| 1. |
- Andersson, Janicke, 1975-, et al.
(författare)
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Applying the World Café Method to Involve Users in an Interactive Analysis of Research Results
- 2017
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Ingår i: Innovation in Aging. - Oxford : Oxford University Press. - 2399-5300. ; 1:S1, s. 749-750
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Tidskriftsartikel (refereegranskat)abstract
- This presentation will discuss how the World Café method can be used to analyze data interactively together with users, in this case, organizers of senior camps. As part of the Senior Camp Study we were particularly interested in ways of “doing age” and how discourses on age influenced the organization of senior camps. The World Café was arranged with two main purposes: 1) involve users to discuss preliminary findings to validate and problematize the results; 2) use the discussions recorded during the World Café session as data to deepen the analysis. We experience that combining those two purposes was a challenge in the sense that the users were more keen on validating the results and explaining their standpoint than problematize around conceptions of age. We will elaborate and discuss this further in our presentation and also share our experiences of involving users in this stage of the research process. © The Authors 2017. Published by Oxford University Press on behalf of The Gerontological Society of America.
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| 2. |
- Andersson, Katarina, 1963-, et al.
(författare)
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Challenges in Elderly Night-Time Care : Dignity 24 Hours a Day in Swedish Elderly Home Care Services?
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 1:Suppl 1, s. 302-302
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Tidskriftsartikel (refereegranskat)abstract
- The research study explores a large knowledge gap within Swedish elderly care – namely the challenges of within home care services at night. Despite that home care services is the most common support given to the elderly in Sweden. The few National and International studies that exist on night-time care, have focused on residential care facilities for the elderly. Therefore, focus here is on night-time care in their own homes, given by the night patrol – which we know very little about.In the last decades, organizational transformation has taken place within elderly care towards increased rationalization and marketization. Along with demographical changes, this raises questions of dignified care, equal social rights and access to care. As the elderly are living longer and living in their own homes with severe disability and vulnerability, the pressure on home care services will increase – including at night. Dignity in care has been legislated in the Swedish Social Services Act, but is vaguely implemented, specifically at night.Discussed are results of an interview survey with managers responsible for night-time home care services in 50 Swedish municipalities. How night-time care is organized varies depending on local governance, location and size of municipalities. This indicates challenges for equal access to care, depending on where you live. Care workers experience time pressure at night with many fragile elderly in need of care. How efforts to secure dignity and safety for older people varies over night is therefore important to reveal, not the least from a social equality perspective.
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| 3. |
- Andréasson, Frida, et al.
(författare)
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Developing a carer identity and negotiating everyday life through social networking sites
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 1:Suppl_1, s. 465-466
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Research highlights that a key overarching reason why family carers do not utilize support services is that many people who perform the duties of caregiving do not necessarily self-identify as a carer. Understanding the development of carer identities may thus be understood as crucial for the utilization of different health services directed towards carers. Based on the EU funded Innovage project, this project aims to describe and analyse how older carers supporting and caring for an older person understand and socially negotiate their life situation and identity as carers on a Swedish online social forum. Theoretically the project departs from a constructionist approach and methodologically it has been inspired by a specifically designed method for studying the cultures and communities that emerge from online computer-mediated or Internet-based communications, called netnography. The results indicate that in the process through which a carer role is acquired, a significant change in self-perception occurs. The presence or absence of recognition for the older carers’ capacity, is understood as filtered through the needs of the cared for person, making the carer identity into an invisible self. At the same time, the opportunity for online communication may help to create a virtual space of social recognition through which negative and positive experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility to be recognized, and feel empowered by other carers.
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| 4. |
- Bildtgård, Torbjörn, 1970-, et al.
(författare)
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The changing landscape of late life intimacy in modern Sweden – A national portrait
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press (OUP). - 2399-5300. ; , s. 527-527
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Konferensbidrag (refereegranskat)abstract
- This paper focuses on union form in cross-gender relationships in later life, against the background of the transformation of intimacy in late modernity. Results are based on a survey to 60–90 year old Swedes (n=1225; response rate 42%) and European census data. Sweden seems to be the only country where there are more divorced than widowed people in this age group. Almost 1/3 of Swedes, aged 60–90, categorized as singles by official Swedish census data on civil status, are in fact living as LATs or cohabitants. In new romantic relationships initiated 60+ the dominant union form is LAT (70%) followed by cohabitation (26%), while marriage is rare (4%). Less than 2 in 10 singles think that is important to be married – and among marrieds less than 8 in 10. Relationship history data shows that although half of the respondents have been married only once, one third (33%) have had 2+ cohabiting unions (marital/non-marital), half (46%) 2+ established relationships, and a majority (66%) 3+ sexual partners. The results indicate that the transformation of intimacy includes older Swedes. Discussion: Should we see older people as a vanguard in the exploration of late modern intimacy, rather than carriers of cultural lag?
