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Using aggregated data from Swedish national quality registries as tools to describe health conditions of older adults with complex needs

Johansson, Linda (författare)
Jönköping University,HHJ, Institutet för gerontologi,HHJ. ARN-J (Aging Research Network - Jönköping),Institute of Gerontology, Aging Research Network – Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Sweden
Finkel, Deborah (författare)
Jönköping University,HHJ, Institutet för gerontologi,HHJ. ARN-J (Aging Research Network - Jönköping),Department of Psychology, Indiana University Southeast, New Albany, IN, USA,Institute of Gerontology, Aging Research Network – Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Sweden / Department of Psychology, Indiana University Southeast, New Albany, IN, United States,Jönköping University ; Indiana University Southeast, USA
Lannering, Christina (författare)
Jönköping University,HHJ. ARN-J (Aging Research Network - Jönköping),Region Jönköping County, Futurum, Ryhov, Jönköping, Sweden,Region Jönköping
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Dahl Aslan, Anna K., 1975- (författare)
Jönköping University,HHJ, Institutet för gerontologi,HHJ. ARN-J (Aging Research Network - Jönköping),Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden,Institute of Gerontology, Aging Research Network – Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Sweden / Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden
Andersson-Gäre, Boel (författare)
Jönköping University,The Jönköping Academy for Improvement of Health and Welfare,HHJ. IMPROVE (Improvement, innovation, and leadership in health and welfare),HHJ. ARN-J (Aging Research Network - Jönköping),Region Jönköping County, Futurum, Ryhov, Jönköping, Sweden,Region Jönköping County, Futurum, Ryhov, Jönköping, Sweden / Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Sweden,Karolinska institutet ; Jönköping University
Hallgren, Jenny (författare)
Jönköping University,Högskolan i Skövde,Institutionen för hälsovetenskaper,Forskningsmiljön hälsa, hållbarhet och digitalisering,Institute of Gerontology, Aging Research Network – Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Sweden,Välbefinnande vid långvariga hälsoproblem (WeLHP), Wellbeing in Long-term Health Problems,HHJ, Institutet för gerontologi,HHJ. ARN-J (Aging Research Network - Jönköping),School of Health Sciences, University of Skövde, Skövde, Sweden,Jönköping University ; Högskolan i Skövde
Lindmark, Ulrika (författare)
Jönköping University,HHJ, Avd. för naturvetenskap och biomedicin,HHJ. Centrum för oral hälsa,HHJ. ARN-J (Aging Research Network - Jönköping),Department of Natural Science and Biomedicine, School of Health and Welfare, Centre for Oral Health and Aging Research Network – Jönköping (ARN-J), Jönköping University, Sweden
Bravell, Marie E. (författare)
Institute of Gerontology, Aging Research Network – Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Sweden
Ernsth-Bravell, Marie, 1973- (författare)
Jönköping University,HHJ, Institutet för gerontologi,HHJ. ARN-J (Aging Research Network - Jönköping)
Bravell, Marie Ernsth (författare)
Jönköping University
Dahl Aslan, Anna K (författare)
Jönköping University ; Karolinska institutet
Johansson, L (författare)
Lannering, C (författare)
Aslan, AKD (författare)
Hallgren, J (författare)
Andersson-Gare, B (författare)
Finkel, D (författare)
Bravell, ME (författare)
Lindmark, U (författare)
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 (creator_code:org_t)
Springer, 2020
2020
Engelska.
Ingår i: Aging Clinical and Experimental Research. - : Springer. - 1594-0667 .- 1720-8319.
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • Background: Combining National Quality Registries (NQRs) with existing National Health Registries (NHRs) might make it possible to get a wider picture of older adults health situation. The aim was to examine the feasibility of aggregating data across different NQRs and existing NHRs to explore the possibility to investigate trajectories and patterns of disease and care, specifically for the most ill older adults. Method: A Swedish twin population (N = 44,816) was linked to nine NQRs and four NHRs. A descriptive mixed-method study was performed. A manifest content analysis identified which health parameters were collected from each NQR. Factor analysis identified patterns in representation across NQRs. Two case studies illustrated individual trajectories of care by using NQRs and NHRs. Results: About 36% of the population was registered in one or more NQRs. NQRs included 1849 variables that were sorted into 13 categories with extensive overlap across the NQRs. Health and function variables were identified, but few social or cognitive variables. Even though most individuals demonstrated unique patterns of multi-morbidities, factor analysis identified three clusters of representation in the NQRs with sufficient sample sizes for future investigations. The two cases illustrated the possibility of following patterns of disease and trajectories of care. Conclusions: NQRs seem to be a significant source for collecting data about a population that may be underrepresented in most research on aging because of their age and poor health. However, NQRs are primarily disease related, and further development of the registries to maximize coverage and utility is needed. 

Ämnesord

MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cardiac and Cardiovascular Systems (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Kardiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper -- Omvårdnad (hsv//swe)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin (hsv//swe)
MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskaper (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine (hsv//eng)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)
MEDICAL AND HEALTH SCIENCES  -- Other Medical Sciences -- Gerontology, specialising in Medical and Health Sciences (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Annan medicin och hälsovetenskap -- Gerontologi, medicinsk/hälsovetenskaplig inriktning (hsv//swe)
MEDICIN OCH HÄLSOVETENSKAP  -- Annan medicin och hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Other Medical and Health Sciences (hsv//eng)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Geriatrics (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Geriatrik (hsv//swe)

Nyckelord

Health care
National quality register
Older adults
Social service
Wellbeing in long-term health problems (WeLHP)
Välbefinnande vid långvariga hälsoproblem (WeLHP)

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