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- Algurén, Beatrix, et al.
(författare)
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A Multidisciplinary Cross-Cultural Measurement of Functioning After Stroke : Rasch Analysis of the Brief ICF Core Set for Stroke
- 2011
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Ingår i: Topics in Stroke Rehabilitation. - : Informa UK Limited. - 1074-9357 .- 1945-5119. ; 18:6, s. 573-586
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To investigate the possibility of constructing a multiprofessional cross-cultural measure of functioning after stroke across categories of the International Classification of Functioning, Disability and Health (ICF). Method: Data on 757 stroke survivors from China, Germany, Italy, and Sweden, including ratings of 15 categories from the Brief ICF Core Set for stroke, were analyzed using the Rasch model. Unidimensionality, reliability, fit of the ICF categories to the model, ordering of response options of the ICF qualifier, and presence of differential item functioning (DIF) were studied. Results: Of the 15 ICF categories, response options for 7 categories were collapsed, 5 categories were deleted due to misfit, and 4 ICF categories showed DIF for country and were accordingly split into country-specific categories. The proposed final clinical measure consists of 20 ICF categories (6 categories were country-common) with an overall fit statistic of χ2180 = 184.87, P = .386, and a person separation index of r = 0.72, which indicates good reliability. Based on an individual's functioning after stroke, the ratings across the different ICF categories can be summed on an interval scale ranging from 0 to 100. Conclusion: A construction of a cross-cultural clinical measure after stroke based on ICF categories across body functions, structures, and activities and participation was possible. With this kind of clinical measure, stroke survivors' functional levels can be compared even across countries. Despite the promising results, further studies are necessary to develop definitive measures based on ICF categories.
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| 2. |
- Algurén, Beatrix, et al.
(författare)
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A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales
- 2020
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Ingår i: Journal of Patient-Reported Outcomes. - : Springer. - 2509-8020. ; 4:1
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Forskningsöversikt (refereegranskat)abstract
- BACKGROUND: Over the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because multimorbidity is often common in patients. The aim was therefore to provide an overview of heart-disease specific PROMs and to compare the content of those outcomes using a bio-psycho-social framework of health.METHODS: A scoping review of heart disease-specific PROMs, including arrhythmia/atrial fibrillation, congenital heart disease, heart failure, ischemic heart disease, and valve diseases was conducted in PubMed (January 2018). All items contained in the disease-specific PROMs were mapped to WHO's International Classification of Functioning, Disability and Health (ICF) according to standardized linking rules.RESULTS: A total of 34 PROMs (heart diseases in general n = 5; cardiac arrhythmia n = 6; heart failure n = 14; ischemic heart disease n = 9) and 147 ICF categories were identified. ICF categories covered Body functions (n = 61), Activities & Participation (n = 69), and Environmental factors (n = 17). Most items were about experienced problems of Body functions and less often about patients' daily activities, and most PROMs were specifically developed for heart failure and no PROM were identified for valve disease or congenital heart disease.CONCLUSIONS: Our results motivate and provide information to develop comprehensive PROMs that consider activity and participation by patients with various types of heart disease.
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| 4. |
- Algurén, Beatrix, 1977, et al.
(författare)
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Automatisk förslag på träningsövningar via strukturerad utredning av individens behov
- 2019
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Ingår i: Vitalis - Nordens ledande eHälsomöte.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Så enkelt kan det vara – får automatisk ett förslag på träningsövningar via en strukturerad och systematisk utredning av individens behov för fysisk aktivitet Dagens dokumentation ska vara enhetlig och ändamålsenligt för att möjliggöra informationsutbyte som behövs för att säkerställa kvalitet och säkerhet. WHO:s Klassifikationen av funktionstillstånd, funktionshinder och hälsa (ICF) ingår bland annat i Socialstyrelsens fackspråk för vård och omsorg. ICF har ett bio-psyko-socialt perspektiv på hälsa och omfattar kroppsfunktioner och -strukturer, aktiviteter och delaktighet men även omgivningsfaktorer. Fysioterapeuterna och arbetsterapeuterna men även omsorgspersonal är några av yrkeskategorier som använder mer och mer ICF:s tankemodell och dess enhetliga begrepp och struktur i dokumentation. Individens behov för fysisk aktivitet kan till exempel omfatta kondition, rörlighet, balans, muskelstyrka, ledstabilitet och gångmönster. Träningsövningar kan delas in och systematiseras med samma struktur som till exempel vilken kroppsdel det ska tränas och vad som är syfte med träning (t.ex. rörlighet, styrka, kondition). Skulle journalsystemet skicka information till träningsprogrammet då skulle träningsprogrammet svara med ett förslag på urval av träningsövningar anpassad till individens behov. Tekniska standarder är en förutsättning för att kunna dela information och kunskap med andra system och är ett annat nyckelområde bredvid den semantiska interoperabiliteten inom ramen för Sveriges e-hälsa vision 2025. Ett exempel utifrån träningsprogrammet Mobilus Digital Rehab AB ges.
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| 5. |
- Algurén, Beatrix, 1977, et al.
(författare)
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Bästa vård och omsorg genom strukturerad journal och genomförandeplan – behöver vi kvalitetsregister?
