| 1. |
- Weiber, Ingrid, et al.
(författare)
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Children born to women with intellectual disabilities : 5-year incidence in a Swedish county
- 2011
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Ingår i: Journal of Intellectual Disability Research. - : Blackwell. - 0964-2633 .- 1365-2788. ; 55:11, s. 1078-1085
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Tidskriftsartikel (refereegranskat)abstract
- Background: Families with parental intellectual disabilities are likely to need support in achieving a decent family life. In order to accurately plan for such support services, society needs data regarding the occurrence of those parents and their children. The aim of this study was to investigate the five-year incidence of children born to women with intellectual disabilities in a county in Sweden. Methods: Women born between 1975 and 1989 were identified from school registers for children and adolescents with intellectual disabilities in the county of Blekinge. The women’s personal identification numbers were, in 2010, linked and matched with the Swedish Medical Birth Register. Results: In total, 98 women with intellectual disabilities were identified. Nine of these had given birth to children; one woman to two children and eight women to one child each. The ten children were born between 2004 and 2008. Conclusion: The incidence rate calculated as a result of the present study indicates that approximately 2.12 per thousand children are born per year to women with intellectual disabilities. For the whole of Sweden that rate indicates an incidence of approximately 225 children each year. On the basis of this, the prevalence of children (aged 0-18 years) being born to women with intellectual disabilities is estimated at about 4,050.
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| 2. |
- Olsson, Malin Broberg, 1971, et al.
(författare)
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Depression in mothers and fathers of children with intellectual disability
- 2001
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 45:Pt 6, s. 535-43
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Tidskriftsartikel (refereegranskat)abstract
- Parental depression was assessed using the Beck Depression Inventory (BDI) in 216 families with children with autism and/or intellectual disability (ID), and in 214 control families. Mothers with children with autism had higher depression scores (mean = 11.8) than mothers of children with ID without autism (mean = 9.2), who in turn, had higher depression scores than fathers of children with autism (mean = 6.2), fathers of children with ID without autism (mean = 5.0), and control mothers (mean = 5.0) and fathers (mean = 4.1). Forty-five per cent of mothers with children with ID without autism and 50% of mothers with children with autism had elevated depression scores (BDI > 9), compared to 15-21% in the other groups. Single mothers of children with disabilities were found to be more vulnerable to severe depression than mothers living with a partner.
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| 3. |
- Danielsson, Henrik, et al.
(författare)
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What am I doing in Timbuktu: Person–environment picture recognition for persons with intellectual disability
- 2006
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 50:2, s. 127-138
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Tidskriftsartikel (refereegranskat)abstract
- Background The aim of this study was to examine the effects of familiarity of depicted persons and environments in recognition of photographs for pupils with different degrees of intellectual disability (ID). Method Forty-five pupils with ID participated. Results An interaction effect between the two variables, person and environment, was found in addition to main effects for both the variables. Pictures of the test person himself or herself in familiar environments were easier to recognize than in unfamiliar environments, whereas the opposite was found for pictures of other familiar persons. No interaction effects of degree of ID were found. Conclusions The interaction pattern is explained in terms of absent, present or implausible semantic associations between the person and the environmental context. The results are discussed in relation to augmentative and alternative communication with photographs.
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| 4. |
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| 5. |
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| 6. |
- Bergström, H., et al.
(författare)
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Psychometric evaluation of a scale to assess satisfaction with life among people with intellectual disabilities living in community residences
- 2013
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 57:3, s. 250-256
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Tidskriftsartikel (refereegranskat)abstract
- Background In the context of a health intervention among people with intellectual disabilities (ID), there was a need to assess satisfaction with some aspects of life, in order to monitor both potential positive and negative effects of the intervention. The aim of the present study was to develop and evaluate an easily administered scale for assessing satisfaction with home environment and leisure time among people with mild or moderate ID, living in community residences. Methods A number of questions were constructed to measure satisfaction with home environment and leisure time. The questions were answered by 132 adults with mild or moderate ID, living in community residences in Sweden. The dimensionality of the scale was evaluated by factor analysis, and the reliability was estimated using Cronbach's alpha coefficients. Results The analysis supported a four-factor solution with 12 items. The four factors were: (I) Satisfaction with housing environment; (II) Satisfaction with life; (III) Satisfaction with meals; and (IV) Satisfaction with recreational activity. The four factors explained almost 70% of the variance in the data set. Cronbach alpha coefficients for all scales were above 0.70, indicating that the reliabilities of the scales were satisfactory. Correlations between the four sub-scales ranged from 0.06 to 0.52, indicating low to moderate inter-correlations between the four sub-scales. Conclusion The scale has fairly good psychometric properties and is easy to administer. The scale, which can be further improved, can be an important resource in health intervention studies.
