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- Crockett, Katie, et al.
(författare)
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“Navigating chaos”: Urban, Rural, and Remote Patient Experiences in Accessing Healthcare with Indigenous and Non-Indigenous Perspectives of Living with Chronic Low Back Pain
- 2024
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Ingår i: Canadian Journal of Pain. - : Informa UK Limited. - 2474-0527. ; 8:2
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Tidskriftsartikel (refereegranskat)abstract
- Background: Healthcare access for chronic low back pain is complex and should consider not only the health system, but patient care seeking experiences as well. People who live in rural and remote communities and/or identify as being Indigenous may often encounter additional barriers to accessing care for chronic low back pain; thus, these contexts must be considered to fully understand barriers and facilitators. Aims: The aim of this study was to understand care-seeking experiences of people living with chronic back pain in Saskatchewan and determine unique experiences facing urban, rural, remote, and/or Indigenous peoples. Methods: Thirty-three participants with chronic low back pain completed a preliminary survey followed by individual semistructured interviews. Participants were categorized as urban, rural, or remote including Indigenous status. A qualitative interpretive research approach with inductive thematic analysis was employed. Results: Three overarching themes were identified with the following subthemes: (1) healthcare access challenges: challenges to accessing care, challenges within the health system, and challenges leading to self-directed management/coping strategies; (2) healthcare access facilitators: funded care, participant education and knowledge, patient–provider communication, and care closer to home; and (3) participant recommendations for improved care provision: coordination of care, integrative and holistic care, and patient-centered care and support. Rural and remote participants highlighted travel as a main barrier. Indigenous participant experiences emphasized communication with healthcare providers and past experiences influencing desire to access care. Conclusion: Participants identified a range of challenges and facilitators as well as recommendations for improving access to care for chronic low back pain, with unique barriers for rural, remote, and Indigenous participants.
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| 2. |
- Mustafa, Nida, et al.
(författare)
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The lived experiences of chronic pain among immigrant Indian-Canadian women : A phenomenological analysis
- 2020
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Ingår i: Canadian Journal of Pain. - : Taylor & Francis. - 2474-0527. ; 4:3, s. 40-50
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Tidskriftsartikel (refereegranskat)abstract
- Background. Chronic pain is a growing public health concern affecting 1.5 million people in Canada. In particular, it is a concern among the expanding immigrant population, as immigrant groups report higher pain intensity than non-immigrants. In 2011, the Indian population became the largest visible minority group, and continues to be the fastest growing. While the prevalence of chronic pain among Canadian-Indians is unknown, research has found a higher prevalence among Indian women than men in India, Malaysia, Singapore and the United Kingdom, with women reporting more severe pain. An understanding of how pain is experienced by this particular group is, therefore, important for providing culturally-sensitive care. Aims. This study explores the lived experiences of chronic pain among immigrant Indian women in Canada. Methods. Thirteen immigrant Indian women participated in a one-on-one interview exploring daily experiences of chronic pain. Results. Using thematic analysis informed by van Manen’s phenomenology of practice, four themes emerged: (1) the body in pain, (2) pain in the context of lived and felt space, (3) pain and relationships and (4) pain and time. Women revealed their experiences were shaped by gender roles and expectations enforced through culture. Specifically, a ‘dual gender-role’ was identified after immigration, in which women had to balance traditional household responsibilities of family labour and care, alongside employment outside the home, exacerbating pain. Conclusions. This research uncovers the multifaceted nature of chronic pain and identifies factors within the socio-cultural context which may place particular groups of women more at risk of living with pain.
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| 3. |
- Spinord, Linda, et al.
(författare)
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Finding self-worth : Experiences during a multimodal rehabilitation program when living at a residency away from home
- 2020
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Ingår i: Canadian Journal of Pain - Revue canadienne de la douleur. - : Taylor & Francis. - 2474-0527. ; 4:1, s. 237-246
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundPatients with chronic pain who live in rural areas often need to travel long distances to participate in multimodal rehabilitation programs. To reduce traveling during the programs, patients sometimes live at a residency close to the clinic and thus far from home.AimsThe aim of this study was to explore how patients with chronic pain experience participation in an Multimodal rehabilitation program while living at a residencyMethodTwelve patients from two specialist clinics in northern Sweden were interviewed about their experiences of participating in multimodal rehabilitation program. The data were analysed qualitatively using a grounded theory method with an emergent design.ResultsThe analyses resulted in a model with the core category “Finding my self-worth” consisting of four categories: “Space for myself”, “Mirroring myself”, “I am of value” and “Dealing with returning to everyday life”. The model illustrates the process whereby participants are given space for themselves and an opportunity to mirror themselves in interaction with other participants. That provided insight about their self-worth which was valuable for return to everyday life at home and work.ConclusionLiving at a residency during multimodal rehabilitation provided added value when patients were relived from the obligations of everyday life at home, and given time for reflection and interaction with others in similar situations. This contributed to awareness of their own value and the necessity of taking care of themselves. This new insight led to increased motivation to act differently at home.
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