| 1. |
- Adolfsson, Päivi, 1956-, et al.
(författare)
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A father nevertheless : Self-confident but resigned fathers with children in foster care
- 2023
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Ingår i: Journal of Intellectual Disabilities. - : Sage Publications. - 1744-6295 .- 1744-6309.
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Tidskriftsartikel (refereegranskat)abstract
- This qualitative study aimed to explore the experiences of nine fathers with neurodevelopmental disabilities with children in foster care, including their fathering role, visits and formal and informal support. Systematic text condensation was the analysis method used. The respondents’ experience of fatherhood revealed two categories: I accept my situation and I am frustrated. Though self-confident, the fathers expressed ambivalence between acceptance and frustration with their role. The study shows that more should be done to provide adapted support for these vulnerable fathers with children in foster care, although they seldom demand such support. Social workers and professionals from the rehabilitation team within the healthcare service should be aware of gendered settings, specifically norms of masculinity. Increased efforts from the social workers may reduce the risks of detachment in parenthood because engaged and informed fathers are in the children’s best interests.
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| 2. |
- Ahlström, Gerd, et al.
(författare)
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Ageing people with intellectual disabilities and the association between frailty factors and social care : A Swedish national register study
- 2022
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Ingår i: Journal of Intellectual Disabilities. - Thousand Oaks, CA : Sage Publications. - 1744-6295 .- 1744-6309. ; 26:4, s. 900-918
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe the social care provided for different age groups of people with intellectual disability, 55 years or above, and to investigate the association between such care and frailty factors for those with diagnosed level of intellectual disabilities. Descriptive and logistic regression analyses were used. Commonest forms of social care among the 7936 people were Residential care, Daily activities and Contact person. Home help and Security alarm increased with age. The frailty factors significantly associated with increased social care were age, polypharmacy and severe levels of intellectual disabilities. Persons most likely to be in residential care were in the age group 65–79 with polypharmacy and severe disability. The results indicate a need for further research of how frailty factors are considered in social care and longstanding medication, especially then severe intellectual disability hinders communication. A national strategic plan for preventive interventions should be developed to ensure the best possible healthy ageing. © The Author(s) 2021.
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| 3. |
- Alftberg, Åsa, et al.
(författare)
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Ambivalence among staff regarding ageing with intellectual disabilities : Experiences and reflections
- 2021
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Ingår i: Journal of Intellectual Disabilities. - : Sage Publications. - 1744-6295 .- 1744-6309. ; 25:2, s. 192-209
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Tidskriftsartikel (refereegranskat)abstract
- This study explores the experiences and reflections of staff in intellectual disability (ID) services concerning ageing with ID. Qualitative interviews were conducted with 24 staff members in group homes and daily activity centres. The findings showed that the staff were uncertain about the signs of ageing in people with intellectual disabilities; they compared the life conditions of these people with conditions in older people without intellectual disabilities. Their emphasis on an active lifestyle was very strong. The staff members also mentioned uncertainty about how to facilitate assistive devices and whether ‘ageing in place’ was the best solution. The overall theme was manifested as ambivalence where notions of older people with intellectual disabilities seemed incompatible with notions of old age in general and could be explained by the theoretical concept of age coding. The findings of this study indicate the need to provide education about ageing to staff working in ID services.
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| 4. |
- Bergström, H, et al.
(författare)
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The role of staff in health promotion in community residences for people with intellectual disabilities: variation in views among managers and caregivers
- 2011
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Ingår i: Journal of intellectual disabilities : JOID. - : SAGE Publications. - 1744-6309 .- 1744-6295. ; 15:3, s. 167-76
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Tidskriftsartikel (refereegranskat)abstract
- Managers and caregivers in community residences for people with intellectual disabilities are expected both to promote residents’ health and to support their autonomy. The aim of this article was to explore variation in views among managers and caregivers on the role of staff in health promotion. A qualitative study was conducted using semi-structured interviews with six managers and six caregivers. The analysis used a phenomenographic approach to categorize variation in views. We identified five qualitatively different main categories of roles staff play in health promotion: the parent, the manipulator, the coach, the educator and the libertarian. In addition lifestyle-related risk factors for ill-health and barriers to a healthy lifestyle were analysed and described using qualitative content analysis. The results highlight the ethical conflict that faces staff trying to support a healthy lifestyle as well as the autonomy of the residents.
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| 5. |
- Björquist, Elisabet, 1959-, et al.
(författare)
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When you are not here, I cannot do what I want on the tablet : The use of ICT to promote social participation of young people with intellectual disabilities
- 2022
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Ingår i: Journal of Intellectual Disabilities. - : Sage Publications. - 1744-6295 .- 1744-6309. ; 27:2, s. 466-482
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Tidskriftsartikel (refereegranskat)abstract
- Most youths use Information and Communication Technology (ICT) for socialising, but there is a discussion about whether using ICT promotes social participation for youths with intellectual disabilities (IDs). Employing the concepts of social participation and self-determination together with the youths’ perspectives, as conveyed by staff, we examine how social participation might be promoted for youths with ID in institutional settings in Sweden. The findings revealed three overarching themes. The first theme, Developing skills, self-determination and becoming less reliant, illustrates the basic use of ICT. The second theme, Sharing events, socialising and participating with others, draws attention to how youths take technology a step further to interact with others. The third theme, Resources and attitudes, concerns the youths’ need and desires for adequate support and equipment and the mindset of surrounding communities concerning ICT. Our conclusion is that ICT has the potential to promote social participation if the youths have access to personalised equipment and supportive staff. © The Author(s) 2022.
