| 1. |
- Nisell, Margret, et al.
(författare)
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Psychosocial Experiences of Parents of a Child With Imperforate Anus
- 2009
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Ingår i: Journal for Specialists in Pediatric Nursing. - Oxford : Wiley-Blackwell. - 1539-0136 .- 1744-6155. ; 14:4, s. 221-229
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE. This study aims to examine the psychosocial experiences of parents of children with imperforate anus (IA) and to describe their potential positive experiences.DESIGN AND METHODS. Parents of IA children and a comparison group answered a questionnaire, which was analyzed quantitatively and with manifest content analysis.RESULTS. Social relationships and respect for the child's will were more affected among IA mothers. Positive experiences were revealed in relation to the child, the parent, and the family.PRACTICE IMPLICATIONS. Support to parents in caring for a child with IA should be individualized and occasionally undertaken through collaboration with experts from child and adolescent psychiatry.
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| 2. |
- Aradottir, Louis, et al.
(författare)
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Specialist nurse's health promotion work with the national childhood immunization programme : A qualitative study
- 2024
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Ingår i: Journal for Specialists in Pediatric Nursing. - Hoboken, NJ : John Wiley & Sons. - 1539-0136 .- 1744-6155. ; 29:3
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: Childhood immunizations have proven to be one of the most beneficial interventions to promote public health and prevent childhood deaths due to disease. However, global coverage of childhood immunization has decreased throughout the world due to guardians' growing hesitancy towards immunizations. This study aims to describe how specialist nurses promote legal guardians to adhere to national childhood immunization programmes. Design and Methods: This study had a qualitative design. Semistructured interviews with 11 specialist nurses, who were paediatric primary care nurses or nurse practitioners, were conducted. Data were analysed using qualitative content analysis. Results: The findings, with four main categories including four subcategories, showed nurses using both local guidelines and national guidelines to promote guardians to adhere to the childhood immunization programme. The main intervention the nurses did to promote childhood immunization coverage was giving legal guardians general information about the programme. With hesitant guardians, adopting a person-centred approach towards the legal guardian improved adherence. Practice Implications: Further research should focus on how specialist nurses can respond to guardians who decline immunization for their children, as this study identified difficulties in this area. Furthermore, research on guardians' perspectives towards childhood immunization may also help generate further effective guidance on how to promote immunization coverage among children. © 2024 The Author(s). Journal for Specialists in Pediatric Nursing published by Wiley Periodicals LLC.
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| 3. |
- Bergviken, Hanna, et al.
(författare)
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Focusing on the hospital stay or everyday life with cancer: Parents' experiences of choosing a central access device for their child with cancer.
- 2019
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Ingår i: Journal for specialists in pediatric nursing : JSPN. - : Wiley. - 1744-6155 .- 1539-0136. ; 24:3
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain insights into the experiences of parents of children with cancer in conjunction with their decisions on the type of central access device that their child would have.The qualitative study design was chosen to maximize the likelihood of capturing the full range of the phenomenon, that is the parents' experiences from decision-making. Open interviews were conducted between December 2015 and January 2016 with 17 parents of children who had been diagnosed with cancer in 2014-2015. The interviews were analyzed using inductive qualitative content analysis.The analysis of the decision-making process data yielded four subcategories: (a) Feeling overwhelmed owing to limited information and alienation within the healthcare system, (b) the burden of making a quick medical decision without having the big picture, (c) receiving conflicting views and approaches from the healthcare professionals, and (d) including the child's perspective. Those four subcategories were condensed into the following main category: focusing on the hospital stay and treatment or on everyday life with cancer.Healthcare professionals need to be aware that they may influence the parents' decision, and they should consider that parents are often naïve in their situation. To optimize the decision, its timing should be carefully chosen. Parents often take the child's perspective and interpret the child's reactions as reflecting a wish to avoid needle jabs or to live an unhindered everyday life. Healthcare professionals informing families about central access devices need to address both hospital stays and everyday life with cancer, and they need to adopt a child-centered approach.
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| 4. |
- Bruce, Elisabeth, et al.
