| 1. |
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| 2. |
- Allvin, Renée, 1956-, et al.
(författare)
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Patient Reported Outcome Measures (PROMs) after total hip- and knee replacement surgery evaluated by the Postoperative Recovery Profile questionnaire (PRP) : improving clinical quality and person-centeredness
- 2012
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Ingår i: The International Journal of Person Centered Medicine. - Buckingham, United Kingdom : University of Buckingham Press. - 2043-7730 .- 2043-7749. ; 2:3, s. 368-376
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Tidskriftsartikel (refereegranskat)abstract
- Rationale and aims: The importance of evaluating postoperative recovery with consideration to the patient’s perspectivehas been emphasized. The aim of this study was to demonstrate how the recovery-specific Postoperative Recovery Profile(PRP) questionnaire can be used to evaluate patient-reported outcome measures (PROMs) after hip- and knee replacementin the enhancement of clinical quality and the person-centeredness of clinical services.Method: Patients undergoing primary total knee- and hip replacement were eligible for this longitudinal follow-up study. The participants completed the PRP questionnaire on repeated occasions. In this paper, data from Day 3 and Month 1 afterdischarge were used. The change in recovery, between the two measurement occasions, on item-, dimensional- and globallevels, both for each patient and for the group, were evaluated.Results: A total number of 75 patients were included. One month after discharge the median PRP score was 13 (partly recovered) out of 19. Recovery changes towards lower levels of problems/difficulties were shown in both item-, dimensional- and global levels of recovery month 1 after discharge, as compared with Day 3. The group of patients washomogenous in change.Conclusions: We demonstrated that the PRP questionnaire can be used to evaluate postoperative recovery after hip- andknee replacement surgery on item-, dimensional- and global levels. Data from each recovery level can be useful for quality development and in informing increases in the person-centeredness of clinical services. The global population scores can beused to evaluate treatment effect on a group of patients. It can also be used to define endpoints in follow-up studies.
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| 3. |
- Bäck, Annika, et al.
(författare)
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The Medication Adherence Report Scale (MARS-5) in a Swedish sample with bipolar disorder - a pilot study
- 2012
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Ingår i: The International Journal of Person Centered Medicine. - 2043-7730 .- 2043-7749. ; 2:2, s. 263-270
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Tidskriftsartikel (refereegranskat)abstract
- Objectives: To test the acceptability and reliability of the Swedish translation of the Medication Adherence Report Scale-5 (MARS-5) in a sample of patients who use mood stabilising medicines for bipolar disorder. A further aim was to compare the Swedish translation of the MARS-5 with the Swedish translation of the four-item scale Morisky Medication Adherence Scale (MMAS-4). Method: The study population (n=47, 70% women) was recruited through patient education sessions, at a Patient Association meeting, in Gothenburg, Sweden, as well as through advertisements on the home pages and newsletters of the Swedish patient associations. Participants received the Swedish translations of the MARS-5 and the MMAS-4, and questions on age, education, and country of birth. Reliability was examined for internal consistency (Cronbach’s α) and test-retest (intraclass correlation (ICC), MARS-5: Pearson’s correlation coefficient (r), MMAS-4: Spearman’s rho (ρ)). The acceptability of the MARS-5 was examined with a correlation analysis between the MARS-5 and the MMAS-4 and for face validity. Results: In the study population 53.3% were categorised as adherent with the MARS-5 and 82.6% using the MMAS-4. The value of Cronbach’s α was 0.66 for the MARS-5 and 0.37 for the MMAS-4. The test-retest of the MARS-5 resulted in r=0.90 and ICC=0.91. Corresponding values for the MMAS-4 were ρ=0.84 and ICC=0.85. The correlation between the MARS-5 and the MMAS-4 was 0.55. The face validity resulted in four comments regarding difficulties in answering the MARS-5. Conclusion: The Swedish translation of the MARS-5 ought to be used instead of the MMAS-4 to measure self-reported adherence in a Swedish sample with bipolar disorder. The MARS-5 showed good psychometric properties.
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| 4. |
- Cloninger, Kevin M., et al.
