Initiators, controllers, and influencers: Enacting patient advocacy roles in cervical cancer screening policy practices

• This chapter looks at how patient advocates have intervened in cervical cancer policies to promote and enact the HPV test as the new “right tool for the job” in cervical cancer screening. By drawing upon an ethnography of a Swedish patients’ group, it provides a case study of patient advocates as key actors in the current fabrics and monitoring of healthcare policies. Focused on the interplay between “uninvited participation” and “evidence-based activism,” the chapter discusses how patient advocacy roles—“initiators,” “controllers,” and “influencers”—are enacted and sparked through policy-related patient activism. The author pays particular attention to how patient advocates translate “credentialized knowledge,” such as clinical guidelines, journal articles, and statistics, into evidence in support of policy change. The chapter develops the notion of “evidential objects,” used for analyzing the role of such material and textual objects in patient advocates’ mobilization of evidence.

Ämnesord

SAMHÄLLSVETENSKAP  -- Annan samhällsvetenskap -- Tvärvetenskapliga studier inom samhällsvetenskap (hsv//swe)

SOCIAL SCIENCES  -- Other Social Sciences -- Social Sciences Interdisciplinary (hsv//eng)

SAMHÄLLSVETENSKAP  -- Sociologi -- Sociologi (hsv//swe)

SOCIAL SCIENCES  -- Sociology -- Sociology (hsv//eng)

SAMHÄLLSVETENSKAP  -- Annan samhällsvetenskap -- Genusstudier (hsv//swe)

SOCIAL SCIENCES  -- Other Social Sciences -- Gender Studies (hsv//eng)

SAMHÄLLSVETENSKAP  -- Annan samhällsvetenskap -- Övrig annan samhällsvetenskap (hsv//swe)

SOCIAL SCIENCES  -- Other Social Sciences -- Other Social Sciences not elsewhere specified (hsv//eng)

Nyckelord

cancer activism

healthcare activism

patient organizations

patient advocacy

cervical cancer screening

Sweden

healthcare

HPV

Publikations- och innehållstyp

ref (ämneskategori)

kap (ämneskategori)