(författare)
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Mothers' lived experiences of support when living with young children with congenital heart defects
- 2014
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Ingår i: Journal for specialists in pediatric nursing. - : Wiley-Blackwell. - 1744-6155 .- 1539-0136. ; 19:1, s. 54-67
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: The purpose of this study was to illuminate the meanings of support as disclosed by mothers of children with congenital heart defects (CHD).DESIGN AND METHOD: Narrative interviews were conducted with 10 mothers of children with CHD. A phenomenological-hermeneutic method was used for interpretation of the transcribed interviews.RESULTS: The comprehensive understanding of mothers' lived experiences of support emerged as the experiences of receiving good support, receiving "poor support," and absence of support.PRACTICE IMPLICATIONS: Mothers receiving person-centered and family-centered care feel more supported and are more likely to adapt to the stresses of parenting a child with CHD.
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| 5. |
- Göthesson, Johanna, et al.
(författare)
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Children's and adolescent's narratives about pain and negative experiences in diabetes treatment
- 2023
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Ingår i: Journal for Specialists in Pediatric Nursing. - : John Wiley & Sons. - 1539-0136 .- 1744-6155. ; 28:1
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Tidskriftsartikel (refereegranskat)abstract
- Pain and fear associated with needle procedures have been found to be more common among children and adolescents treated for type 1 diabetes (T1D) than among others in their age group. Furthermore, high glycated haemoglobin (HbA1c) values are associated with needle-related fear.Aim: To describe negative experiences of needle procedures in childhood diabetes treatment from children's and adolescents' own perspectives. Methods: Short written narratives (n = 83) and drawings (n = 2) from children and adolescents treated for T1D, aged 7–18 years, were subjected to inductive qualitative content analysis.Results: Negative experiences with needle procedures had many facets, such as pain and fear, changing over time and affecting everyday life. All kinds of needle procedures caused difficulties, but venipunctures were described as the worst.Conclusion: All needle procedures involved in diabetes treatment are potentially experienced as creating pain and fear, but the negative experiences are multifaceted and vary between individuals. These experiences create suffering for children and adolescents, and influence their daily lives. Besides finding techniques to decrease the number of needle procedures in the treatment, research should focus on implementing methods to decrease pain, fear, and other negative experiences as well as to promote self-coping. This is urgent, since needle-related fear has an impact on glycaemic control and therefore increases the risk of long-term complications. Clinical Implications: When caring for children and adolescents with diabetes, their previous experiences with needle procedures need to be considered.
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| 6. |
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| 7. |
- Karlsson, Katarina, 1963-, et al.
(författare)
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The Children's Action-Reaction Assessment Tool (CARAT) as an observational technique for assessing symptom management : An initial validation study with children aged 3–7 years undergoing needle procedures
- 2021
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Ingår i: Journal for Specialists in Pediatric Nursing. - : Blackwell Publishing Ltd. - 1539-0136 .- 1744-6155.
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Tidskriftsartikel (refereegranskat)abstract
- Purpose:For many children, needle procedures are fearful events that are often painful. The first step in symptom management is to assess the child's pain and fear, and the next step is to use coping strategies to provide symptom relief for children who experience or feel pain and fear during procedures. The Children's Action–Reaction Assessment Tool (CARAT) is built on action–reaction strategies. This study aimed to determine the inter-rater reliability of the CARAT when used during needle procedures with 3- to 7-year-old children.Design and Methods:We used a quantitative approach in which 21 children were observed by two independent observers during needle procedures to evaluate the inter-rater reliability of the CARAT. Data were analysed with descriptive statistics, and the observation scores were calculated with an intraclass correlation coefficient (ICC) test on SPSS for Windows, version 25.Results:The completed CARAT indicated the use of action–reaction strategies. Neither action nor reaction strategies were frequently used. The parents were seldom involved in the procedure. The inter-rater reliability showed a sufficient correlation between the observers.Practice Implications:This study showed promising results for the inter-rater reliability of the CARAT, which can be used to facilitate care for children. The observational tool can be used to assess the use of action–reaction strategies in conjunction with needle procedures in children aged 3–7 years.