(författare)
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A Randomized Controlled Pilot Study using Mind-Body Interventions among Refugees in Sweden
- 2019
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Ingår i: The International Journal of Person Centered Medicine. - : University of Buckingham Press. - 2043-7730 .- 2043-7749. ; 9:3, s. 19-34
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Tidskriftsartikel (refereegranskat)abstract
- Background: Migration is one of the major challenges of the 21st century with many refugees being victims of torture and experiencing war and the collapse of their society. Sweden, for example, received about 169,520 refugees during 2015 and 20–30% of them were estimated to suffer from mental illness. Nevertheless, research shows that about 66.40% of refugees never reveal their traumatic experiences to a doctor and a majority refuse psychiatric help. Hence, we need innovative methods to promote the physical, mental, and social health of refugees. Objective: We examined the effects of Anthropedia’s Well-Being Coaching (i.e., a biopsychosocial approach to coaching) and Well-Being Spa (i.e., modern version of age-old Spa interventions) on the personality and health of a sample of refugees living in Sweden. Methodology: Participants were recruited as part of a health and employment project in Blekinge, Sweden. A total of 70 Syrian refugees were randomly assigned to a six-month intervention comprising either Well-Being Coaching, or Well-Being Spa, or both (i.e., Mind–Body). The participants reported personality (temperament and character), well-being (positive and negative affect, life satisfaction, and harmony in life), and ill-being (defeat and entrapment, and anxiety and depression) at the beginning and at the end of the six-month intervention period. Results: Participants assigned to the Well-Being Coaching intervention showed increases in self-directedness (Cohen’s d = 0.84), cooperativeness (Cohen’s d = 0.36), positive affect (Cohen’s d = 0.43), and life satisfaction (Cohen’s d = 0.56), and decreases in both negative affect (Cohen’s d = 0.38) and defeat (Cohen’s d = 0.89). Participants assigned to the Well-Being Spa intervention showed decreases in harm avoidance (Cohen’s d = 0.55), reward dependence (Cohen’s d = 0.69), negative affect (Cohen’s d = 0.82), anxiety (Cohen’s d = 0.53), defeat (Cohen’s d = 0.34), and external entrapment (Cohen’s d = 0.42). Participants assigned to the Mind–Body intervention showed significant decreases in harm avoidance (Cohen’s d = 0.47), anxiety (Cohen’s d = 0.61), depression (Cohen’s d = 0.34), defeat (Cohen’s d = 0.56), external entrapment (Cohen’s d = 0.44), and internal entrapment (Cohen’s d = 0.79) and increases in persistence (Cohen’s d = 0.27), self-directedness (Cohen’s d = 0.28), cooperativeness (Cohen’s d = 0.43), self-transcendence (Cohen’s d = 0.51), positive affect (Cohen’s d = 0.42), and harmony in life (Cohen’s d = 0.36). Conclusions: The results of the present study suggest that Well-Being Coaching strengthens refugees’ character, while the Well-Being Spa treatments reduced participants’ tendency to worry and anxiety. Finally, the combination of these two interventions seems to promote the development of health-related traits, reduce ill-health, and stress, and increase well-being in a wider biopsychosocial perspective.
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| 5. |
- Eklund, Anna Josse, 1968-, et al.
(författare)
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Cross-cultural validation and psychometric testing of the Swedish version of the microsocial section of the Attitudes toward Patient Advocacy Scale
- 2012
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Ingår i: The International Journal of Person Centered Medicine. - : Open Journal Systems. - 2043-7730 .- 2043-7749. ; 2:3, s. 473-481
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Tidskriftsartikel (refereegranskat)abstract
- Rationale, aims and objectives: Patient advocacy can be defined as a process for maintaining and monitoring patients’ rights, values and best interests. To measure attitudes toward patient advocacy, Bu and Wu (2008) developed the Attitudes toward Patient Advocacy Scale (APAS), which required further testing and refining in different contexts. This two-phased study aimed to: (1) translate and cross-culturally validate the APAS section for microsocial patient advocacy (AMIA) in accordance with the Swedish context and (2) test the instrument’s psychometric properties in the community care of older patients.Methods and results: The first phase consisted of back-translation and cultural validation of the APAS-AMIA in accordance with the Swedish context and resulted in a 39-item Swedish version of the APAS-AMIA. In the second phase, data were collected using the 39-item APAS-AMIA in 2009 from a sample of 230 registered nurses and nurse managers covering 16 communities. Subsequently, psychometric testing was conducted with exploratory factor analysis and reliability analysis in a final sample of 201 RNs. The exploratory factor analysis revealed a 4-factor structure, explaining 52.1% of the total scale variance in a 33-item instrument called the APAS-AMIA/SE. The Cronbach’s alpha for the APAS-AMIA/SE was 0.92 and varied between 0.82 and 0.88 for the factors.Conclusion: When the APAS-AMIA/SE semantic and conceptual equivalence to the APAS-AMIA, its distinct factor structure, internal consistency values and theoretical attachment are all added together, the conclusion is that the APAS-AMIA/SE is an acceptably reliable and valid instrument.
