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The PanCareFollowUp Care Intervention : A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer

van Kalsbeek, Rebecca J. (author)
Princess Maxima Center for Pediatric Oncology/Hematology
Mulder, Renée L. (author)
Princess Maxima Center for Pediatric Oncology/Hematology
Haupt, Riccardo (author)
Gaslini Children's Hospital
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Muraca, Monica (author)
Gaslini Children's Hospital
Hjorth, Lars (author)
Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
Follin, Cecilia (author)
Lund University,Lunds universitet,Medicin/akutsjukvård, Lund,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Endokrin,Forskargrupper vid Lunds universitet,Sena effekter efter barncancerbehandling,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Medicine, Lund,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,Endocrine,Lund University Research Groups,Late effects after childhood cancer treatment,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
Kepak, Tomas (author)
St. Anne's University Hospital Brno
Kepakova, Katerina (author)
St. Anne's University Hospital Brno
Uyttebroeck, Anne (author)
University Hospitals Leuven
Mangelschots, Marlies (author)
University Hospitals Leuven
Falck Winther, Jeanette (author)
Danish Cancer Society,Aarhus University Hospital
Loonen, Jacqueline J. (author)
Radboud University Medical Center
Michel, Gisela (author)
University of Lucerne
Bardi, Edit (author)
Kepler University Hospital Linz,St. Anna Children's Hospital
Elmerdahl Frederiksen, Line (author)
Danish Cancer Society
den Hartogh, Jaap (author)
Childhood Cancer International (CCI)
Mader, Luzius (author)
Danish Cancer Society
Roser, Katharina (author)
University of Lucerne
Schneider, Carina (author)
Childhood Cancer International (CCI)
Brown, Morven C. (author)
University of Newcastle upon Tyne
Brunhofer, Melanie (author)
Childhood Cancer International (CCI)
Göttgens, Irene (author)
Radboud University Medical Center
Hermens, Rosella P.M.G. (author)
Radboud University Medical Center
Kienesberger, Anita (author)
Childhood Cancer International (CCI)
Korevaar, Joke C. (author)
Netherlands Institute for Health Services Research
Skinner, Roderick (author)
University of Newcastle upon Tyne,Royal Victoria Infirmary
van der Pal, Helena J.H. (author)
Princess Maxima Center for Pediatric Oncology/Hematology
Kremer, Leontine C.M. (author)
Academic Medical Center of University of Amsterdam (AMC)
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 (creator_code:org_t)
Elsevier BV, 2022
2022
English 11 s.
In: European Journal of Cancer. - : Elsevier BV. - 0959-8049. ; 162, s. 34-44
Related links:
http://dx.doi.org/10... (free)
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http://www.ejcancer....
https://lup.lub.lu.s...
https://doi.org/10.1...
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  • Journal article (peer-reviewed)
Abstract Subject headings
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  • Background: Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union–funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe. Patients and methods: The PanCareFollowUp Care Intervention was co-developed with survivors as part of the PanCareFollowUp project. It is a person-centred approach to survivorship care, supported by guidelines and with flexibility to adapt to local health care settings. The Care Intervention consists of three steps: (1) previsit completion of a Survivor Questionnaire (by the survivor) and Treatment Summary (by the health care provider [HCP]), (2) a clinic visit including shared decision-making, and (3) a follow-up call to finalise the individualised Survivorship Care Plan. Results: We developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors. Wide implementation of the PanCareFollowUp Care Intervention will be supported with a freely distributed Replication Manual on completion of the PanCareFollowUp project. Conclusions: The PanCareFollowUp Care Intervention will support the implementation of person-centred, guideline-based LTFU care in different health care settings across Europe to improve survivors’ health and well-being.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cancer and Oncology (hsv//eng)

Keyword

Cancer survivorship care
Childhood cancer survivor
Long-term follow-up care
Person-centred care
Quality of life
Shared decision-making

Publication and Content Type

art (subject category)
ref (subject category)

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