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Sökning: WFRF:(Aledort L M)

  • Resultat 1-6 av 6
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1.
  • Astermark, J., et al. (författare)
  • Symposium in memory of Professor Inga Marie Nilsson
  • 2001
  • Ingår i: Haemophilia. - : Wiley. - 1351-8216. ; 7:4, s. 401-410
  • Konferensbidrag (refereegranskat)abstract
    • Professor Inga Marie Nilsson (1923-99) was a pioneer in the field of bleeding and thrombo-embolic disorders and made several major scientific contributions during her career. To honour her memory, colleagues from all over the world were invited to cover several aspects of haemostasis by giving state-of-the-art lectures at an international symposium in Malmö on September 22-23, 2000, chaired by Professors Lou Aledort and Erik Berntorp. Colleagues of Professor Nilsson in Malmö gave a short introduction to each topic. A short review of the meeting will be presented.
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2.
  • Berntorp, E., et al. (författare)
  • Fifth Åland Island conference on von Willebrand disease
  • 2018
  • Ingår i: Haemophilia. - : Wiley. - 1351-8216. ; 2424 Suppl 4, s. 5-19
  • Tidskriftsartikel (refereegranskat)abstract
    • The fifth Åland Island meeting on von Willebrand disease (VWD) was held on the Åland Islands, Finland, from 22 to 24 September 2016—90 years after the first case of VWD was diagnosed in a patient from the Åland Islands in 1926. This meeting brought together experts in the field of VWD to share knowledge and expertise on current trends and challenges in VWD. Topics included the storage and release of von Willebrand factor (VWF), epidemiology and diagnostics in VWD, treatment of VWD, angiogenesis and VWF inhibitors.
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3.
  • Brown, S A, et al. (författare)
  • Unresolved issues in prophylaxis
  • 2002
  • Ingår i: Haemophilia. - : Wiley. - 1351-8216. ; 8:6, s. 817-821
  • Tidskriftsartikel (refereegranskat)
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4.
  • Globe, Dennis, et al. (författare)
  • Measuring patient-reported outcomes in haemophilia clinical research
  • 2009
  • Ingår i: Haemophilia. - : Wiley. - 1351-8216 .- 1365-2516. ; 15:4, s. 843-852
  • Forskningsöversikt (refereegranskat)abstract
    • Patient-reported outcome (PRO) measures have been used to assess quality of life and health state preferences from the patient's perspective. However, they have not been fully utilized in haemophilia clinical practice and research. A series of meetings were convened to review and document the state of the art in PROs relevant to haemophilia. Experts developed a process for selection of measures and identified published measures of health-related quality of life (HRQoL) relevant to patients with haemophilia. These were synthesized and reviewed. Patient preference measures were also identified and reviewed. Although the majority of measures were developed for and validated in adults, several measures were identified for use in paediatric populations. This paper recommends an approach to the selection of PROs for application in haemophilia clinical research and practice and identifies several potential measures relevant for application in haemophilia clinical research and practice.
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  • Resultat 1-6 av 6

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