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| 5. |
- Bildtgård, Torbjörn, 1970-, et al.
(författare)
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Union form in late life intimate relationships – The APC question
- 2017
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Ingår i: Innovation in Aging. - : Oxford University Press (OUP). - 2399-5300. ; , s. 337-378
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Konferensbidrag (refereegranskat)abstract
- Family theory has suggested a radical transformation of intimacy in large parts of the Western world over the last 50 years. Given this development, how can we best explain union form in older people’s relationships: In terms of the traditional values they were brought upwith (cohort)? In terms of the historical context in which the relationships were initiated (period)? Or in terms of the life-phase in which the relationships were initiated (age)? All of these hypothesis have been suggested by prior research. The purpose of the paper is to test these hypotheses empirically. The study is based on a quantitative survey of 60–90 year old Swedes (response rate 42%), focusing a subset of respondents (n=702) who are currently either married, cohabiting or LAT. The data are analyzed using logistic regressions. The results showed no significant support for the cohort hypothesis. The analysis gave strong support for the historical hypothesis – union form was significantly correlated with the year the relationship was initiated. It also gave significant support for the life phase hypothesis – older people tend to prefer LAT relationships – but only after they were allowed by the normative historical context. The results are discussed in relation to explanations suggested by earlier research regarding union form in older couples.
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| 6. |
- Bulow, Per, et al.
(författare)
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DIFFERENCES AND SIMILARITIES OF ELDERLY PERSONS IN SWEDEN WITH A DIAGNOSIS OF PSYCHOSIS OR NON-PSYCHOSIS (SMI)
- 2022
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 6:Supplement 1, s. 794-794
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Psychiatric care in Sweden is jointly organized by psychiatric practice and municipal social services. To determine who is entitled to support from the municipalities, the concept of “psychiatric disability” was created in connection with psychiatric reform in 1995. Psychiatric disability is a poorly identified concept and in Sweden, a person has severe mental illness (SMI) if they have difficulties in carrying out activities in crucial areas of life, these difficulties are caused by a mental disorder, and they are prolonged. Internationally, SMI is often synonymous with psychosis, but in Sweden other severe psychiatric conditions are included, but not dementia. Both practically and ethically, the unclear definition of SMI is a problem because it determines whether a person is granted interventions and what forms the interventions take. We investigated similarities and differences in people defined as SMI, divided into two groups, psychosis (Nf222) and non-psychosis (Nf253). Adults with SMI aged 65 or over (in 2016) have been assessed using data from four surveys carried out between 1996 and 2011, as well data available from national registers. People with psychosis had worse functional levels on the Global Assessment of Functioning and more unmet needs, according to Camberwell Assessment of Needs. However, differences between psychosis and non-psychosis groups varied across measures (e.g., education, income, living situation) and results differed depending on age at onset, year of first admission to a mental hospital, and length of institutionalization. These variables had a greater impact on the similarities and differences between measures than the diagnosis itself.
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| 7. |
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| 8. |
- Donini, Lorenzo M, et al.
