EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis

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EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis

Parodis, Ioannis, 1981- (författare): Karolinska Institutet,Örebro universitet,Institutionen för medicinska vetenskaper,Division of Rheumatology, Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden; Department of Gastroenterology, Dermatology and Rheumatology, Karolinska University Hospital, Stockholm, Sweden; Department of Rheumatology, Faculty of Medicine and Health, Örebro University, Örebro, Sweden

Girard-Guyonvarc'h, Charlotte (författare): Division of Rheumatology, Department of Medicine, University Hospital of Geneva, Geneve, Switzerland; Faculty of Medicine, University of Geneva, Geneva, Switzerland

Arnaud, Laurent (författare): Department of Rheumatology, Hôpitaux Universitaires de Strasbourg, Centre National de Référence (RESO), INSERM UMR-S 1109, Strasbourg, France

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Distler, Oliver (författare): Department of Rheumatology, University Hospital Zurich, University of Zurich, Zurich, Switzerland

Domján, Andrea (författare): Department of Rheumatology, Faculty of Medicine, University of Debrecen, Debrecen, Hungary

Van den Ende, Cornelia H. M. (författare): Department of Research, Sint Maartenskliniek, Nijmegen, The Netherlands; Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands

Fligelstone, Kim (författare): Federation of European Scleroderma Associations (FESCA), Brussels, Belgium

Kocher, Agnes (författare): Institute of Nursing Science, Faculty of Medicine, University of Basel, Basel, Switzerland

Larosa, Maddalena (författare): Rheumatology Unit, Department of Medical Specialties, ASL3, Genoa, Italy

Lau, Martin (författare): Arthritis Action, London, UK

Mitropoulos, Alexandros (författare): Department of Nursing and Midwifery, College of Health Wellbeing and Life Science, Sheffield Hallam University, Sheffield, UK

Ndosi, Mwidimi (författare): School of Health and Social Wellbeing, University of the West of England, Bristol, UK

Poole, Janet L. (författare): Occupational Therapy Graduate Program, School of Medicine, University of New Mexico, Albuquerque, New Mexico, USA

Redmond, Anthony (författare): Leeds Institute for Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK

Ritschl, Valentin (författare): Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria; Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria

Alexanderson, Helene (författare): Karolinska Institutet

Sjöberg, Yvonne (författare): Swedish Rheumatism Association, Stockholm, Sweden

von Perner, Gunilla (författare): Swedish Rheumatism Association, Stockholm, Sweden

Uhlig, Till (författare): Center for Treatment of Rheumatic and Musculoskeletal Diseases, Diakonhjemmet Hospital, Oslo, Norway

Varju, Cecilia (författare): Department of Rheumatology and Immunology, Medical School of University of Pécs, Pécs, Hungary

Vriezekolk, Johanna E. (författare): Department of Research, Sint Maartenskliniek, Nijmegen, The Netherlands

Welin, Elisabet, professor, 1960- (författare): Örebro universitet,Institutionen för hälsovetenskaper

Westhovens, René (författare): Skeletal Biology and Engineering Research Center, KU Leuven, Leuven, Belgium

Stamm, Tanja A. (författare): Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Vienna, Austria; Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria

Boström, Carina (författare): Department of Occupational Therapy and Physiotherapy, Karolinska University Hospital, Stockholm, Sweden; Division of Physiotherapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden

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HighWire Press, 2024
2024
Engelska.
Ingår i: Annals of the Rheumatic Diseases. - : HighWire Press. - 0003-4967 .- 1468-2060. ; 83, s. 720-729

Relaterad länk:: https://doi.org/10.1...; visa fler...; https://urn.kb.se/re...; https://doi.org/10.1...; http://kipublication...; visa färre...

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OBJECTIVE: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc).METHODS: A task force comprising 7 rheumatologists, 15 other healthcare professionals and 3 patients was established. Following a systematic literature review performed to inform the recommendations, statements were formulated, discussed during online meetings and graded based on risk of bias assessment, level of evidence (LoE) and strength of recommendation (SoR; scale A-D, A comprising consistent LoE 1 studies, D comprising LoE 4 or inconsistent studies), following the European Alliance of Associations for Rheumatology standard operating procedure. Level of agreement (LoA; scale 0-10, 0 denoting complete disagreement, 10 denoting complete agreement) was determined for each statement through online voting.RESULTS: Four overarching principles and 12 recommendations were developed. These concerned common and disease-specific aspects of non-pharmacological management. SoR ranged from A to D. The mean LoA with the overarching principles and recommendations ranged from 8.4 to 9.7. Briefly, non-pharmacological management of SLE and SSc should be tailored, person-centred and participatory. It is not intended to preclude but rather complement pharmacotherapy. Patients should be offered education and support for physical exercise, smoking cessation and avoidance of cold exposure. Photoprotection and psychosocial interventions are important for SLE patients, while mouth and hand exercises are important in SSc.CONCLUSIONS: The recommendations will guide healthcare professionals and patients towards a holistic and personalised management of SLE and SSc. Research and educational agendas were developed to address needs towards a higher evidence level, enhancement of clinician-patient communication and improved outcomes.

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MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Reumatologi och ...

Artiklar i publikationen: Annals of the Rh ...

Av lärosätet: Örebro universitet; Karolinska Institutet

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EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis

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