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- Drake af Hagelsrum, Klara, et al.
(författare)
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Healthcare Professionals’ Experiences Of Lifestyle management In Patients With Early Rheumatoidarthritis – A Qualitative Study
- 2022
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Ingår i: ReumaBulletinen. - Stockholm : Svensk reumatologisk förening. - 2000-2246 .- 2001-8061. ; 154:4, s. 60-61
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Tidskriftsartikel (refereegranskat)abstract
- Background: Rheumatoid Arthritis (RA) is a chronic inflammatory systemicdisease that mainly affects joints and with symptoms such asstiffness, pain, and increased fatigue. RA also appears to be anindependent risk factor for accelerated atherosclerosis withan increased risk of cardiovascular diseases, why national andinternational guidelines recommend proper pharmacologicaltreatment together with a healthy lifestyle (1). Supportingpeople with early RA to achieve and maintain a healthy lifestyleis therefore of great importance. However, few studies haveexplored healthcare professionals’ views of working with lifestylemanagement. A healthy lifestyle does not only have the potential tolower cardiovascular risk but may also improve a person’s qualityof life.Objectives: The aim of this study was to explore healthcare professionals´experiences of lifestyle management in patients with early RA.Methods: In this explorative qualitative study, individual interviews wereconducted with 20 healthcare professionals who had a mean of 16years of professional experience in the field of working with patientswith RA. An interview guide with open-ended questions was usede.g.: “How do you work with lifestyle changes in patients withRA?“ and “What theories do you use to support lifestyle changes?”Qualitative content analysis was used, where three categoriesemerged: “The importance of a well-functioning organization“,“The importance of teamwork“ and “The importance of personcenteredcare” and nine subcategories, representing the overallcontent of the interviews (table 1).Results: Healthcare professionals’ experiences of lifestyle managementin patients with early RA included the importance of a wellfunctioningorganization with supportive leadership, priority oflifestyle management, and competence development in lifestylemanagement. The importance of teamwork was emphasizedincluding interdisciplinary team, professional expertise in lifestylehabits, and structured approach to lifestyle management. The healthcare professionals also highlighted the importance of personcenteredcare with individually tailored lifestyle management,shared decision-making, and patient engagement.Conclusion: Healthcare professionals’ experiences of lifestyle managementin patients with early RA reveal that commitment from both themanagement, the team, and the patient is important.References: 1. Agca R, Heslinga SC, Rollefstad S, et al. EULAR recommendationsfor cardiovascular disease risk management in patients withrheumatoid arthritis and other forms of inflammatory jointdisorders: 2015/2016 update. Ann Rheum Dis 2017;76:17-28.
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| 2. |
- Hagel, Sofia, et al.
(författare)
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Content Validity of the Arthritis Self-Efficacy Scale
- 2017
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Ingår i: Reumabulletinen. - Stockholm : Svensk reumatologisk förening. - 2000-2246 .- 2001-8061. ; :119; 4, s. 59-60
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Tidskriftsartikel (refereegranskat)abstract
- Background: Appropriate evaluation is important to optimize health care interventions and to understand patient’s experiences of their situation. Self-efficacy has been proven to have impact on pain, fatigue, physical activity and on cardiovascular risk in patients with inflammatory arthritides, and adequate evaluation is important. The arthritis self-efficacy scale (ASES) is one patient reported outcome measure recommended for evaluation of self-efficacy in arthritides. The aim of this study was to start analyzing the content validity of the ASES through linking to the International Classification of Functioning (ICF), and by using the proposed structure for personal factors (PF).Material and methods: The linking to the ICF was performed through identification of each meaningful concept of heading, introduction and all question including answering options of the ASES subscales for pain and symptoms. Each identified meaningful concept was linked to the third level ICF domain, according to established linking rules. Concepts identified as potential personal factors were sorted into the proposed structure of personal factors (Geyh, 2011) when applicable. The two authors independently identified meaningful concepts and performed the linking to the ICF, and sorted into the structure of personal factors (PF). Disagreements were discussed thoroughly, and reviewed until consensus was reached. Results: The ASES subscales for pain and symptom comprised 5 and 6 questions respectively. All questions were linked to the ICF domain body functions, at a minimum