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1.
  • Månsson Lexell, Eva, et al. (författare)
  • Occupational adaptation in people with Multiple Sclerosis.
  • 2011
  • Ingår i: OTJR: Occupation, Participation and Health. - Slack Inc. - 1539-4492. ; 31:3, s. 127-134
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of this study was to gain an enhanced understanding of how people with multiple sclerosis experience their occupational adaptation. Ten people with multiple sclerosis were interviewed and the constant comparative method was used to analyze the data. Their occupational adaptation was experienced as a constant struggle and non-linear, and served as the means of achieving either a desired self or a desired family life. Adaptations of occupations differed according to the evolving goals of the participants. The findings showed that the participants often selected occupational adaptations to meet their family needs over their own. These findings can help professionals to establish where their clients with multiple sclerosis are in the adaptation process and offer appropriate client-centered interventions.
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2.
  • Nilsson, Maria, et al. (författare)
  • Walking ability is a major contributor to fear of falling in people with Parkinson's disease: implications for rehabilitation.
  • 2012
  • Ingår i: Parkinson's Disease. - Hindawi Publishing Corporation. - 2042-0080. ; 2012:Sep 19
  • Tidskriftsartikel (refereegranskat)abstract
    • Although fear of falling (FOF) is common in people with Parkinson's disease (PD), there is a lack of research investigating potential predictors of FOF. This study explored the impact of motor, nonmotor, and demographic factors as well as complications of drug therapy on FOF among people with PD. Postal survey data (including the Falls Efficacy Scale, FES) from 154 nondemented people with PD were analyzed using multiple regression analyses. Five significant independent variables were identified explaining 74% of the variance in FES scores. The strongest contributing factor to FOF was walking difficulties (explaining 68%), followed by fatigue, turning hesitations, need for help in daily activities, and motor fluctuations. Exploring specific aspects of walking identified three significant variables explaining 59% of FOF: balance problems, limited ability to climb stairs, and turning hesitations. These results have implications for rehabilitation clinicians and suggest that walking ability is the primary target in order to reduce FOF. Specifically, balance, climbing stairs, and turning seem to be of particular importance.
3.
  • Iwarsson, Susanne, et al. (författare)
  • Assessment of dependence in daily activities combined with a self-rating of difficulty.
  • 2009
  • Ingår i: Journal of rehabilitation medicine : official journal of the UEMS European Board of Physical and Rehabilitation Medicine. - 1651-2081. ; 41:3, s. 150-6
  • Tidskriftsartikel (refereegranskat)abstract
    • OBJECTIVE: To study the information gained by extending a well-established instrument of dependence/independence in activities of daily living with a self-rating of difficulty, and to illustrate the relevance and usefulness of this combined approach with cross-national data. DESIGN AND SUBJECTS: Cross-sectional survey study data collected with 1918 very old persons in 5 European countries. METHODS: The "ADL staircase assessment" of dependence/independence, extended with a self-rating of difficulty, was administered at home visits. Data distribution in the 5 national samples and analyses with or without use of the self-rating data were carried out. RESULTS: High proportions of the subjects were independent in most of the activities assessed, while substantial proportions reported difficulties. Considerable differences were identified among the national samples. In personal activities of daily living, those assessed as independent varied from 87% to 100%, while the proportion of those who rated themselves as "independent without difficulty" ranged from 53% to 98%. In instrumental activities, 33-91% were assessed as independent, while the proportions of "independent without difficulty" ranged from 24% to 77%. Analysis results differed as to whether or not self-ratings of difficulty were used. CONCLUSION: The combined approach to data collection gave a diversified, information-rich picture. The assessment used is easy to administer and can be used in practice contexts in different countries.
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5.
  • Jörgensen, Sophie, et al. (författare)
  • Secondary Health Conditions, Activity Limitations, and Life Satisfaction in Older Adults With Long-Term Spinal Cord Injury
  • 2017
  • Ingår i: PM and R. - Elsevier. - 1934-1482. ; 9:4, s. 356-366
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: Many individuals with a spinal cord injury (SCI) have lived several decades with their injury, leading to a need for a deeper understanding of factors associated with healthy aging in people with long-term SCI. Objectives: To (1) describe secondary health conditions, activity limitations, and life satisfaction in older adults with long-term SCI, and to (2) investigate how sociodemographics, injury characteristics, and secondary health conditions are associated with their activity limitations and life satisfaction. Design: Cross-sectional descriptive cohort study. Setting: Home and community settings. Participants: A total of 123 individuals (71% men, injury levels C1-L5, American Spinal Injury Association Impairment Scale A-D), mean age 63 years, mean time since injury 24 years. Methods: Baseline data as part of the Swedish Aging with Spinal Cord Injury Study. Associations between variables were investigated with multivariable linear regression analyses. Main Outcome Measurements: Bowel and bladder function, nociceptive and neuropathic pain, spasticity, the Spinal Cord Independence Measure, third version, and the Satisfaction With Life Scale. Results: Bowel-related and bladder-related problems were reported by 32% and 44%, respectively, 66% reported moderate or severe nociceptive and/or neuropathic pain, and 44% reported spasticity. Activity limitations were moderate (mean Spinal Cord Independence Measure, third version, total score 65.2, range 8-100) where injury characteristics and spasticity explained 68% of the variance. Higher level and more severe SCI (based on the American Spinal Injury Association Impairment Scale) exhibited the strongest association with more activity limitations. Life satisfaction was rated just above the midpoint between satisfied and dissatisfied with life (mean Satisfaction With Life Scale total score 20.7, range 6-34). Marital status, vocational situation, bladder function and injury characteristics explained 38% of the variance, where having a partner showed the strongest association with greater life satisfaction. Activity limitations and life satisfaction were not associated with gender, age and time since injury. Conclusion: Older adults with long-term SCI can maintain a relatively high level of physical independence and generally are satisfied with their lives, regardless of gender, age or time since injury. The associations demonstrate the importance of injury characteristics for the performance of daily activities and the social context for life satisfaction in older adults with long-term SCI. Level of Evidence: To be determined.
