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Should donors be al...
Should donors be allowed to give broad consent to future biobank research?
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- Hansson, Mats G (författare)
- Uppsala universitet,Institutionen för folkhälso- och vårdvetenskap,Biomedical Ethics
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- Dillner, Joakim (författare)
- Karolinska Institutet,Lund University,Lunds universitet,Klinisk mikrobiologi, Malmö,Forskargrupper vid Lunds universitet,Clinical Microbiology, Malmö,Lund University Research Groups
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Bartrarn, CR (författare)
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visa fler...
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- Carlson, Joyce (författare)
- Lund University,Lunds universitet,Klinisk kemi, Malmö,Forskargrupper vid Lunds universitet,Clinical Chemistry, Malmö,Lund University Research Groups
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- Helgesson, Gert (författare)
- Karolinska Institutet,Uppsala universitet,Institutionen för folkhälso- och vårdvetenskap,Biomedical Ethics
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visa färre...
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(creator_code:org_t)
- 2006
- 2006
- Engelska.
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Ingår i: The Lancet Oncology. - 1474-5488 .- 1470-2045. ; 7:3, s. 266-9
- Relaterad länk:
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http://dx.doi.org/10...
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http://www.ncbi.nlm....
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- Large international biobank studies can make substantial contributions to scientific research by validation of the biological importance of previous research and by identification of previously unknown causes of disease. However, regulations for patient consent that are too strict and discrepancies in national policies on informed consent might hinder progress. Therefore, establishment of common ground for ethical review of biobank research is essential. in this essay, broad consent is defined on a scale between strictly specified (eg, for a specific study) and blanket consent (ie, with no restrictions regarding the purpose of the research). Future research includes that which might not be planned or even conceptualised when consent is obtained. In conclusion, broad consent and consent for future research are valid ethically and should be recommended for biobank research provided that: personal information related to research is handled safely; donors of biological samples are granted the right to withdraw consent; and new research studies or changes to the legal or ethical authority of a biobank are approved by an ethics-review board.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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