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- Muniz da Costa Vargens, Octavio, et al.
(author)
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Defining contentment in quality of life in the context of breast cancer experience: a meta-synthesis
- 2015
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In: Journal of Palliative Care & Medicine. - : OMICS Publishing Group. - 2165-7386. ; 5:6
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Journal article (peer-reviewed)abstract
- Purpose: There has been a great deal of qualitative research conducted that has examined the impact of breast cancer on the concept of Quality of Life (QoL); however, there has been little effort to analyse the psycho-social components of QoL findings from a meta-perspective.Method: Computer searches in electronic databases, search date from 2000 onwards; Publications focusing on women with breast cancer; using qualitative research/studies or combining qualitative and quantitative research, including a clear presentation of qualitative findings; and focused on women’s perspectives and experiences of QoL and affected life situation due to breast cancer. Thirty articles were selected for appraisal and 12 qualitative studies were interpreted and analysed.Results: The fusions identified from this meta-synthesis reveal three aspects of QoL affected by the diagnosis of breast cancer and its treatment: contentment, comfort, and contentedness. The results, understanding what QoL is about from the women’s perspectives may guide nurses and health care professionals when caring for women with breast cancer.Conclusion: The breast cancer experience has powerful impacts on women’s lives, and affects their QoL. This QoL is identified as contentment, comfort and contentedness, which are closely related but diverse. These results of the present study highlight the importance of providing support for women who have breast cancer in order to help them find the best strategies to overcome the impact of the disease and improve their QoL.
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- Werkander Harstäde, Carina, et al.
(author)
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Confronting the Forthcoming Death : A Classic Grounded Theory
- 2016
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In: Journal of Palliative Care & Medicine. - : OMICS International. - 2165-7386. ; 6
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Journal article (peer-reviewed)abstract
- Objective: The aim of this study was to develop a classic grounded theory of patients in palliative care. Methods: A classic Grounded Theory methodology was used to conceptualize patterns of human behavior. Twenty-seven interviews with patients in palliative care and two autobiographies written by persons receiving palliative care were analyzed. Result: “Confronting the forthcoming death” emerged as the pattern of behavior through which patients deal with their main concern, living in uncertainty of a death foretold. The theory involves four strategies; Seeking concrete knowledge, Shielding off, Seeing things through, and Embracing life. Holding on to hope and Suffering are also ever present. Conclusion: The theory shows that there is no easy way straight ahead; patients strive to confront the situation as well as they can, both wanting and not wanting to know what lies ahead. For health professionals, knowledge about how patients use different strategies, which can be used in tandem or succession, or shifted back and forth between over time, to confront their imminent deaths, can create an awareness of how to encounter patients in this uncertainty.
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- Werkander Harstäde, Carina, et al.
(author)
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It was as Good as it Could be : A Family Member's Non-Experiences of Guilt and Shame in End-Of-Life Care
- 2015
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In: Journal of Palliative Care & Medicine. - : OMICS International. - 2165-7386. ; 5:5, s. 1-6
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Journal article (peer-reviewed)abstract
- Objective: This study is part of a larger project, “Guilt and shame in end-of-life care – the next-of-kin’s perspective”. The aim was to explore and interpret a family member’s situation without feelings of guilt and shame and describe reasons for non-experiences of these feelings.Methods: An exploratory case study was employed to investigate and achieve an in-depth, in context understanding of the phenomenon from an informant directly involved in the activities being studied. The data material consisted of two in-depth interviews, analyzed in a hermeneutic way in accordance with Gadamer. Result: Seven subthemes appeared “The mother received good care with clear planning”, “They became aware of the inevitable death”, “The mother knew how she wanted things to be”, “Mutual understanding and care between mother and daughter”, “They could make the most of the time that was left”, “The family was together during the dying”, and “Both the daughter and her mother could handle and see meaning in the situation”. These subthemes resulted in a main theme: “There wasn’t much we could have done differently. It was as good as it could be”. Three interpretations emerged that can decrease the risk of feelings of guilt and shame: 1) knowing that the loved one is receiving professional care of good quality, 2) family awareness of the situation and trusting and supportive relationship with the professionals, and 3) inner and external resources and open communication with each other.Conclusion: The study shows the importance of professionals being involved in the family situation, having the courage to be sensitive towards the patient’s and the family member’s requests in situations where there is dying and death. Being aware of the suggested interpretations can decrease the risk of feelings of guilt and shame.
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