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Public support for healthcare-mediated disclosure of hereditary cancer risk information: Results from a population-based survey in Sweden
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- Andersson, Andreas (author)
- Umeå University,Umeå universitet,Onkologi
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- Hawranek, Carolina (author)
- Umeå University,Umeå universitet,Onkologi
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- Öfverholm, Anna (author)
- University of Gothenburg,Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences
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- Ehrencrona, Hans (author)
- Lund University,Lunds universitet,Avdelningen för klinisk genetik,Institutionen för laboratoriemedicin,Medicinska fakulteten,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Division of Clinical Genetics,Department of Laboratory Medicine,Faculty of Medicine,LUCC: Lund University Cancer Centre,Other Strong Research Environments
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- Grill, Kalle, 1976- (author)
- Umeå University,Umeå universitet,Institutionen för idé- och samhällsstudier,Philosophy
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- Hajdarevic, Senada (author)
- Umeå University,Umeå universitet,Institutionen för omvårdnad
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- Melin, Beatrice (author)
- Umeå University,Umeå universitet,Onkologi
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- Tham, E. (author)
- Karolinska Institutet,Karolinska Institute,Karolinska University Hospital
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- Numan Hellquist, Barbro (author)
- Umeå University,Umeå universitet,Onkologi
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- Rosén, Anna, 1975- (author)
- Umeå University,Umeå universitet,Onkologi
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(creator_code:org_t)
- 2020-09-15
- 2020
- English.
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In: Hereditary Cancer in Clinical Practice. - : Springer Science and Business Media LLC. - 1731-2302 .- 1897-4287. ; 18:1
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Abstract
Subject headings
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- Background Targeted surveillance of at-risk individuals in families with increased risk of hereditary cancer is an effective prevention strategy if relatives are identified, informed and enrolled in screening programs. Despite the potential benefits, many eligible at-risk relatives remain uninformed of their cancer risk. This study describes the general public's opinion on disclosure of hereditary colorectal cancer (CRC) risk information, as well as preferences on the source and the mode of information. Methods A random sample of the general public was assessed through a Swedish citizen web-panel. Respondents were presented with scenarios of being an at-risk relative in a family that had an estimated increased hereditary risk of CRC; either 10% (moderate) or 70% (high) lifetime risk. A colonoscopy was presented as a preventive measure. Results were analysed to identify significant differences between groups using the Pearson's chi-square (chi(2)) test. Results Of 1800 invited participants, 977 completed the survey (54%). In the moderate and high-risk scenarios, 89.2 and 90.6% respectively, would like to receive information about a potential hereditary risk of CRC (chi 2,p = .755). The desire to be informed was higher among women (91.5%) than men (87.0%, chi 2,p = .044). No significant differences were found when comparing different age groups, educational levels, place of residence and having children or not. The preferred source of risk information was a healthcare professional in both moderate and high-risk scenarios (80.1 and 75.5%). However, 18.1 and 20.1% respectively would prefer to be informed by a family member. Assuming that healthcare professionals disclosed the information, the favoured mode of information was letter and phone (38.4 and 33.2%). Conclusions In this study a majority of respondents wanted to be informed about a potential hereditary risk of CRC and preferred healthcare professionals to communicate this information. The two presented levels of CRC lifetime risk did not significantly affect the interest in being informed. Our data offer insights into the needs and preferences of the Swedish population, providing a rationale for developing complementary healthcare-assisted communication pathways to realise the full potential of targeted prevention of hereditary CRC.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Medicinska och farmaceutiska grundvetenskaper -- Medicinsk genetik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Basic Medicine -- Medical Genetics (hsv//eng)
Keyword
- Hereditary cancer
- Family disclosure
- Informing relatives
- Healthcare
- disclosure
- Public opinion
- Risk information
- Cancer prevention
- Colorectal cancer
- brca1/2 gene mutation
- web-based surveys
- lynch syndrome
- colorectal-cancer
- relatives
- families
- attitudes
- communication
- internet
- efficacy
- Oncology
- Hereditary cancer
- Healthcare disclosure
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Andersson, Andre ...
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Hawranek, Caroli ...
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Öfverholm, Anna
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Ehrencrona, Hans
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Grill, Kalle, 19 ...
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Hajdarevic, Sena ...
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Melin, Beatrice
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Tham, E.
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Numan Hellquist, ...
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Rosén, Anna, 197 ...
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cancer and Oncol ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Public Health Gl ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Basic Medicine
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and Medical Genetics
- Articles in the publication
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Hereditary Cance ...
- By the university
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University of Gothenburg
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Umeå University
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Lund University
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Karolinska Institutet