| 1. |
- Bertilsdotter Rosqvist, Hanna, 1976-, et al.
(författare)
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Moving Through a Textual Space Autistically
- 2024
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Ingår i: Journal of Medical Humanities. - : Springer. - 1041-3545 .- 1573-3645. ; 45, s. 17-34
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Tidskriftsartikel (refereegranskat)abstract
- This article is an investigation of neurodivergent reading practices. It is a collectively written paper where the focus is as much on an autoethnographic exploration of our autistic readings of autism/autistic fiction as it is on the read texts themselves. The reading experiences described come primarily from Yoon Ha Lee's Dragon Pearl (2019) and Dahlia Donovan's The Grasmere Cottage Mystery (2018), which we experience as opposite each other in how they depict their neurodivergent characters and speak to us as autistic readers. Through the article, we describe a formation of neurodivergent (critical) collective readings of autism/autistic fiction. The article contributes to an academic and activistic discourse around neurodivergent reader responses and power relations between neurodivergent and neurotypical readers and authors.
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| 2. |
- Bredström, Anna, 1972-
(författare)
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Culture and Context in Mental Health Diagnosing : Scrutinizing the DSM-5 Revision.
- 2019
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Ingår i: Journal of Medical Humanities. - : Springer. - 1041-3545 .- 1573-3645. ; 40:3, s. 347-363
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Tidskriftsartikel (refereegranskat)abstract
- This article examines the revision of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) and its claim of incorporating a "greater cultural sensitivity." The analysis reveals that the manual conveys mixed messages as it explicitly addresses the critique of being ethnocentric and having a static notion of culture yet continues in a similar fashion when culture is applied in diagnostic criteria. The analysis also relates to current trends in psychiatric nosology that emphasize neurobiology and decontextualize distress and points to how the DSM-5 risks serving as an ethnic dividing line in psychiatry by making sociocultural context relevant only for some patients.
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| 3. |
- Bullington, Jennifer
(författare)
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Body and self : a phenomenological study on the ageing body and identity
- 2006
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Ingår i: Journal of Medical Humanities. - : BMJ. - 1041-3545 .- 1573-3645. ; 32:1, s. 25-31
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to investigate how older people (60+) experience the ageing body and how these experiences affect aged peoples’ sense of identity. Explorative, open ended, interviews were conducted with 13 respondents between the ages of 63 and 82, recruited from a retired peoples’ organisation, Church organisations, and from the working population. The qualitative data was analysed with a phenomenological method, the so called EPP method, the empirical phenomenological psychological method. The results showed that generally the experience of the ageing body has to do with a changed life world, reactions to this change in terms of body and self, and finding ways to feel at home in this changed situation. Results are presented as three typologies, reflecting the different ways in which the respondents described this general experience: existential awakening, making it good enough, and new possibilities. The results give support to the research that points out the importance of activity for the self esteem of the elderly. According to this study, however, the meaning of “activity” can vary and can have different sources of motivation. Respondents in only one typology expressed frustration over limitations of the ageing body. Respondents exhibited entirely different ways of relating to the fact that death was approaching, which raises questions about how the elderly experience this impending horizon. Finally, the gender differences in this small study were quite clear: all the male respondents belonged to the typology “New possibilities”, raising questions about gender aspects concerning the meaning of freedom, appearance, activity, and self esteem.
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| 4. |
- Eklöf, Jenny, 1973-
(författare)
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Neurodharma Self-Help : Personalized Science Communication as Brain Management
- 2017
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Ingår i: Journal of Medical Humanities. - : Springer. - 1041-3545 .- 1573-3645. ; 38:3, s. 303-317
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Tidskriftsartikel (refereegranskat)abstract
- Over the past ten to fifteen years, medical interventions, therapeutic approaches and scientific studies involving mindfulness meditation have gained traction in areas such as clinical psychology, psychotherapy, and neuroscience. Simultaneously, mindfulness has had a very strong public appeal. This article examines some of the ways in which the medical and scientific meaning of mindfulness is communicated in public and to the public. In particular, it shows how experts in the field of mindfulness neuroscience seek to communicate to the public at large the imperative of brain fitness for the promotion of health, wellbeing and happiness. The study identifies claims being made in popular outlets that, by and large, bypass traditional mass media, such as self-help books, websites and online videos. By treating this material as a form of personalized science communication, this article contributes to the body of literature that understands science communication as a continuum and the boundary between science and popularized science as the outcome of human negotiations. The study finds that processes of personalization help to build bridges between scientific findings and their supposed application, that they infuse science with subjective meaning, and turn expert communication with the public into a moral vocation.
