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1.
  • Månsson Lexell, Eva, et al. (författare)
  • Occupational adaptation in people with Multiple Sclerosis.
  • 2011
  • Ingår i: OTJR: Occupation, Participation and Health. - Slack Inc. - 1539-4492. ; 31:3, s. 127-134
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of this study was to gain an enhanced understanding of how people with multiple sclerosis experience their occupational adaptation. Ten people with multiple sclerosis were interviewed and the constant comparative method was used to analyze the data. Their occupational adaptation was experienced as a constant struggle and non-linear, and served as the means of achieving either a desired self or a desired family life. Adaptations of occupations differed according to the evolving goals of the participants. The findings showed that the participants often selected occupational adaptations to meet their family needs over their own. These findings can help professionals to establish where their clients with multiple sclerosis are in the adaptation process and offer appropriate client-centered interventions.
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2.
  • Nilsson, Maria, et al. (författare)
  • Walking ability is a major contributor to fear of falling in people with Parkinson's disease: implications for rehabilitation.
  • 2012
  • Ingår i: Parkinson's Disease. - Hindawi Publishing Corporation. - 2042-0080. ; 2012:Sep 19
  • Tidskriftsartikel (refereegranskat)abstract
    • Although fear of falling (FOF) is common in people with Parkinson's disease (PD), there is a lack of research investigating potential predictors of FOF. This study explored the impact of motor, nonmotor, and demographic factors as well as complications of drug therapy on FOF among people with PD. Postal survey data (including the Falls Efficacy Scale, FES) from 154 nondemented people with PD were analyzed using multiple regression analyses. Five significant independent variables were identified explaining 74% of the variance in FES scores. The strongest contributing factor to FOF was walking difficulties (explaining 68%), followed by fatigue, turning hesitations, need for help in daily activities, and motor fluctuations. Exploring specific aspects of walking identified three significant variables explaining 59% of FOF: balance problems, limited ability to climb stairs, and turning hesitations. These results have implications for rehabilitation clinicians and suggest that walking ability is the primary target in order to reduce FOF. Specifically, balance, climbing stairs, and turning seem to be of particular importance.
3.
  • Iwarsson, Susanne, et al. (författare)
  • Assessment of dependence in daily activities combined with a self-rating of difficulty.
  • 2009
  • Ingår i: Journal of rehabilitation medicine : official journal of the UEMS European Board of Physical and Rehabilitation Medicine. - 1651-2081. ; 41:3, s. 150-6
  • Tidskriftsartikel (refereegranskat)abstract
    • OBJECTIVE: To study the information gained by extending a well-established instrument of dependence/independence in activities of daily living with a self-rating of difficulty, and to illustrate the relevance and usefulness of this combined approach with cross-national data. DESIGN AND SUBJECTS: Cross-sectional survey study data collected with 1918 very old persons in 5 European countries. METHODS: The "ADL staircase assessment" of dependence/independence, extended with a self-rating of difficulty, was administered at home visits. Data distribution in the 5 national samples and analyses with or without use of the self-rating data were carried out. RESULTS: High proportions of the subjects were independent in most of the activities assessed, while substantial proportions reported difficulties. Considerable differences were identified among the national samples. In personal activities of daily living, those assessed as independent varied from 87% to 100%, while the proportion of those who rated themselves as "independent without difficulty" ranged from 53% to 98%. In instrumental activities, 33-91% were assessed as independent, while the proportions of "independent without difficulty" ranged from 24% to 77%. Analysis results differed as to whether or not self-ratings of difficulty were used. CONCLUSION: The combined approach to data collection gave a diversified, information-rich picture. The assessment used is easy to administer and can be used in practice contexts in different countries.
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6.
  • Månsson Lexell, Eva, et al. (författare)
  • Constantly Changing Lives: Experiences of People With Multiple Sclerosis
  • 2009
  • Ingår i: American Journal of Occupational Therapy. - American Occupational Therapy Association. - 0272-9490. ; 63:6, s. 772-781
  • Tidskriftsartikel (refereegranskat)abstract
    • The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory, The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity.
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7.
  • Jörgensen, Sophie, et al. (författare)
  • Secondary Health Conditions, Activity Limitations, and Life Satisfaction in Older Adults With Long-Term Spinal Cord Injury
  • 2016
  • Ingår i: PM&R. - 1934-1482.
