Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers

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Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: a qualitative study from the perspectives of health professionals and family caregivers

Holm, Maja (författare): Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Karolinska Institute, Sweden; Ersta Skondal University of Coll, Sweden

Carlander (Goliath), Ida (författare): Ersta Sköndal högskola,Karolinska Institutet,Palliativt forskningscentrum, PFC,Ersta Skondal University of Coll, Sweden; Karolinska Institute, Sweden

Fürst, Carl Johan (författare): Lund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine,Department of Clinical Science, Lund University, Institute for Palliative Care at Lund University and Region Skåne, Lund, Sweden

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Wengström, Yvonne, 1959- (författare): Karolinska Institutet,Karolinska Institute, Sweden; University of Örebro, Sweden

Årestedt, Kristofer, 1968- (författare): Linköpings universitet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Linköpings universitet; Linnéuniversitetet,Avdelningen för omvårdnad,Medicinska fakulteten,Linnaeus University, Sweden

Öhlén, Joakim, 1958 (författare): Ersta Sköndal högskola,Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Health and Care Sciences,University of Gothenburg Centre for person-centred care (GPCC),Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden; Centre for Person-Centred Care, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden,Palliativt forskningscentrum, PFC,Ersta Skondal University of Coll, Sweden; University of Gothenburg, Sweden; University of Gothenburg, Sweden

Henriksson (Alvariza), Anette (författare): Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Karolinska institutet; Capio Geriatrik, Dalen, Stockholm,Karolinska Institute, Sweden; Ersta Skondal University of Coll, Sweden; Ersta Skondal University of Coll, Sweden; Dalen Hospital, Sweden

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(creator_code:org_t)

2015-04-24
2015
Engelska.
Ingår i: Bmc Palliative Care. - : Springer Science and Business Media LLC. - 1472-684X. ; 14

Relaterad länk:: https://bmcpalliatca...; visa fler...; https://portal.resea... (primary) (free); http://www.ncbi.nlm....; http://dx.doi.org/10... (free); https://doi.org/10.1...; https://liu.diva-por... (primary) (Raw object); https://gup.ub.gu.se...; https://doi.org/10.1...; https://lup.lub.lu.s...; https://urn.kb.se/re...; https://urn.kb.se/re...; http://kipublication...; https://urn.kb.se/re...; https://urn.kb.se/re...; visa färre...

Tidskriftsartikel (refereegranskat)

Abstract Ämnesord

Stäng

Background: Family caregivers in palliative care have a need for knowledge and support from health professionals, resulting in the need for educational and supportive interventions. However, research has mainly focused on the experiences of family caregivers taking part in interventions. To gain an increased understanding of complex interventions, it is necessary to integrate the perspectives of health professionals and family caregivers. Hence, the aim of this study is to explore the perspectives of health professionals and family caregivers of delivering and participating in a psycho-educational intervention in palliative home care. Methods: A psycho-educational intervention was designed for family caregivers based on a theoretical framework describing family caregiver's need for knowing, being and doing. The intervention was delivered over three sessions, each of which included a presentation by healthcare professionals from an intervention manual. An interpretive descriptive design was chosen and data were collected through focus group discussions with health professionals and individual interviews with family caregivers. Data were analysed using framework analysis. Results: From the perspectives of both health professionals and family caregivers, the delivering and participating in the intervention was a positive experience. Although the content was not always adjusted to the family caregivers' individual situation, it was perceived as valuable. Consistently, the intervention was regarded as something that could make family caregivers better prepared for caregiving. Health professionals found that the work with the intervention demanded time and engagement from them and that the manual needed to be adjusted to suit group characteristics, but the experience of delivering the intervention was still something that gave them satisfaction and contributed to them finding insights into their work. Conclusions: The theoretical framework used in this study seems appropriate to use for the design of interventions to support family caregivers. In the perspectives of health professionals and family caregivers, the psycho-educational intervention had important benefits and there was congruence between the two groups in that it provided reward and support. In order for health professionals to carry out psycho-educational interventions, they may be in need of support and supervision as well as securing appropriate time and resources in their everyday work.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Clinical Medicine (hsv//eng)

Nyckelord

Family caregivers
Health professionals
Home care
Psycho-educational intervention
Palliative care
LIFE-THREATENING ILLNESS
SUPPORT GROUP PROGRAM
INFORMAL CAREGIVERS
OF-LIFE
NEEDS
END
CANCER
EXPERIENCES
FRAMEWORK
MEMBERS
Health Care Sciences & Services
Health Policy & Services
Family caregivers; Health professionals; Home care; Palliative care; Psycho-educational intervention; Support
Health and Medical Care Research
Omvårdnad

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