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| 7. |
- Cederborg, Ann-Christin, 1952-, et al.
(författare)
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Interviewing alleged victims with intellectual disabilities
- 2008
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 52:1, s. 49-58
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Tidskriftsartikel (refereegranskat)abstract
- Background: When interviewing alleged victims of crime, it is important to obtain reports that are as accurate and complete as possible. This can be especially difficult when the alleged victims have intellectual disabilities (ID). This study explored how alleged victims with ID are interviewed by police officers in Sweden and how this may affect their ability to report information as accurately as possible. Methods: Twelve interviews with 11 alleged victims were selected from a larger sample. The complainants were interviewed when their chronological ages ranged from 6.1 to 22years. A quantitative analysis examined the type of questions asked and the numbers of words and details they elicited in response. Results: Instead of open-ended questions, the interviewers relied heavily on focused questions, which are more likely to elicit inaccurate information. When given the opportunity, the witnesses were able to answer directive questions informatively. Conclusions: Interviewers need special skills in order to interview alleged victims who have ID. In addition to using more open-ended questions, interviewers should speak in shorter sentences. © 2007 The Authors. Journal Compilation © 2007 Blackwell Publishing Ltd.
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| 8. |
- Cederborg, Ann-Christin, et al.
(författare)
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Repetition of contaminating question types when children and youths with intellectual disabilities are interviewed
- 2009
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Ingår i: JOURNAL OF INTELLECTUAL DISABILITY RESEARCH. - : Wiley. - 0964-2633 .- 1365-2788. ; 53, s. 440-449
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Tidskriftsartikel (refereegranskat)abstract
- The present study examined the effects of repeating questions in interviews investigating the possible sexual abuse of children and youths who had a variety of intellectual disabilities. We predicted that the repetition of option-posing and suggestive questions would lead the suspected victims to change their responses, making it difficult to understand what actually happened. Inconsistency can be a key factor when assessing the reliability of witnesses. Case files and transcripts of investigative interviews with 33 children and youths who had a variety of intellectual disabilities were obtained from prosecutors in Sweden. The interviews involved 25 females and 9 males whose chronological ages were between 5.4 and 23.7 years when interviewed (M = 13.2 years). Six per cent of the questions were repeated at least once. The repetition of focused questions raised doubts about the reports because the interviewees changed their answers 40% of the time. Regardless of the witnesses abilities, it is important to obtain reports that are as accurate and complete as possible in investigative interviews. Because this was a field study, we did not know which responses were accurate, but repetitions of potentially contaminating questions frequently led the interviewees to contradict their earlier answers. This means that the interviewers behaviour diminished the usefulness of the witnesses testimony.
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| 9. |
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| 10. |
- Frid, Christina, et al.
(författare)
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Mortality in Down's syndrome in relation to congenital malformations
- 1999
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 43:3, s. 234-241
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Tidskriftsartikel (refereegranskat)abstract
- Down's syndrome (DS) is the most common form of intellectual disability. The syndrome is characterized by congenital malformations, especially of the heart and gastrointestinal tract, which can result in high mortality rates in the affected population. Many improvements have been made in the medical treatment of this syndrome during the past few decades and the survival of individuals with DS has increased in the industrial world. The aim of the present study was to investigate mortality in relation to congenital malformations. Medical records from all liveborn children with DS delivered between 1973 and 1980 in northern Sweden were studied, and malformations and causes of death were recorded. Out of the 219 children included in the study, a congenital heart defect was reported in 47.5% of subjects, 42.1% of whom had complete atrioventricular septal defect. Gastrointestinal tract malformations were present in 7.3% of subjects, and was frequently associated with a cardiac malformation and a very high mortality rate. Other major and minor congenital anomalies were present in 5.5% and 5.5% of subjects, respectively. In the 14.5-year follow-up of 213 children, the rate of survival was 75.6%. Mortality rates within one and 10 years after birth were 14.6% and 23.5%, respectively. Mortality within 10 years differed significantly between children with (44.1%) and without (4.5%) a congenital heart defect. A very high mortality rate was observed among children with a congenital heart defect, especially when it was combined with a gastrointestinal malformation.
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