| 1. |
- Ahldén, Maria KC, et al.
(författare)
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Facing the unexpected - A content analysis of how dyads face the challenges of postoperative heart failure
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:2, s. 74-83
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Tidskriftsartikel (refereegranskat)abstract
- Objectives: The aim of this study was to identify the challenges, strategies and needs of dyads who are dealing with postoperative heart failure.Background: An increasing number of patients with postoperative heart failure are living with their partner as primary caregiver. Heart failure is known to reduce quality of life but little is known about the strategies dyads use to cope with postoperative heart failure or what kind of support they need.Methods: Data were collected through semi-structured dialogue guides. Content analysis was performed to derive the main themes and categories of the data.Results: Three main themes were derived from the data; Everyday challenges, Strategies to deal with everyday challenges and Factors facilitating everyday life.Conclusions: Dyads living with postoperative heart failure find the change in everyday life challenging, but have strategies to handle the situation and know what kind of help they need. With the right help from health care, quality of life and self-care can be improved.
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| 2. |
- Bjuresäter, Kaisa, 1970-, et al.
(författare)
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Patients Living with Home Enteral Tube Feeding : Side effects, health-related quality of life and nutritional care
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:3, s. 64-75
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Tidskriftsartikel (refereegranskat)abstract
- The aim of the study was to examine patients’ perceptions of side effects, health-related quality of life (HRQL), generalhealth, and nutritional care among patients receiving home enteral tube feeding (HETF) at two occasions after dischargefrom hospital. Three questionnaires, one study-specific, the Short Form 12 (SF-12) and the Health Index (HI), were sent topatients with HETF (n=62) twice, two weeks after discharge from hospital and two months later. Forty patients respondedtwo weeks after discharge and out of these 29 patients also responded after two months. Data were collected in centralSweden from March 2006 to January 2010. Side effects were common at both points of data collection (70% of thepatients after two weeks and 72% after two month). Patients using bolus feeding reported significantly fewer side effectsthan patients using intermittent feeding. HRQL and HI scores for the total group were low at both points of data collection.The bolus feeding group reported significantly higher physical HRQL and emotional HI than the intermittent feedinggroup did. Most patients were satisfied with the information and support they received from the health care team. Thisstudy has revealed that patients treated with HETF experienced side effects limiting their daily life to a great extent.Differences in HRQL related to feeding methods were found. Individualized support and regular controls are needed inorder to meet patient needs. Bolus feeding may be a suitable feeding method to improve well-being.
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| 3. |
- Björk Brämberg, Elisabeth, et al.
(författare)
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Suggestions for strategies when communicating via in-person interpreters : A qualitative study on communication within home care services in Sweden.
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:3, s. 34-44
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore and suggest strategies for communicating via in-person interpreters, based on experiences of professional home care providers (i.e. nurses and nurse assistants) and social workers. Home care services with its multifaceted emphasis on physical, psychological, social aspects of care and focus on quality of life for the patients presents a challenge for successful interpreted communication as the communication have to cover a wide variety of topics. Previous studies have shown that non-medical issues tend to be less communicated about when using interpreters. The study has an interpretative design, and data were collected in seven focus groups interviews with registered nurses, assistant nurses and social workers in home care services. Data were analysed by means of inductive content analysis. The results reveal suggestions for strategies: making preparations for structure and transparency, creating a flowing conversation on multifaceted topics, forming an understanding of the patient’s voice and limiting the information content. This study concludes that the home care providers and social workers need to be prepared for communication via an interpreter about complex phenomena, that communicating information via an interpreter requires preparation prior to the meeting, as well as being an active part in the conversation. Infrequent use of professional interpreters could threaten the possibilities for care providers and social workers to communicate with linguistic diverse patients in an optimal way.
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| 4. |
- Caspari, Synnöve, et al.
(författare)
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Dignity and existentialconcerns among nursing homes residents from the perspective of their relatives
- 2014
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Ingår i: Clinical nursing studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:3, s. 22-33
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Tidskriftsartikel (refereegranskat)abstract
- Aims and objectives: The aim of this cross-country Scandinavian study was to explore how residents in nursing homes experience that their dignity is promoted and attended to. This is one part of the Scandinavian project in which we interviewed residents, relatives and staff members.Background: The main subject concerns the dignity of residents of nursing homes for older people. This article brings forward results from interviews of relatives on how they experience that the dignity is met, promoted and attended to for their next of kin.Design: The study was qualitative with a hermeneutic approach.Methods: Qualitative research interviews of 28 relatives of residents at six participating nursing homes in Scandinavia. The results derive from analysis of the interviews using Kvale's three levels of interpretation; self-understanding, common sense and a theoretical understanding.Results: The following themes emerged, from the perspective of the relatives, concerning what was deemed important to the resident according his existential needs and concerns: a). To have a comfortable, homely and practical room. b). To have close contact with family, friends and with the staff. c).To have aesthetic needs and concerns attended to. d). To have ethical needs and intrinsic values attended to. e). To have cultural and spiritual needs and concerns attended to.Conclusion: The results provide more substance to the theme and are all important in terms of the residents' feeling of worthiness and dignity. In general it seemed that the relatives experienced a positive encounter with the staff, but it was also mentioned that staff members were not confronted about episodes that were undignified and disgraceful. This could be a sign or expression that they were worried that negative responses or complaints could lead to a kind of reprisal against the resident and to indignity.