6.
  • Månsson Lexell, Eva, et al. (författare)
  • Constantly Changing Lives: Experiences of People With Multiple Sclerosis
  • 2009
  • Ingår i: American Journal of Occupational Therapy. - American Occupational Therapy Association. - 0272-9490. ; 63:6, s. 772-781
  • Tidskriftsartikel (refereegranskat)abstract
    • The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory, The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity.
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7.
  • Jörgensen, Sophie, et al. (författare)
  • Depressive symptoms among older adults with long-term spinal cord injury : Associations with secondary health conditions, sense of coherence, coping strategies and physical activity
  • 2017
  • Ingår i: Journal of Rehabilitation Medicine. - Foundation for Rehabilitation Information. - 1650-1977. ; 49:8, s. 644-651
  • Tidskriftsartikel (refereegranskat)abstract
    • OBJECTIVES:To assess the presence of depressive symptoms among older adults with long-term spinal cord injury and investigate the association with sociodemographic and injury characteristics; and to determine how potentially modifiable factors, i.e. secondary health conditions, sense of coherence, coping strategies and leisure-time physical activity, are associated with depressive symptoms.DESIGN:Cross-sectional study.SUBJECTS:A total of 122 individuals (70% men, injury levels C1-L5, American Spinal Injury Association Impairment Scale A-D), mean age 63 years, mean time since injury 24 years.METHODS:Data from the Swedish Aging with Spinal Cord Injury Study, collected using the Geriatric Depression Scale-15, the 13-item Sense of Coherence Scale, the Spinal Cord Lesion-related Coping Strategies Questionnaire and the Physical Activity Recall Assessment for people with Spinal Cord Injury. Associations were analysed using multivariable linear regression.RESULTS:A total of 29% reported clinically relevant depressive symptoms and 5% reported probable depression. Sense of coherence, the coping strategy Acceptance, neuropathic pain and leisure-time physical activity explained 53% of the variance in depressive symptoms.CONCLUSION:Older adults with long-term spinal cord injury report a low presence of probable depression. Mental health may be supported through rehabilitation that strengthens the ability to understand and confront life stressors, promotes acceptance of the injury, provides pain management and encourages participation in leisure-time physical activity.
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8.
  • Lexell, Eva Månsson, et al. (författare)
  • Constantly changing lives : Experiences of people with multiple sclerosis
  • 2009
  • Ingår i: Journal of occupational therapy. - 0272-9490. ; 63:6
  • Tidskriftsartikel (refereegranskat)abstract
    • The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory. The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity
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9.
  • Pettersson, Cecilia, et al. (författare)
  • Evidence-based interventions involving occupational therapists are needed in re-ablement for older community-living people : A systematic review
  • 2017
  • Ingår i: British Journal of Occupational Therapy. - SAGE PUBLICATIONS LTD. - 0308-0226. ; 80:5, s. 273-285
  • Forskningsöversikt (övrigt vetenskapligt)abstract
    • Introduction: Re-ablement services are in a period of strong development, but the terms and definitions used remain unclear, and the scientific evidence is still weak. The aim of this systematic review was to obtain an overview of the scientific literature in this evolving research area, and investigate whether there is scientific evidence for positive effects of re-ablement services for older community-living people. Method: The systematic literature search was conducted in the databases CINAHL, PubMed and Svemed + (Swemed) and covered the years 2000-2014. Owing to the heterogeneity in the included studies, a narrative synthesis was performed. Results: Eight original publications were found eligible and included in the systematic review. When addressed, terms and definitions varied among the papers. Effects such as less use of home care, higher likelihood to live at home, improved activities of daily living (ADL) skills, quality of life and physical health, increased physical activity and lower costs compared to conventional home care were reported. Conclusion: More high-quality research is needed to strengthen the evidence-base regarding re-ablement services. The specific roles of various professional and staff groups are often insufficiently described, as are the interventions as such, and there is a lack of attention to person-centered aspects such as the meaningfulness of the specific activities.
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