| 1. |
- Häger Tibell, Louise, et al.
(författare)
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Preparedness for caregiving and preparedness for death : Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care
- 2024
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Ingår i: Death Studies. - : Taylor & Francis Group. - 0748-1187 .- 1091-7683. ; 48:4, s. 407-416
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.
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| 2. |
- Silvén Hagström, Anneli, 1973-, et al.
(författare)
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Losing a parent to suicide: Posttraumatic stress, sense of coherence and family functioning in children, adolescents and remaining parents before attending a grief support program
- 2024
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Ingår i: Death Studies. - : Taylor & Francis. - 0748-1187 .- 1091-7683. ; , s. 1-9
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Tidskriftsartikel (refereegranskat)abstract
- Parental suicide in childhood increases the risk of mental ill-health, substance use and premature mortality, particularly through suicide. Postvention supports tailored to the well-being and functioning of suicide-bereaved children and their remaining parents are thus of critical importance to counteract negative development. This explorative cross-sectional study seeks clinically relevant knowledge by investigating posttraumatic stress (PTS), sense of coherence (SOC) and family functioning among children (n=22), adolescents (n=18) and parents (n=40) before their attendance at a family-based grief support program. The results demonstrate critical health outcomes for children and parents, and in particular for adolescents. Clinically relevant symptoms of PTS were found in 36% of children, 65% of adolescents, and 37% of parents. All groups showed lower SOC than the norm. Adolescents reported dysfunctional family functioning for the dimensions Communication and Affective Responsiveness. Psychoeducational and trauma-informed support is recommended where family communication and meaning construction of suicide is given special attention.
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| 3. |
- Glasdam, Stinne, et al.
(författare)
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Unity strengthens and inhibits development: A focus group interview with volunteer adults in support programs for bereaved children and their family
- 2023
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 47:9, s. 1061-1071
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Tidskriftsartikel (refereegranskat)abstract
- This article illuminates (inter)actions and group dynamics of adult volunteers in programs for bereaved children and parents. A focus group interview with seven volunteers in Swedish was conducted. A latent, thematic analysis was conducted, inspired by Braun and Clarke, and Goffman. Two themes were constructed: Personal despair as a motivation for establishing and consolidating voluntary involvement and The volunteers acted as an extended family. Group dynamics within the group contributed to uphold volunteers’ adherence to formal and informal guidance related to the program. Strong engagement among volunteers and internal recruitment strategies contributed to uphold and consolidate the program’s implementation.
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| 4. |
- Nilsson, Anna Maria, et al.
(författare)
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Application of an accident approach to the study of acute suicidal episodes through repeated in-depth interviews
- 2023
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Ingår i: Death Studies. - Philadelphia, PA : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 47:1, s. 75-83
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Tidskriftsartikel (refereegranskat)abstract
- We modified an accident analysis model for the study of acute suicidal episodes (ASEs). Our aim was to use this model (SCREAM, Suicidal Cognitions' Reliability and Error Analysis Method) as a lens to understand the worst-ever ASEs of nine patients who took part in repeated in-depth interviews. Guided by the theory of SCREAM including four predetermined categories, nine themes were identified. ASEs were triggered by interactions with the interpersonal and physical environment and spiraled into a state of lost control. Timing and the availability of promoters and barriers in the environment were salient features. Findings may aid person-centered safety planning.
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| 5. |
- Carlsson, Nina, et al.
(författare)
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Losing a close person following death by sudden cardiac arrest : bereaved family members’ lived experiences
- 2022
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Ingår i: Death Studies. - : Taylor & Francis. - 0748-1187 .- 1091-7683. ; 46:5, s. 1139-1148
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Tidskriftsartikel (refereegranskat)abstract
- The death of a close person has profound impact on people’s lives, and when death is sud- den there are no possibilities to prepare for the loss. The study aimed to illuminate mean- ings of losing a close person following sudden cardiac arrest. A qualitative interpretive design was used, and twelve bereaved family members were interviewed. The results show a transition from pending between life and sudden loss during resuscitation and proceeding with life after the sudden loss. These results of being in liminality illuminate the family members’ essential narration and the importance of compassionate care throughout this challenging transition.