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| 5. |
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| 6. |
- Kapeller, Alexandra, et al.
(författare)
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Self-Testing for Dementia: A Phenomenological Analysis of Fear
- 2024
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Ingår i: Journal of Medical Humanities. - : SPRINGER. - 1041-3545 .- 1573-3645.
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Tidskriftsartikel (refereegranskat)abstract
- Following the growing economic relevance of mobile health (mHealth) and the increasing global prevalence of dementia, self-testing apps for dementia and mild neurocognitive disorder (MCD) have been developed and advertised. The apps' promise of a quick and easy tool has been criticized in the literature from a variety of angles, but as we argue in this article, the celebratory characterization of self-testing also stands in disbalance to the various kinds of fears that may be connected to taking the test. By drawing on Sara Ahmed's phenomenological theory on emotions and by referring to illustrative experiences from two users with a particular dementia self-testing app, we explore four dimensions of fear derived from phenomenology: performative, ontological, embodied, and temporal dimensions. We argue that fear (1) motivates one to take the self-test and to try to take control over one's health; (2) is shaped by and shapes the ways in which we make sense of ourselves and others as cognitively deficient; (3) constructs and is constructed by our differently embodied presence in the world; and that (4) testing makes a fearful future self as cognitively deficient more tangible. In outlining these different dimensions of fear, this article expands the understanding of the meaning of experiencing self-testing in comparison to the mostly quantitative literature on this topic.
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| 7. |
- Petrov, Kristian, 1975-
(författare)
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The Art of Dying as an Art of Living : Historical Contemplations on the Paradoxes of Suicide and the Possibilities of Reflexive Suicide Prevention
- 2013
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Ingår i: Journal of Medical Humanities. - : Springer-Verlag New York. - 1041-3545 .- 1573-3645. ; 34:3, s. 347-368
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Tidskriftsartikel (refereegranskat)abstract
- The main aim of this paper is to reconstruct different aspects of the history of ideas of suicide, from antiquity to late modernity, and contemplate their dialectical tension. Reflexive suicide prevention, drawing on the ancient wisdom that the art of living is inseparable from the art of dying, takes advantage, it is argued, of the contradictory nature of suicide, and hence embraces, rather than trying to overcome, death, pain, grief, fear, hopelessness and milder depressions. This approach might facilitate the transformation of inner shame to inter-personal guilt, which is the precondition for coping with losses through grieving that is shared with others. The traditional projection of suicide on the ‘Other’, reinforced by modernity’s bio-political suppression of death, has inhibited development of good suicide prevention. Awareness of the ambiguity and ambivalence found in suicide may work as a resource when measures are taken to address as many causal mechanisms as possible, and bringing special emphasis to external factors.
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| 8. |
- Wistrand, Jonatan
(författare)
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Ailing Hearts and Troubled Minds: An Historical and Narratological Study on Illness Narratives by Physicians with Cardiac Disease
- 2022
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Ingår i: Journal of Medical Humanities. - : Springer Science and Business Media LLC. - 1041-3545 .- 1573-3645. ; 43, s. 129-139
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Tidskriftsartikel (refereegranskat)abstract
- A number of studies show that when doctors become ill, there is often ambiguity in the division of roles and responsibilities in the medical encounter. Yet little is known about how the dilemma of the sick doctor has changed over time. This article explores the experience of illness among physicians by applying an historical, narratological approach to three doctor’s narratives about personal cases of cardiac disease: Max Pinner’s from the 1940s, Robert Seaver’s from the 1980s, and John Mulligan’s from 2015. Drawing on Erving Goffman’s principles of social interaction, I argue that part of the challenge in the analysed narratives is because when doctors seek medical attention for themselves, the ensuing medical ‘drama’ suffers. I compare the three narratives to argue that the experience of becoming a patient while simultaneously remaining a doctor is a challenge that has changed over time. In Pinner’s narrative, the patient identity is both undesirable and inaccessible; in Seaver’s, role ambivalence between doctor and patient is the most salient feature; for Mulligan, his personal rather than professional experience of illness is the overarching theme of the narrative. Finally, I suggest that an awareness of how the medical drama often changes when doctors are patients might prove beneficial both for the doctor-patients and providers of medical care.
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