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Parental uncertaint...
Parental uncertainty about transferring their adolescent with congenital heart disease to adult care
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- Burström, Åsa (author)
- Karolinska Institutet,Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Cardiology Astrid Lindgren Children's Hospital Stockholm Sweden
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- Acuña Mora, Mariela, 1990 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;KU Leuven Department of Public Health and Primary Care Leuven Belgium
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- Öjmyr-Joelsson, Maria (author)
- Karolinska Institutet,Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Surgery Astrid Lindgren Children's Hospital Stockholm Sweden
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- Sparud Lundin, Carina, 1964 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden
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- Rydberg, Annika (author)
- Umeå universitet,Pediatrik,Department of Clinical Sciences, Pediatrics Umeå University Umeå Sweden
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- Hanseus, Katarina (author)
- Department of Pediatric Cardiology Skåne University Hospital Lund Sweden
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- Frenckner, Björn (author)
- Karolinska Institutet,Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;Department of Pediatric Surgery Astrid Lindgren Children's Hospital Stockholm Sweden
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- Nisell, Margret (author)
- Röda Korsets Högskola,Hälsovetenskapliga institutionen,Institution for Women's and Children's Health Karolinska Institutet Stockholm Sweden;The Red Cross University College Stockholm Sweden
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- Moons, Philip, 1968 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;KU Leuven Department of Public Health and Primary Care Leuven Belgium
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- Bratt, Ewa-Lena, 1970 (author)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences University of Gothenburg Gothenburg Sweden;Department of Pediatric Cardiology The Queen Silvia Children's Hospital Gothenburg Sweden
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(creator_code:org_t)
- 2018-10-18
- 2019
- English.
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In: Journal of Advanced Nursing. - : John Wiley & Sons. - 0309-2402 .- 1365-2648. ; 75:2, s. 380-387
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Abstract
Subject headings
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- Aims: To study parent's levels of uncertainty related to the transfer from pediatric to adult care in adolescents with congenital heart disease (CHD) and to identify potentially correlating factors. Background: Parents acknowledge that during transition they struggle with finding ways of feeling secure in handing over the responsibility and letting go of control. Well-prepared and informed parents who feel secure are most likely better skilled to support their adolescent and to hand over the responsibility. Design: A cross-sectional study. Methods: Overall, 351 parents were included (35% response rate). Parental uncertainty was assessed using a Linear Analogue Scale (0-100). Data were collected between January - August 2016. Potential correlates were assessed using the readiness for transition questionnaire and sociodemographic data. Results: The mean parental uncertainty score was 42.5. Twenty-four percent of the parents had a very low level of uncertainty (score 0-10) and 7% had a very high level (score 91-100). Overall, 26% of the mothers and 36% of the fathers indicated that they had not started thinking of the transfer yet. The level of uncertainty was negatively associated with the level of perceived overall readiness. Adolescents' age, sex, CHD complexity, and parental age were not related to uncertainty. Conclusion: A wide range in the levels of uncertainty was found. Parents who were less involved in the care, or perceived their adolescent as readier for the transition, felt less uncertain. Still, thirty percent of the parents had not started to think about the transfer to adult care.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Kardiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
Keyword
- adolescents
- congenital heart disease
- nursing
- parental uncertainty
- readiness for transition
- transfer
- ansition
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Burström, Åsa
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Acuña Mora, Mari ...
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Öjmyr-Joelsson, ...
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Sparud Lundin, C ...
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Rydberg, Annika
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Hanseus, Katarin ...
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Frenckner, Björn
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Nisell, Margret
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Moons, Philip, 1 ...
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Bratt, Ewa-Lena, ...
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Clinical Medicin ...
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and Cardiac and Card ...
- Articles in the publication
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Journal of Advan ...
- By the university
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Umeå University
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Red Cross University College
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Karolinska Institutet
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University of Gothenburg
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University of Borås