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| 6. |
- Garcia, Danilo, 1973, et al.
(författare)
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Bring Balance to the Force! A Biopsychosocial Model of Subjective Well-Being
- 2020
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Ingår i: The International Journal of Person Centered Medicine. - 2043-7730 .- 2043-7749. ; 10:2, s. 23-32
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Tidskriftsartikel (refereegranskat)abstract
- For over 35 years, the concept of subjective well-being has been understood as composed of two parts: an affective component and a cognitive component. This line of research has led to important contributions with regard to physical, psychological, and social health. In this article, we briefly develop the idea of a biopsychosocial model of subjective well-being: affect, life satisfaction, and harmony in life. We argue that a biopsychosocial perspective on subjective well-being covers all the parts that compose a human being (i.e., body, mind, and psyche) and also corresponds to a person-centered measure of human well-being.
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| 7. |
- Gelhaus, Petra
(författare)
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I, Medical Robot. On the differences between virtuous doctor and a good robot
- 2011
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Ingår i: The International Journal of Person Centered Medicine. - : University of Buckingham Press. - 2043-7730 .- 2043-7749. ; 1:2, s. 301-306
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Tidskriftsartikel (refereegranskat)abstract
- Rationale, aims and objectives: The aim of this article is to argue for the necessity of emotional professional virtues in the understanding of good clinical practice. This understanding is required for a proper balance of capacities in medical education and further education of physicians. For this reason, an ideal physician, incarnating the required virtues, skills and knowledge, is compared with a non-emotional robot that is bound to moral rules. This fictive confrontation is meant to clarify why certain demands on the personality of the physician are justified, in addition to a rule- and principle-based moral orientation and biomedical knowledge and skills.Methods: Philosophical analysis of thought experiments inspired by science fiction literature by Isaac Asimov.Results: Though prima facie a rule-oriented robot seems more reliable and trustworthy, the complexity of clinical judgment is not met by an encompassing and never contradictory set of rules from which one could logically derive decisions. There are different ways in which the robot could still work, but at the cost of the predictability of its behaviour and its moral orientation. In comparison, a virtuous human doctor who is also bound to these rules, though less strictly, will more reliably keep to moral objectives, be understandable, be more flexible in case the rules come to their limits and will be more predictable in these critical situations. Apart from these advantages of the virtuous human doctor referring to his own person, the most problematic deficit of the robot is its lacking deeper understanding of the inner mental events of patients which makes good contact, good communication and good influence impossible.Conclusion: Though an infallibly rule-oriented robot seems more reliable at first view, in situations that require complex decisions such as clinical practice, the agency of a moral human person is more trustworthy. Since this is a crucial precondition for good clinical practice, sufficient attention should be given to develop these virtues in addition to the usual attention on knowledge, skills and adherence to moral rules and principles.
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| 8. |
- Granjard, Alexandre, et al.