- 2019
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Ingår i: Vitalis - Nordens ledande eHälsomöte.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Bästa vård och omsorg genom strukturerad journal, evidens-baserad kunskap och genomförandeplan - behöver vi kvalitetsregister? Personcentrering, co-production, värdebaserad vård, individens behov i centrum är några av begrepp som används idag för att beskriva en högkvalitativ vård och omsorg. Gemensam för dessa begrepp är en förskjutning av perspektivet från det medicinska synsättet på hälsa och välbefinnande till det holistiska bio-psyko-sociala synsättet. Det sistnämnd innebär att vi inte längre jobbar i stuprör med bara ett perspektiv utan tillsammans med individen och olika professioner. Dokumentation är grunden för att kunna förstå (d.v.s. utreda), planera, genomföra och följa upp mot målen. Utöver journal dokumenteras idag i kommunal verksamhet i fyra kvalitetsregister: SeniorAlert, Beteendemässiga och Psykiska Symtom vid Demens (BPSD), svenska Palliativregistret och svenska Demensregistret (SveDem). Idealfallet är att informationen som samlas i olika informationssystem används integrerad för att skapa bra genomförandeplan respektive hälsoplan och undervika avvikelser. Men hur ser verkligheten ut? Har vi skapat ännu mer stuprör och fastnad i dem? Hur skapar vi meningsfullhet i dokumentationsdjungeln?
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| 6. |
- Algurén, Beatrix, 1977, et al.
(författare)
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Content comparison and person-centeredness of standards for quality improvement in cardiovascular health care
- 2021
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Ingår i: PLoS ONE. - : Public Library of Science (PLoS). - 1932-6203. ; 16:1
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Tidskriftsartikel (refereegranskat)abstract
- Background Quality standards are important for improving health care by providing compelling evidence for best practice. High quality person-centered health care requires information on patients' experience of disease and of functioning in daily life. Objective To analyze and compare the content of five Swedish National Quality Registries (NQRs) and two standard sets of the International Consortium of Health Outcomes Measurement (ICHOM) related to cardiovascular diseases. Materials and methods An analysis of 2588 variables (= data items) of five NQRs—the Swedish Registry of Congenital Heart Disease, Swedish Cardiac Arrest Registry, Swedish Catheter Ablation Registry, Swedish Heart Failure Registry, SWEDEHEART (including four sub-registries) and two ICHOM standard sets–the Heart Failure Standard Set and the Coronary Artery Disease Standard Set. According to the name and definition of each variable, the variables were mapped to Donabedian’s quality criteria, whereby identifying whether they capture health care processes or structures or patients’ health outcomes. Health outcomes were further analyzed whether they were clinician- or patient-reported and whether they capture patients’ physiological functions, anatomical structures or activities and participation. Results In total, 606 variables addressed process quality criteria (31%), 58 structure quality criteria (3%) and 760 outcome quality criteria (38%). Of the outcomes reported, 85% were reported by clinicians and 15% by patients. Outcome variables addressed mainly ‘Body functions’ (n = 392, 55%) or diseases (n = 209, 29%). Two percent of all documented data captured patients’ lived experience of disease and their daily activities and participation (n = 51, 3% of all variables). Conclusions Quality standards in the cardiovascular field focus predominately on processes (e.g. treatment) and on body functions-related outcomes. Less attention is given to patients’ lived experience of disease and their daily activities and participation. The results can serve as a starting-point for harmonizing data and developing a common person-centered quality indicator set.
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| 10. |
- Algurén, Beatrix, 1977, et al.
(författare)
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Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus process
- 2021
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Ingår i: Archives of Disease in Childhood. - : BMJ. - 0003-9888 .- 1468-2044. ; 106:9, s. 868-876
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Tidskriftsartikel (refereegranskat)abstract
- Objective To develop an Overall Pediatric Health Standard Set (OPH-SS) of outcome measures that captures what matters to young people and their families and recognising the biopsychosocial aspects of health for all children and adolescents regardless of health condition. Design A modified Delphi process. Setting The International Consortium for Health Outcomes Measurement convened an international Working Group (WG) comprised of 23 international experts from 12 countries in the field of paediatrics, family medicine, psychometrics as well as patient advisors. The WG participated in 11 video-conferences, through a modified Delphi process and 9 surveys between March 2018 and January 2020 consensus was reached on a final recommended health outcome standard set. By a literature review conducted in March 2018, 1136 articles were screened for clinician and patient-reported or proxy-reported outcomes. Further, 4315 clinical trials and 12 paediatric health surveys were scanned. Between November 2019 and January 2020, the final standard set was endorsed by a patient validation (n=270) and a health professional (n=51) survey. Results From a total of 63 identified outcomes, consensus was formed on a standard set of outcome measures that comprises 10 patient-reported outcomes, 5 clinician-reported measures, and 6 case-mix variables. The four developmental age-specific packages (ie, 0–5, 6–12, 13–17, 18–24 years) include either five or six measures with an average time for completion of 20min. Conclusions The OPH-SS is a starting point to drive value-based paediatric healthcare delivery from a global perspective for enhancing child and adolescent physical health and psychosocial well-being.
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