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| 8. |
- Skog, Nina, et al.
(författare)
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Pain Assessment from Swedish Nurses`perspective
- 2021
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Ingår i: Journal for Specialists in Pediatric Nursing. - : John Wiley & Sons. - 1539-0136 .- 1744-6155. ; 26:3
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Tidskriftsartikel (refereegranskat)abstract
- MethodsThis study is a qualitative interview study. The authors used the stimulated recall interview (SRI) with nurses working at a children's hospital in southern Sweden for the data collection. In total twelve nurses were interviewed and qualitative content analysis was used for the data analysis.ResultsThe results are presented as one theme: Need for higher competencies and evidence, and three categories: Routines can enable pain assessment, Trusting one's own assessment of the whole picture, and Pain assessment scales as an extra workload. The interviewed nurses acknowledged that pain assessment tools are a vital part of the field of pain treatment. They also had trust issues with measuring and estimating pain by means of a tool such as pain scale. Furthermore, their opinion was that too many different tools and methods add up towards a more blurry and stress‐related environment and due to a lack of consistent routines, pain assessment is seen as a work‐related burden in the daily routines.ConclusionResults from the present study indicated that nurses need clear routines in combination with continued education regarding pain assessment with pain scales, which might be the key to successful pediatric pain assessment and thus to better pain management within pediatrics.
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| 9. |
- Stenson Zerpe, Anna, et al.
(författare)
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“When the surgery was over, I felt like the worst part had passed” : experiences of parents of children with craniosynostosis
- 2022
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Ingår i: Journal for Specialists in Pediatric Nursing. - : Wiley. - 1539-0136 .- 1744-6155. ; 27:2
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: Parents of children scheduled for surgery often experience emotional distress and anxiety. This study aimed to explore parents' experiences of hospital care after their child's craniosynostosis surgery and their perception of support during the year after discharge.Design and methods: A purposive sample of 19 parents of 12 children with nonsyndromic craniosynostosis, who had undergone surgery, was recruited from one of two national centers in Sweden. An interview was conducted ~1 year after the child's surgery, from September 2017 to August 2018. The interviews followed a semistructured interview guide, were recorded, transcribed verbatim, and analyzed using inductive content analysis.Results: The analysis yielded six categories with subcategories as follows: (1) cared for and confident: the hospital staff was perceived as kind, professional, and reliable. (2) Alone and abandoned: sometimes, parents found it hard to initiate contact with professionals during hospitalization and after discharge. (3) The importance of information: thorough information was perceived as essential and the need for information varied during postsurgery period. (4) Feelings of worry: some parents remained worried about risks during recovery and were concerned about comorbidities and development. (5) Alright after all: parents felt that the worst part had been before surgery. (6) The need for support: parents were generally satisfied with the support offered and they often received support from family and friends, or other parents through social media/online forums.Practice implications: Healthcare professionals must be responsive to what support parents need at different stages in the care process and be aware that parents sometimes hesitate to initiate contact and ask for help and support. Support from healthcare professionals to everyone in the follow-up program, as a default, might be more accessible or acceptable for some parents. Providing online support from professionals should be considered and caregivers could also facilitate peer support among parents, either face-to-face or online.
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| 10. |
- Vejzovic, Vedrana, et al.
(författare)
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Parents’ experiences when their child is undergoing an elective colonoscopy
- 2015
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Ingår i: Journal for Specialist sin Pediatric Nursing. - : John Wiley & Sons. - 1744-6155 .- 1539-0136. ; 20:2, s. 123-130
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Tidskriftsartikel (refereegranskat)abstract
- Purpose. The purpose was to illuminate parents’ experiences when their children are undergoing an elective colonoscopy performed using polyethylene glycol-based regimes for bowel preparation. Design and Methods. Individual interviews with 12 parents were performed and analysed using content analysis. Results. The parents’ experiences were structured into one theme: “Charged with conflicting emotions” with three categories: “Being forced to force,” “Losing one’s sense of being a parent” and “Standing without guidance.” Practice Implications. Understanding parents’ experiences can help healthcare staff guide parents in helping their children undergo a colonoscopy
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