, et al.
(författare)
-
Developing the concept of family involvement and the alienation questionnaire in the context of psychiatric care
- 2008
-
Ingår i: International Journal of Mental Health Nursing. - London : Wiley- Blackwell. - 1445-8330 .- 1447-0349. ; 17:6, s. 439-449
-
Tidskriftsartikel (refereegranskat)abstract
- Research shows that family members of persons with a mental illness often experience a lack of involvement in the psychiatric care of their relative. An interpretation of the findings of these studies raises the question whether the family members’ experience of not being involved can be conceptualised in terms of alienation towards mental health services from their encounter with psychiatric care. In order to explore this possibility, the Family Involvement and Alienation Questionnaire (FIAQ) was constructed, guided by relevant theoretical frameworks and empirical research. The content validity of the questionnaire was evaluated by two groups of experienced researchers who had sound knowledge of the theoretical frameworks used. Validity based on the response process was evaluated by parents of persons with mental illness. The reliability of the questionnaire was evaluated by a test-retest design, in a group of 15 family members. The data were analysed by a non-parametric statistical method. The results of the validity and reliability evaluations show that of the 46 original items 28 items in the questionnaire would be useful in exploring the concept of family involvement and alienation in the context of psychiatric care. Further, minor modification may make the FIAQ useful in exploring these concepts in other settings.
|
|
| 2. |
- Ewertzon, Mats, 1956-, et al.
(författare)
-
Family members' involvement in psychiatric care : experiences of the healthcare professionals' approach and feeling of alienation
- 2010
-
Ingår i: Journal of Psychiatric and Mental Health Nursing. - Oxford : Blackwell Publishing. - 1351-0126 .- 1365-2850. ; 17:5, s. 422-432
-
Tidskriftsartikel (refereegranskat)abstract
- The involvement of family members in psychiatric care is important for the recovery of persons with psychotic disorders and subsequently reduces the burden on the family. Earlier qualitative studies suggest that the participation of family members can be limited by how they experience the professionals’ approach, which suggests a connection to the concept of alienation. Thus, the aim of this study was in a national sample investigate family members’ experiences of the psychiatric health-care professionals’ approach. Data were collected by the Family Involvement and Alienation Questionnaire (FIAQ). The median level and quartiles were used to describe the distributions and data were analysed with non-parametric statistical methods. Seventy family members of persons receiving psychiatric care participated in the study. The results indicate that a majority of the participants respond that they have experiencing a negative approach from the professionals, indicating lack of confirmation and cooperation. The results also indicate that a majority of the participants felt powerlessness and social isolation in the care being provided, indicating feelings of alienation. A significant but weak association was found between the family members´ experiences of the professionals´ approach and their feelings of alienation.
|
|
| 3. |
- Ewertzon, Mats, 1956-, et al.
(författare)
-
A lonely life journey bordered with struggle : being a sibling of an individual with psychosis
- 2012
-
Ingår i: Issues in Mental Health Nursing. - Philadelphia, USA : Informa Healthcare. - 0161-2840 .- 1096-4673. ; 33:3, s. 157-164
-
Tidskriftsartikel (refereegranskat)abstract
- Research suggests that siblings of individuals with severe mental illness are affected by the situation of their affected sibling and that the health care services seem to partly fail in meeting their needs for support. The aim of this study was therefore to explore how siblings of individuals with a psychotic illness, and who have participated in a support group, experience their situation. Thirteen informants participated in focus group interviews, which were analysed by inductive content analysis. The findings were interpreted in an overall single theme: A lonely life journey bordered with struggle. This theme consists of three categories: facing existential thoughts, facing ambiguity in approach and engagement, and facing disparate attitudes and expectations.
|
|
| 4. |
- Ewertzon, Mats, 1956-
(författare)
-
Familjemedlem till person med psykossjukdom : bemötande och utanförskap i psykiatrisk vård
- 2012
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area.
|
|
