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Patients Undergoing Ileoanal Pouch Surgery Experience a Constellation of Symptoms and Consequences Representing a Unique Syndrome: A Report from the Patient-Reported Outcomes After Pouch Surgery (PROPS) Delphi Consensus Study
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- Cavallaro, Paul M. (författare)
- Massachusetts Gen Hosp, MA 02114 USA
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- Fearnhead, Nicola S. (författare)
- Cambridge Univ Hosp Natl Hlth Serv Fdn Trust, England
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- Bissett, Ian P. (författare)
- Univ Auckland, New Zealand
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- Brar, Mantaj S. (författare)
- Univ Toronto, Canada
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- Cataldo, Thomas E. (författare)
- Harvard Med Sch, MA 02115 USA
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- Clarke, Rasheed (författare)
- Patient Advocate, Blogger
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- Denoya, Paula (författare)
- Stony Brook Univ Hosp, NY USA
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- Elder, Amber L. (författare)
- Patient Advocate, Blogger
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- Gecse, Krisztina B. (författare)
- Univ Amsterdam, Netherlands
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- Hendren, Samantha (författare)
- Univ Michigan, MI 48109 USA
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- Holubar, Stefan (författare)
- Cleveland Clin, OH 44106 USA
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- Jeganathan, Nimalan (författare)
- Penn State Univ, PA USA
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- Myrelid, Pär (författare)
- Linköpings universitet,Avdelningen för kirurgi, ortopedi och onkologi,Medicinska fakulteten,Region Östergötland, Kirurgiska kliniken US
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- Norton, Beth-Anne (författare)
- Brigham & Womens Hosp, MA 02115 USA
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- Wexner, Steven D. (författare)
- Cleveland Clin Florida, FL USA
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- Wilson, Lauren (författare)
- Dartmouth Hitchcock Med Ctr, NH 03766 USA
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- Zaghiyan, Karen (författare)
- Cedars Sinai Med Ctr, CA 90048 USA
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- Bordeianou, Liliana (författare)
- Massachusetts Gen Hosp, MA 02114 USA; Massachusetts Gen Hosp, MA 02114 USA
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(creator_code:org_t)
- LIPPINCOTT WILLIAMS & WILKINS, 2021
- 2021
- Engelska.
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Ingår i: Diseases of the Colon & Rectum. - : LIPPINCOTT WILLIAMS & WILKINS. - 0012-3706 .- 1530-0358. ; 64:7, s. 861-870
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- BACKGROUND: Functional outcomes after ileoanal pouch creation have been studied; however, there is great variability in how relevant outcomes are defined and reported. More importantly, the perspective of patients has not been represented in deciding which outcomes should be the focus of research. OBJECTIVE: The primary aim was to create a patient-centered definition of core symptoms that should be included in future studies of pouch function. DESIGN: This was a Delphi consensus study. SETTING: Three rounds of surveys were used to select high-priority items. Survey voting was followed by a series of online patient consultation meetings used to clarify voting trends. A final online consensus meeting with representation from all 3 expert panels was held to finalize a consensus statement. PATIENTS: Expert stakeholders were chosen to correlate with the clinical scenario of the multidisciplinary team that cares for pouch patients, including patients, colorectal surgeons, and gastroenterologists or other clinicians. MAIN OUTCOME MEASURES: A consensus statement was the main outcome. RESULTS: One hundred ninety-five patients, 62 colorectal surgeons, and 48 gastroenterologists or nurse specialists completed all 3 Delphi rounds. Fifty-three patients participated in online focus groups. One hundred sixty-one stakeholders participated in the final consensus meeting. On conclusion of the consensus meeting, 7 bowel symptoms and 7 consequences of undergoing ileoanal pouch surgery were included in the final consensus statement. LIMITATIONS: The study was limited by online recruitment bias. CONCLUSIONS: This study is the first to identify key functional outcomes after pouch surgery with direct input from a large panel of ileoanal pouch patients. The inclusion of patients in all stages of the consensus process allowed for a true patient-centered approach in defining the core domains that should be focused on in future studies of pouch function. See Video Abstract at http://links.lww.com/DCR/B571.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Nyckelord
- Ileoanal pouch; Inflammatory bowel disease; Patient reported outcomes; Ulcerative colitis
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Cavallaro, Paul ...
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Fearnhead, Nicol ...
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Bissett, Ian P.
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Brar, Mantaj S.
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Cataldo, Thomas ...
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Clarke, Rasheed
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visa fler...
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Denoya, Paula
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Elder, Amber L.
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Gecse, Krisztina ...
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Hendren, Samanth ...
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Holubar, Stefan
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Jeganathan, Nima ...
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Myrelid, Pär
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Norton, Beth-Ann ...
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Wexner, Steven D ...
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Wilson, Lauren
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Zaghiyan, Karen
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Bordeianou, Lili ...
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