  • Tidskriftsartikel (refereegranskat)abstract
    • BackgroundMany individuals with a spinal cord injury (SCI) have lived several decades with their injury, leading to a need for a deeper understanding of factors associated with healthy aging in people with long-term SCI.ObjectivesTo (1) describe secondary health conditions, activity limitations, and life satisfaction in older adults with long-term SCI, and to (2) investigate how sociodemographics, injury characteristics, and secondary health conditions are associated with their activity limitations and life satisfaction.DesignCross-sectional descriptive cohort study.SettingHome and community settings.ParticipantsA total of 123 individuals (71% men, injury levels C1-L5, American Spinal Injury Association Impairment Scale A-D), mean age 63 years, mean time since injury 24 years.MethodsBaseline data as part of the Swedish Aging with Spinal Cord Injury Study. Associations between variables were investigated with multivariable linear regression analyses.Main Outcome MeasurementsBowel and bladder function, nociceptive and neuropathic pain, spasticity, the Spinal Cord Independence Measure, third edition, and the Satisfaction With Life Scale.ResultsBowel-related and bladder-related problems were reported by 32% and 44%, respectively, 66% reported moderate or severe nociceptive and/or neuropathic pain, and 44% reported spasticity. Activity limitations were moderate (mean Spinal Cord Independence Measure, third edition, total score 65.2, range 8-100) where injury characteristics and spasticity explained 68% of the variance. Higher level and more severe SCI (based on the American Spinal Injury Association Impairment Scale) exhibited the strongest association with more activity limitations. Life satisfaction was rated just above the midpoint between satisfied and dissatisfied with life (mean Satisfaction With Life Scale total score 20.7, range 6-34). Marital status, vocational situation, bladder function and injury characteristics explained 38% of the variance, where having a partner showed the strongest association with greater life satisfaction. Activity limitations and life satisfaction were not associated with gender, age and time since injury.ConclusionOlder adults with long-term SCI can maintain a relatively high level of physical independence and generally are satisfied with their lives, regardless of gender, age or time since injury. The associations demonstrate the importance of injury characteristics for the performance of daily activities and the social context for life satisfaction in older adults with long-term SCI.Level of EvidenceTo be determined.
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8.
  • Lexell, Eva Månsson, et al. (författare)
  • Constantly changing lives : Experiences of people with multiple sclerosis
  • 2009
  • Ingår i: Journal of occupational therapy. - 0272-9490. ; 63:6
  • Tidskriftsartikel (refereegranskat)abstract
    • The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory. The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity
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9.
  • Dahlin-Ivanoff, Synneve, 1950-, et al. (författare)
  • Occupational therapy research on assistive technology and physical environmental issues - A literature review
  • 2006
  • Ingår i: Canadian Journal of Occupational Therapy. - Canadian Association of Occupational Therapists. - 0008-4174. ; 73:2, s. 109-119
  • Forskningsöversikt (refereegranskat)abstract
    • Abstract in French Description. Afin d'orienter les recherches futures dans les domaines des aides techniques et des questions liées à l'environnement physique, il est important de bien comprendre les études menées précédemment. But. Cette recension des écrits avait pour but de déterminer la manière selon laquelle les aides techniques et les questions touchant l'environnement physique ont été étudiées dans les études publiées dans des revues internationales en ergothérapie révisées par les pairs. Méthodologie. Cinq volumes récents de neuf revues ont été recensés manuellement, selon des critères spécifiques. Les publications ont été classées en fonction de leur perspective, de l'application du modèle personne-environnement-occupation (PEO) et de leur plan expérimental. Résultats. Dans les deux domaines, on a dénoté l'utilisation de différentes méthodes de recherche ainsi que le besoin d'améliorer ces méthodes. Conséquences pour la pratique. On constate que peu d'études englobant les trois composantes PEO ont été menées, ce qui indique un manque de recherche sur les questions touchant le rendement occupationnel. D'autres études devront être menées sur le rendement occupationnel afin de faire progresser les domaines des aides techniques et des questions touchant l'environnement physique en ergothérapie. Par ailleurs, les plans expérimentaux doivent tenir compte du niveau social dans les trois composantes du modèle PEO. L'étude conclut que les concepts et la théorie devront être élaborés dans les deux domaines.
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10.
  • Haak, Maria, et al. (författare)
  • Home as a signification of independence and autonomy: Experiences among very old Swedish people.
  • 2007
  • Ingår i: Scandinavian Journal of Occupational Therapy. - Taylor & Francis. - 1651-2014. ; 14:1, s. 16-24
  • Tidskriftsartikel (refereegranskat)abstract
    • The aim of this study was to explore independence in the home as experienced by very old single-living people in Sweden. A grounded theory approach was used and interviews were conducted with 40 men and women aged 80-89. Data analysis revealed the core category "Home as a signification of independence" with two main categories: "Struggle for independence" and "Governing daily life". The findings showed that home is strongly linked to independence, and being independent is extremely valued. Explicit descriptions of the ageing process as an individual process of changing living conditions within the home emerged from the findings. Hence, the ageing process influences the participants' perception of themselves as independent persons. Along the ageing process the participants' view of independence changed from being independent in activity performance without help from others to experiencing independence in being able to make autonomous decisions concerning daily life at home. Consequently, there is a need to develop strategies to support very old people in staying as active and independent as possible in their own homes. In addition, since the findings highlight that independence is a complex construct, there is a need for conceptual differentiation between independence and a construct often used synonymously, namely autonomy.
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