(författare)
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Long-term GAIT speed telemonitoring in older adults with mild cognitive impairment or mild dementia. The DECI study
- 2020
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Ingår i: Innovation in Aging. - : Oxford University Press (OUP). - 2399-5300. ; 3:Supplement 1, s. S333-S333
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Tidskriftsartikel (refereegranskat)abstract
- Non-intrusive telemonitoring of physical activity in Older Adults suffering from Mild Cognitive Impairment (MCI), or Mild Dementia (MD), was implemented as part of a 6-month multicomponent digital intervention in the DECI study (EU Horizon2020 grant No 643588). Methods: To estimate gait speed long-term trajectory, a processing algorithm was applied on individual accelerometry data continuously recorded via the ADAMO wrist-watch accelerometer. Speed Trend Analysis was performed if patients wore the device ≥90 days. Only outdoor activity was analyzed to reflect patients’ own natural gait speed. Only time spent in high or very-high-activity level is used, to eliminate rest periods (e.g. sitting on a bench, on a bus or driving). A raw mean walking speed was computed. Stride was computed from gender and height and walked distance from stride and step count. Mean walking speed was estimated by walking distance and duration. A rolling mean algorithm was applied to the computed mean 15-day baseline series, resulting in a new series representing normalized patient’s gait speed trajectory during the study. Results: Baseline characteristics: F/M=21/19; MCI/MD=36/4; age=75.4±6.0 years; BMI= 24.6±5,2; MMSE=26.5±2.4; education=8.9±4.0 years. Monitoring days=147±29. Overall three main patterns of gait speed trajectory were identified: “relative stability”, “improving trend” and “progressive decline”: No evident correlation with cognitive status was observed in the sample. Examples of individual patterns are shown. Conclusions: Gait Speed Analysis can describe physical function trajectory over time and identify decliners from stable or improving older adults. Further analyses may clarify the relationship between physical function changes and cognitive status.
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| 9. |
- Ernsth-Bravell, Marie, 1973-, et al.
(författare)
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Using National Quality Registries In Gerontological Research : Pros and Cons
- 2018
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 2:suppl_1, s. 149-149
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Tidskriftsartikel (refereegranskat)abstract
- Health care in Sweden usually focuses on single diseases and is less prepared to treat people with multimorbidity. Combining different national quality registries (NQR) can provide a broader picture of health care, preventive care, and health-promoting care of older people with multimorbidity. The aim of this study was to explore how NQRs can be used in gerontological health care research. A descriptive mixed-method study, including a case report and statistical analysis, was performed. Nine National Quality Registries, three health registries and a social care registry maintained by the Swedish government were individually matched to an older population (birth year 1896 to 1958) in the Swedish Twin Registry (n≈44000). Factor analysis demonstrated the people tended to fall into one of 4 clusters of registries: stroke/dementia/hip, heart/diabetes, arthritis-related, and other. Men were more highly represented in the heart/diabetes cluster. People in the arthritis cluster had the lowest mean age; people in the stroke/dementia/hip cluster had the highest mean age. 161 people were identified as “most ill elderly” (according to the definition by the Swedish government). Two of them were randomly selected for case reports. Each case appeared in 6–7 of the health quality registries, providing sufficient information to track their progression through the health care system until the point of death. The results highlight both pros and cons of using the quality registries as the basis for analysis and “registry-enriched” research designs, but more research needs to be performed to understand how NQRs can be used in gerontological research.
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| 10. |
- Fauth, Elizabeth Braungart, et al.
(författare)
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DISCREPANCIES IN OBJECTIVE AND SUBJECTIVE FINE MOTOR ABILITIES IN OCTOGENARIANS
- 2021
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Ingår i: Innovation in Aging. - : Oxford University Press. - 2399-5300. ; 5:Supplement 1, s. 839-840
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Older individuals may have discrepancies between self-reported and performance-based abilities on activities of daily living (ADL). We examined objective and self-reported fine motor abilities (FMA). FMA are required for many ADLs, but are examined less frequently than gross-motor tasks in this population. We used two waves of the population-based OCTO-Twin study including mono-/dizygotic Swedish twins, aged 80+. One twin was randomly selected for analyses (baseline N=262; wave 2 N=198; Meanage =83.27; SDage=2.90; 66.4% female). Participants self-reported their ability to manipulate things with hands (cannot do, some problem, no problem) and completed a timed FMA assessment including five everyday tasks (e.g. inserting a key in a lock). Slow performance was coded as 1+ SD from the mean (=80+ seconds). At baseline, 65.8% of slow performers reported ‘no problems’ with hand manipulation. Over two waves (two years), a two-factor ANOVA (including slowness-by-perception interaction) supported a significant difference in total motor task performance between slow performers reporting ‘no problems’ and fast performers reporting ‘no problems’, for both rate of change (diff = -26 seconds, p<.0001) and wave 2 level (diff = 50 seconds, p < .0001). 82% of slow performers at wave 2 reported ‘no problems’, which is surprising given that they had become even slower over the past two years. Findings suggest that objective FMA measures are needed, as self-report is inaccurate and not prognostic. Future work will examine if discrepancies in performance/perceived FMA predict poorer outcomes, and/or if reporting ‘no problems’ despite slower performance is protective against cognitive adaptation to slowing.
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