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| 6. |
- Eklund, Rakel, et al.
(författare)
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Children’s experiences of the family talk intervention when a parent is cared for in palliative home care : A feasibility study
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:7, s. 1655-1666
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Tidskriftsartikel (refereegranskat)abstract
- The aim with this study was to explore minor children’s experiences of the Family Talk Intervention (FTI) when a parent is cared for in palliative home care, with a focus on feasibility. The main goal of FTI is to increase family communication about the illness. This paper is based on 25 children’s reports, derived from a pilot study with a mixed method design, involving both questionnaires and interviews, performed after the children’s participation. A majority of the children appreciated the structure and content of FTI. They felt seen, heard and acknowledged by the interventionists and recommended FTI to other children in similar situations.
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| 7. |
- Eklund, Rakel, 1986-, et al.
(författare)
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Talking about death when a parent with dependent children dies of cancer : A pilot study of the Family Talk Intervention in palliative care
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:10, s. 2384-2394
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Tidskriftsartikel (refereegranskat)abstract
- This study focused on families with dependent children who participated in the Family Talk Intervention (FTI) and lost a parent during the intervention or directly thereafter. The aim was to explore how they perceived information and communication about the imminent death during the illness trajectory and after the loss. Seven families from palliative homecare settings in Sweden participated. This study suggests that it is important to support family communication when a parent is dying, since communication in this situation is unlike everyday family communication, as they enter a complex and existentially unfamiliar area, hard to initiate on their own.
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| 8. |
- Holm, Maja, et al.
(författare)
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Sources of social support and its importance for cancer-bereaved spouses and their minor children : A cross-sectional study
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:4, s. 996-1002
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to evaluate the sources from which bereaved families with minor children reported receiving social support after the death of a parent/partner and which sources they perceived as important. Using an online platform, 23 adolescents, 42 parents, and 27 parent proxies for children aged 4-11 years, completed questionnaires. Family and friends were valued as the most important sources of social support, while social support from societal institutions, such as health care and school, was considered less important, and insufficient.
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| 9. |
- López, Marcos, et al.
(författare)
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Mayan & Swedish attitudes and practices toward death
- 2022
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 46:8, s. 1909-1922
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Tidskriftsartikel (refereegranskat)abstract
- This study explores how Mayan people from Guatemala and Swedes view and behavetoward death. Using an interpretative phenomenological analysis, 10 participants from each culture were interviewed to elucidate the most relevant and important emerging themes. The Mayan approach to death is based on a collective perspective in which consultations with Elders, ancient traditions, and rituals help provide answer to most existential inquiries surrounding death. In contrast, the Swedish approach is based on an individualistic, rational analysis with a focus on life instead of death, but also showing openness to new perspectives on death.
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| 10. |
- Soares, Francisca Ribeiro, et al.
(författare)
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The fear of the COVID-19 Scale : validation in the Portuguese general population
- 2022
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Ingår i: Death Studies. - : Taylor & Francis. - 0748-1187 .- 1091-7683. ; 46:9, s. 2093-2099
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Tidskriftsartikel (refereegranskat)abstract
- The coronavirus disease (COVID-19) pandemic is having a profound effect on mental health and it is therefore fundamental to evaluate individual psychological responses to COVID-19. The 7-item Fear of COVID-19 Scale (FCV-19S) assesses different aspects of the fear of coronavirus and has been applied worldwide. This study aimed to translate and validate the FCV-19S in the Portuguese population. The scale was administered to a convenience sample of 1203 Portuguese adults. Exploratory factor analysis was carried out on the initial model proposed by the authors of the FCV-19S. Further analysis revealed that the Portuguese version has good psychometric properties.
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