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Search: swepub > Conference paper > University of Gothenburg > Bratt Ewa Lena 1970

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  • Burström, Åsa, et al. (author)
  • Adolescents With Congenital Heart Disease and Their Parents: Needs Before Transfer to Adult Care
  • 2016
  • In: Journal of Cardiovascular Nursing, Vol. 31, No. 5, pp 399-404. - 0889-4655 .- 1550-5049.
  • Conference paper (peer-reviewed)abstract
    • BACKGROUND: Patients with congenital heart disease (CHD) are in need of lifelong healthcare. For adolescents with CHD, this transfer to adult-care clinic can be difficult. OBJECTIVE: The aim was to identify and describe the needs of adolescents with CHD and their parents during the transition before transfer to adult cardiologic healthcare. METHODS: This study has an exploratory design with a qualitative approach, where 13 adolescents with CHD and their parents (n = 12) were individually interviewed. The interviews were analyzed with content analysis. RESULTS: The analysis of the adolescents' interviews resulted in 3 categories: change of relationships, knowledge and information, and daily living. The theme that emerged depicting the meaning of the categories found was Safety and control, indicating needs of continuity, knowledge, and taking responsibility. Analysis of the parents' answers gave 2 categories: change of relationship and daily living. The theme that emerged was safety and trust, indicating needs of continuity and shifting responsibility. CONCLUSIONS: The transition must be carefully planned to ensure that adolescents can master new skills to manage the transfer to adult cardiologic healthcare. A structured program may facilitate and fulfill the needs of the adolescents and their parents, taking into consideration the aspects of trust, safety, and control. However, the content and performance of such a program must also be examined. We plan to undertake an extensive research project in the area, and this study will be a baseline for further research.
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  • Acuña Mora, Mariela, 1990, et al. (author)
  • Hybrid experimental design: A suitable design to tackle contamination of control groups
  • 2016
  • In: Nordic Conference in Nursing Research: Methods and Networks for the Future, June 15-17, Stockholm.
  • Conference paper (peer-reviewed)abstract
    • Background: Randomized controlled trials (RCTs) are considered to be the “gold standard” to assess the effectiveness of interventions. Because nursing interventions are most likely complex, multicomponent interventions, RCTs are often not suitable due to the risk of contamination of the control group. Such contamination can lead to a lower point estimate of the intervention’s effect and to underestimate the difference between both groups. Objective: To describe an innovative study design aiming to verify the contamination in the control group when testing the effectiveness of a person-centered transition program for adolescents with congenital heart disease (ConHD). Design: A hybrid experimental design is developed, in which a longitudinal, observational study is embedded in a RCT, resulting in a 3-arms design. The study will be conducted in 4 ConHD-centers in Sweden. Two centers will perform the RCT, by randomly assigning patients to either the experimental group (60 patients) or the comparison group (60 patients). This latter group may be subject of contamination. Two other centers are “intervention-naïve” and therefore comprise a contamination-free control group (120 patients). The occurrence of contamination will be investigated by comparing the comparison group and control group. Participants and setting: Participants are literate, Swedish-speaking adolescents with ConHD, aged 16 years and their parents. Discussion: This hybrid experimental design will give us the opportunity to investigate potential contamination of the comparison group, by studying differences with the control group from intervention-naïve centers. If this design is successful, it can be employed in the evaluation of complex nursing interventions.
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  • Result 1-10 of 85
Type of publication
conference paper  (85)Undo refine
Type of content
other academic/artistic (80)
peer-reviewed (5)
Author/Editor
Bratt, Ewa-Lena,... (85)Undo refine
Moons, Philip, 1968 (39)
Sparud Lundin, Carin ... (25)
Acuña Mora, Mariela, ... (22)
Goossens, Eva (14)
Östman-Smith, Ingege ... (12)
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Saarijärvi, Markus, ... (11)
Rydberg, Annika (10)
Burström, Åsa (10)
Skogby, Sandra, 1989 (9)
Hanseus, Katarina (8)
Johansson, Bengt (5)
Gyllensten, Hanna, 1 ... (5)
Mellander, Mats, 194 ... (5)
Axelsson, Åsa B., 19 ... (5)
Mattsson, Lars-Åke, ... (5)
de-Wahl Granelli, An ... (5)
Järvholm, Stina (5)
Ekman-Joelsson, Brit ... (5)
Nisell, Margret (5)
Öjmyr-Joelsson, Mari ... (5)
Wallin, Lars (4)
Fernlund, Eva (3)
Weineland, Sandra (3)
Buratti, Sandra, 198 ... (3)
Kazamia, Kalliopi (3)
Johannsmeyer, Antje (3)
Carlsson, Sven-Åke (3)
Dellborg, Mikael, 19 ... (2)
Rydberg, A (2)
Burstrom, A (2)
Hanseus, K (2)
Luyckx, Koen (2)
Fadl, Shalan (2)
Sunnegårdh, Jan, 194 ... (2)
Christersson, Christ ... (2)
Thilén, Ulf (2)
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Willén, Charlotta (2)
Samuelsson, Sarah (2)
Zühlke, Liesl (2)
Mayosi, Bongani (2)
Nagy, Edit (2)
Winberg, Per (2)
Krzynska, Aleksandra (2)
Frenckner, Björn (2)
Lundell, Bo (2)
Nilses, Åsa (2)
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University
University of Gothenburg  (85)Undo refine
Karolinska Institutet (4)
Red Cross University College (1)
Language
English (78)
Swedish (7)
Research subject (UKÄ/SCB)
Medical and Health Sciences (85)
Social Sciences (3)

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