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| 5. |
- Dahlborg Lyckhage, Elisabeth, 1956-, et al.
(författare)
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Prerequisites for person-centered care : As described by community care nurses
- 2015
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 3:1, s. 5-13
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe nurses’ experiences of person-centered care within an integrated care chain.Method: The study included four data sets: Two focus group interviews with a total of 22 nurses; an open questionnaire answered by 17 nurses; and individual follow-up interviews with 4 volunteers from among the 17 nurses. In total, 39 informants were included in this study. Qualitative content analysis was carried out to identify the latent content of the focus group and interview data, and the manifest content of the questionnaire data.Results: The results showed that learning about, from and with each other were prerequisites for achieving person-centered care. The ability to provide person-centered care was influenced by factors that could be related to both the organization and to the individual nurse. Important factors were organizational transparency and structure, leadership and collaboration between healthcare centers, partnership, sole caregiver attitudes and skills.Conclusion: In order to develop person-centered care, it is crucial that an integrated care chain feature a joint documentation system; efficient use of the resources allocated to the needs of the various healthcare centers; and a change of focus from the professional to the person seeking care.
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| 6. |
- Dahlqvist, Julia, 1989-, et al.
(författare)
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Child health care nurses' strategies in meeting with parents who are hesitant to child vaccinations
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:4, s. 47-59
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of this study was to describe how nurses in child health centres deal with parents who are hesitant to child vaccinations. Method: A study with a qualitative approach that was based on 12 semi-structured interviews. The informants were nurses working in child health centres in the Västra Götaland region. The interviews were analysed using qualitative content analysis. Results: The results identified six strategies for dealing with vaccine-hesitant parents: 1) using the family’s resources and knowledge to create a trusting relationship; 2) meetings with the same nurse; 3) open dialogue and active listening; 4) regular meetings between nurse and paediatrician; 5) nurse training on new vaccines and vaccination programme; and 6) nurse training on parents’ use of publicly available information. Conclusion: Nurses should get to know the vaccine-hesitant parents, by listening to them and understanding their point of view. Thereby, nurses establish a good relationship, inspire trust and actively involve the parents in the decision-making concerning the vaccination of their child. Nurses should not make vaccine-hesitant parents feel guilty about not wanting to vaccinate their child.
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| 7. |
- Elden, Helen, 1959, et al.
(författare)
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Demanding and challenging: Men's experiences of living with a pregnant woman with pelvic girdle pain: An interview study
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:4, s. 17-29
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Tidskriftsartikel (refereegranskat)abstract
- Background: Pelvic girdle pain (PGP) is a universally disabling condition affecting approximately 50% of pregnant women. Qualitative research describes how PGP leads to struggle in women’s daily lives, makes them question and doubt their roles and identities as professionals and mothers, and test their (marital) relationships. The purpose of this study was to describe men’s experiences of living with a pregnant woman with PGP. Methods: Participants were men whose pregnant partners participated in a project containing both qualitative and quantitative studies in 2009 to 2011. Interviews were conducted in person (n=18) or by telephone (n=8), lasting approximately 20-50 minutes. Sixteen men were interviewed during their wive’s pregnancies (M age = 30 years), eight men were re-interviewed within 12 months postpartum and two men were interviewed only postpartum (26 interviews). Results: Three major categories emerged: having no knowledge of PGP, a period of emotional and physical strain, and merging. Pregnancy in a woman with PGP caused men to alter focus from themselves to their partners and family. They expressed worry, powerlessness, inadequacy, and a need for support. They had to adapt and cope, both demanding and challenging. However, they stressed that relationships with their older children improved, and that they and their partners had succeeded in becoming a team. Conclusions: The findings indicated a need for greater focus from midwives and other health care providers on the psychological impact of PGP on the man/partner. This is important, not only for men but for their respective women as well, whereby men influence their partner’s health.
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| 8. |
- Elden, Helen, 1959, et al.