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| 6. |
- Boman, Charlotte, et al.
(författare)
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Exploring needs, barriers, and facilitators for promoting physical activity for children with intellectual developmental disorders: A qualitative focus group study
- 2023
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Ingår i: Journal of Intellectual Disabilities. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 27:1, s. 5-23
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Tidskriftsartikel (refereegranskat)abstract
- Background Many children with intellectual developmental disorders are insufficiently physically active and do not reach recommendations for physical activity. Pediatric healthcare providers play a key role in addressing these children's needs, including promoting interventions for physical activity. Aim To explore pediatric healthcare providers' perceived needs, barriers, and facilitators for promoting physical activity for children with intellectual developmental disorders. Methods Semi-structured focus groups, analyzed using qualitative content analysis. Sixteen healthcare providers participated. Results Main findings are the importance of parental support and engagement, need for structure, and stakeholder collaboration to bridge the gap between pediatric organizations and external stakeholders. Conclusion The study highlights the need for developing and implementing strategies to promote physical activity for children with intellectual developmental disorders in pediatric health care, and for producing guidelines regarding physical activity interventions for this vulnerable group.
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| 7. |
- Borgström, Åsa, 1971
(författare)
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Young people with intellectual disability and the internet: Challenges and opportunities in qualitative research
- 2023
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Ingår i: Journal of Intellectual Disabilities. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 27:3, s. 598-612
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Tidskriftsartikel (refereegranskat)abstract
- Conducting qualitative research on young people with intellectual disability and the Internet poses methodological challenges as well as opportunities. Based on memos from a qualitative study, this article focuses on identified gaps related to the challenges of informed consent, access to Internet arenas and using stimulus materials. Opportunities, in terms of flexibility and relationships, are discussed and problematized. The discussion shows that researchers may need to move out of their comfort zone and try nonconventional methods of data collection. It is important to be creative and innovative but also to look after the rights and interests of participants. Furthermore, take a non-directive approach and assume young people with intellectual disability to be experts on their own lives. Finally, the power imbalance between a researcher and participant should be considered and the researcher should ask him-/herself which perspective he/she wishes to present or ‘whose side are we on?’
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| 8. |
- Dag, Munir, et al.
(författare)
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Experiences of using Bestic, an eating aid for people with intellectual disabilities
- 2017
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Ingår i: Journal of Intellectual Disability. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 21:1, s. 87-98
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Tidskriftsartikel (refereegranskat)abstract
- This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability. The eating aid’s function, user-friendliness, and the assistants’ attitudes appear to be crucial for using the eating aid. Another important aspect is the introductory and training phase, which must be fundamentally adapted to suit the PWIDs ability to learn and understand. When these aspects are controlled, the eating aid can be a tool for increased independence during meal situations for PWIDs who are unable to move their arms or hands.
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| 9. |
- de Chenu, Linda, et al.
(författare)
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A critical comparison of welfare states and their relevance to people with an intellectual disability
- 2016
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Ingår i: Journal of Intellectual Disabilities. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 20:4, s. 397-415
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Forskningsöversikt (refereegranskat)abstract
- This article compares the welfare services for adults with an intellectual disability in three European countries: England, Norway and Sweden. The purpose of the comparison is to develop an understanding of the welfare state and institutional contexts of the country-specific policies and to develop a critical analysis through a comparative method based on selected secondary literature. Typological frameworks of European welfare states are applied as analytic frameworks to enable comparison between the countries. It is argued that there are international policy developments but these are shaped at a national level by different types of welfare states and histories. Through a comparison of similarities and differences, the article suggests that international policy ideas that impact on the lives of people with intellectual disabilities are mediated by different types of welfare states and institutions.
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| 10. |
- Fernqvist, Stina, 1977-
(författare)
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Negotiating parenthood : Experiences of economic hardship among parents with cognitive difficulties
- 2015
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Ingår i: Journal of Intellectual Disabilities. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 19:3, s. 215-229
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Tidskriftsartikel (refereegranskat)abstract
- People with cognitive difficulties often have scarce economic resources, and parents with cognitive difficulties are no exception. In this article, parents' experiences are put forth and discussed, for example, how does economic hardship affect family life? How do the parents experience support, what kind of strain does the scarce economy put on their situation and how are their children coping? The data consist of interviews with parents living in this often problematic situation. Experiences of poverty and how it can be related to - and understood in the light of - cognitive difficulties and notions of parenthood and children's agency are scarcely addressed in the current research. The findings suggest that experiences of poverty are often associated with the limitations caused by cognitive difficulties. Poverty may thus be articulated as one aspect of the stigma they can experience due to their impairments, not least in relation to their children and naturalized discourses on parenthood.
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