through each answering option that was linked to the b126 “temperament and personality functions”. Other body function domains covered were b130 (energy and drive functions), b134 (sleep functions), b152 (emotional functions), b160 (thought functions) and b280 (pain).Seven questions and the introduction of the ASES subscales for pain and symptom were linked to the ICF domain activity and participation (3 and 4 questions respectively). Five questions were linked to d570 (looking after one’s health), while d220 (undertaking multiple tasks) and d230 (carrying out daily routine) were captured by both subscales although somewhat less well represented.Three questions were linked to the ICF domain environmental factors. Two ASES pain questions were linked to e110 (products and substances for personal consumption) while one ASES symptom question was linked to e425 (individual attitudes of acquaintances, peers, colleagues, neighbors and community members).Personal factors were identified in both ASES subscales. The answering options for all questions except two could be sorted into the PF concept “feelings”, the headings, introductions and six questions could be sorted into the PF concept “patterns of experience and behavior”, and three questions could be sorted into “thoughts and beliefs”.Conclusion: The ASES subscales for pain and symptom showed satisfying content validity since important constructs on all ICF domains (except for body structure) were included. Both ASES subscales also covered PF that contribute with important aspects on health, and impact of the disease, further improving the content validity.
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| 3. |
- Larsson, Ingrid, 1968-, et al.
(författare)
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Patients’ experiences of living with RA after 1-2 years of DMARD treatment
- 2022
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Ingår i: Reumabulletinen. - Stockholm : Svensk reumatologisk förening. - 2000-2246 .- 2001-8061. ; 154:4, s. 66-67
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Tidskriftsartikel (refereegranskat)abstract
- Background: Rheumatoid arthritis (RA) is a disease with a great impact on all aspects of life. Living with RA affects patients’ health including physical, emotional, psychological, and social aspects. Patients with RA are treated with disease-modifying anti-rheumatic drugs (DMARDs) and monitored with tight control to achieve low disease activity or remission. Nevertheless, RA can be life-changing when the patients need long-term treatment to control the disease activity. The goal of treatment for patients with chronic diseases such as RA is to achieve optimal health and a life as normal as possible. It is therefore important to gain knowledge about how patients experience everyday life a short period after the initiation of DMARD treatment. Aim: To describe patients’ experiences of living with RA after 1-2 years of DMARD treatment.Methods: The study has a qualitative design with an inductive approach. Focus groups (n=17) and individual (n=5) interviews were conducted with 22 patients with RA. The participants consisted of 15 women and 7 men with a mean age of 57 years and a disease duration of 12-21 months. The participants were treated with conventional or biological DMARDS for 12-20 months. The main questions were: “Can you tell me how RA impacts your daily life?” “Which outcomes of your RA are important to you at this moment?“ The interviews were analyzed with qualitative content analysis and five categories with an overarching theme emerged (Table 1).Results: Patients’ experiences of living with RA after 1-2 years of DMARD treatment lead to new insights into life and were expressed as 1) Surrendering to disease limitations due to being restricted by pain, fatigue, and in function; 2) Adapting to disease limitations by adjusting one´s work balance and one’s social life; 3) Transitioning in self-identity due to disease limitations by not recognising oneself and experiencing a change of bodily appearance and mood; 4) Fighting disease limitations by experiencing joy through exercise, promoting health by exercise and dietary habits, and; 5) Feeling humility despite disease limitations by being grateful for the treatment and seizing the day.Conclusions: Despite the fact that patients have been living with RA and treated with DMARD for 1-2 years, they are still struggling to make everyday life work. Although patients adapt their lives to the new conditions, their lives are affected by symptoms such as fatigue, pain, stiffness, and side effects such as nausea, hair loss, and weight gain. However, patients highlight the positive effects of how exercise influences their health and how living with RA leads to new insights into life.
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| 4. |
- Bengtsson, Anders, et al.
(författare)
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SLE och graviditet - en utmaning
- 2021
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Ingår i: ReumaBulletinen. - 2000-2246. ; 145:2, s. 28-31
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
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