(författare)
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Effects of craniosacral therapy as experienced by pregnant women with severe pelvic girdle pain: An interview study
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:3, s. 140-151
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Tidskriftsartikel (refereegranskat)abstract
- Abstract Background: Pelvic girdle pain (PGP) affects 50% of pregnant women worldwide. PGP increases with advancing pregnancy with considerable impact on quality of life, interfering with sleep, daily activities, work, motherhood and close interpersonal relationships. The use of Complementary and Alternative Medicine (CAM) is increasingly prevalent among pregnant women, particularly for pregnancy-induced back pain. Craniosacral treatment (CST) is a CAM that has shown symptom relieving effects in pregnancy-related back pain. The purpose of this study was to describe women’s experiences of the treatment. Methods: Twenty-seven women receiving CST plus standard treatment (ST) were interviewed following 3 of 5 treatments with CST by two qualified and experienced CST practitioners. Data were analysed using qualitative content analysis. Results: The experience of CST by pregnant women diagnosed with severe PGP can be described in three categories: An unfamiliar and different treatment method; description of treatment effects, and regaining a personal and social life. Women described how CST provided them with new awareness of their widespread muscle tension. They told of how they experienced increased body awareness, distraction from pain, relaxation and calm, and feelings of security and optimism. These factors may have helped them actively improve posture and lower muscle tension thereby relieving the symptoms of PGP. Conclusions: The present study reports a contextual interpretation of previously published quantitative data, as it provides a deeper understanding of total symptom relief from PGP during pregnancy. Trial registration: The trial is registered at Current Controlled Trials ISRCTN30566933. Key words Complementary and alternative medicine, Craniosacral therapy, Pregnancy, Pelvic girdle pain, Qualitative interview study
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| 9. |
- Elden, Helen, 1959, et al.
(författare)
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Feeling old in a young body: Women’s experiences of living with severe consequences of an obstetric anal sphincter rupture: An interview study.
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 3:1, s. 20-28
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Tidskriftsartikel (refereegranskat)abstract
- Background: The incidence of obstetric anal sphincter rupture (OASR) is increasing. It may cause anal incontinence and dyspareunia, leading to reduced quality of life and wellbeing. Qualitative studies are lacking. The aim was to describe experiences of living with ongoing severe consequences of an OASR 8 weeks after childbirth. Method: Twenty women with ongoing severe consequences of an OASR 8 weeks after delivery were interviewed using qualitative content analysis. Results: The experience of complications of an OASR is described in the overall theme ”Feeling old in a young body” and four categories: The body as injured; isolation; inability to function sexually, and anxiety for the future. Participants described how the consequences of OASR totally occupied their lives, making them feel old in a young body. They told of repercussions for their physical, psychological, sexual and social lives; how it affected their roles of mothers and partners, making them fear future childbirths. Diet, use of medicines, coal filters in incontinence pads, timing of toilet visits, use of the environment and mobile phones to conceal flatus and/or feces were strategies participants described. Conclusions: This study can contribute to increased understanding of how women can be affected by an OASR, and may enable healthcare personnel and authorities to meet their needs and organize care so that adequate support is available. It would also be beneficial if the women’s physical strategies were integrated into the information provided by health caregivers involved in follow-up. However, more research in this area is warranted.
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| 10. |
- Elden, Helen, 1959, et al.
(författare)
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The pelvic ring of pain: Pregnant women’s experiences of severe pelvic girdle pain: An interview study
- 2014
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Ingår i: Clinical Nursing Studies. - : Sciedu Press. - 2324-7940 .- 2324-7959. ; 2:2, s. 30-41
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Tidskriftsartikel (refereegranskat)abstract
- Background: Pelvic girdle pain (PGP) is a universal problem affecting approximately 50% of all pregnant women. For 25 to 30% of pregnant women the problem becomes severe. Methods: In-depth interviews were carried out with 27 pregnant women with severe PGP in 2009-2010. Qualitative content analysis was used. Results: The women’s experiences are summarized in four categories: A strange body; the body on guard; relation and support from health care and, acceptance of PGP. Conclusions: PGP completely preoccupied women with severe PGP. It influenced their self-evident trust in their bodies as well as their capabilities to guide and control them. The fear of triggering pain and unpleasant sensations made them avoid movement. They experienced anxiety and worry of not being able to manage their pregnancy and childbirth, and bind to their unborn child. They felt worse that their complaints are trivialized, and not taken seriously in health care. To be able to cope with PGP, they had to accept it and realize that they have to be aware and accept their bodies’ limitations. This means working with their bodies and not against them. PGP made the women look upon life more seriously and changed their self-perception. Increased awareness and knowledge are needed among healthcare to enable them to meet these women’s needs and provide them with adequate support. Information about PGP could be sent home with the woman at the first visit to the midwife. This would probably prevent or reduce the worry that can arise in women suffering severe PGP.
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