(författare)
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Personality Profiles in a Sample of Swedish Long-Term Unemployed
- 2019
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Ingår i: The International Journal of Person Centered Medicine. - : University of Buckingham Press. - 2043-7730 .- 2043-7749. ; 9:4, s. 17-39
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Tidskriftsartikel (refereegranskat)abstract
- Background: Long-term unemployment is associated with psychiatric problems, higher risk of suicide, low levels of well-being, and high levels of burnout. In this context, among other factors such as sociodemographic status and IQ, specific personality traits are important for individuals’ chances to finding a job, getting hired, and retaining that job, as well as for coping with the mental health risks related to long-term unemployment. Thus, in order to use person-centered methods to promote public health and sustainable employment during the current and future challenges of the 21st century, an important research area is the mapping and understanding of personality profiles of individuals who are unemployed. Objectives: We mapped the personality traits and profiles in a sample of Swedish long-term unemployed (i.e., ≥ 6 months without work) in relation to a control group from the Swedish general population. Method: 245 long-term unemployed individuals (136 men and 157 women, range 18 to 60 years; M = 25.7; SD = 9.6) were recruited at the beginning of different well-being and employment projects in Blekinge, Sweden. The participants reported gender, age, and other basic demographics, as well as their personality using the Temperament and Character Inventory (TCI). We calculated the T-scores and percentiles for the personality traits using the Swedish normative data (N = 1,948) and clustered participants in different temperament (high/low novelty seeking: N/n, high/low harm avoidance: H/h, high/low reward dependence: R/r) and character profiles (high/low self-directedness: S/s, high/low cooperativeness: C/c, high/low self-transcendence: T/t). Results: Compared to the general population, the long-term unemployed were extremely higher in harm avoidance (> 1.5 standard deviation), moderately lower in persistence (> 0.5 standard deviation), extremely lower in self-directedness (> 2 standard deviations), and moderately lower in novelty seeking (> 0.5 standard deviation). That is, consistent with past research, our study shows that the personality of long-term unemployed is denoted by being pessimistic, fearful, easily fatigable, underachieving, blaming, helpless, and unfulfilled (i.e., high harm avoidance, low persistence, and low self-directedness), but also by being reserved and rigid (i.e., low novelty seeking). Furthermore, within the unemployed population, as much as 71.60% reported a methodical (nHr) or cautious profile (nHR), and as much as 64.00% reported an apathetic (sct) or a disorganized profile (scT). Moreover, the profile analyses allowed us to show that, within this unemployed population and in relation to each individual’s own profile, about 91.70% were high in harm avoidance, 98.60% were low in self-directedness, 64.00% were low in cooperativeness, and 44.40% low in self-transcendence. Conclusions: These results indicate a high predictive value by the TCI, especially regarding the specific basic health-related traits or abilities (i.e., self-directedness, cooperativeness, and self-transcendence) needed to cope with the risks related to unemployment. Specifically, long-term unemployed populations have temperament profiles that present difficulties for them to adapt to the circumstances of unemployment, but also finding, getting, and retaining a job and character profiles that diminish their possibilities to self-regulate the emotions derived from their temperament through self-directed choices that improve their health and all aspects of their lives. Hence, evidence-based interventions targeting stress reduction and the development of health-related traits or abilities (i.e., self-directedness, cooperativeness, and self-transcendence) are urgently needed.
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| 9. |
- Gunnarsson, Anna-Karin, et al.
(författare)
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Hip-fracture patients’ experience of involvement in their care : A qualitative study
- 2014
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Ingår i: The International Journal of Person Centered Medicine. - 2043-7730 .- 2043-7749. ; 4:2
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Tidskriftsartikel (refereegranskat)abstract
- Little is known about how hip-fracture patients experience involvement in their own nursing care. Yet understanding this is essential in order to both meet patient expectations and ensure delivery of high-quality nursing care. The aim of the study was to describe how elderly hip-fracture patients experienced their involvement in the nursing care they received while in the orthopaedics ward. A descriptive design with a qualitative interview approach was used. Semi-structured interviews were conducted with16 hip-fracture patients, 14 days postoperative in 2012. Systematic Text Condensation was used to analyse the data collected. The findings reveal six themes: 1) experiencing severe pain, 2) feeling dependent on the nurses, 3) feeling they were not valued, 4) poor organisation, 5) positives and negatives of sharing a room with fellow patients, and 6) positive interactions with nurses that encouraged the patient. Hip-fracture patients reported experiencing very little involvement in their nursing care, to the extent that fundamental aspects of nursing care went unfulfilled. Patients did not feel valued by the nurses. Most patients described experiencing unbearable pain during their stay in the orthopaedics ward despite the existence of evidence-based and established guidelines for pain management. The result of this study indicates that there is much to do on a number of levels in the health care system to improve patient involvement in nursing care.
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| 10. |
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