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- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Being in transit and in transition : The experience of time at the place, when living with severe incurable disease - a phenomenological study
- 2014
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 28:3, s. 458-468
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study is to describe the experience of time as it presents itself at the place being situated when living with severe incurable disease and receiving palliative care. The empirical data consist of 26 open-ended interviews with 23 patients receiving palliative care at home, at a palliative day care, in a palliative bed unit in hospital or in a nursing home in Norway. A common meaning of a shifting space for living emerged from the analysis and was revealed through three different aspects: (i) Transition from a predictable to an unpredictable time: To live with severe incurable disease marks a transition to a changed life involving an ongoing weakened and altered body with bothersome symptoms making experience of time different and unpredictable. (ii) Transition between a safe and unsafe time: When time is unpredictable, feeling safe is revealed as essential to how time is experienced at the place being situated. (iii) To be in transition from a homely to a homeless existence: In a time of increased bodily weakness, unpredictable ailments and displacements, the sense of belonging to the place is revealed as significant to the experience of time. Not knowing where to be in a time of change is like an existential cry of distress where the foothold in existence is lost. The findings are discussed and interpreted as an embodied experience originating from the passage of time continually affecting life sometimes so fundamentally that it marks a transition to a changed space of life that is reflected in the experience of time. © 2013 Nordic College of Caring Science.
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| 2. |
- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Entering a World with No Future : A phenomenological study describing the embodied experience of time when living with severe incurable disease
- 2013
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 27:1, s. 165-174
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Tidskriftsartikel (refereegranskat)abstract
- A phenomenological study describing the embodied experience of time when living with severe incurable disease This article presents findings from a phenomenological study exploring experience of time by patients living close to death. The empirical data consist of 26 open-ended interviews from 23 patients living with severe incurable disease receiving palliative care in Norway. Three aspects of experience of time were revealed as prominent: (i) Entering a world with no future; living close to death alters perception of and relationship to time. (ii) Listening to the rhythm of my body, not looking at the clock; embodied with severe illness, it is the body not the clock that structures and controls the activities of the day. (iii). Receiving time, taking time; being offered - not asked for - help is like receiving time that confirms humanity, in contrast to having to ask for help which is like taking others time and thereby revealing own helplessness. Experience of time close to death is discussed as an embodied experience of inner, contextual, relational dimensions in harmony and disharmony with the rhythm of nature, environment and others. Rhythms in harmony provide relief, while rhythms in disharmony confer weakness and limit time. © 2012 The Authors. Scandinavian Journal of Caring Sciences © 2012 Nordic College of Caring Science.
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| 3. |
- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Experience of Time when Living with Incurable Disease : A Qualitative Study
- 2011
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Ingår i: 12th Congress of the European Association for Palliative Care (EAPC), Lisbon, Portugal, 18-21 May, 2011. - Newmarket : Hayward Medical Communications. ; , s. 190-190
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Background: The healthcare system’s unilateral focus on clock time has given motivation to explore the diversity of time and in particular the impact of time in vulnerable patients. When living with severe incurable disease, the diversity and impact of time become prominent.Aim: Knowledge on patients’ experiences of time may be helpful both in planning, organizing, preparing and performing treatment and care for patients with short life expectancy. Especially to open up the communication with the patient and his/her relatives, this knowledge is important and therefore of general interest.Theoretical frame: The philosophical and theoretical approach in this study is phenomenological. Edmund Husserl, the founder of modern phenomenology, has stated that consciousness of time is the most important area in phenomenology. Martin Heidegger, known as a master in phenomenology after Husserl, emphasizes the impact of our relationship to time with respect to being.Method: An unstructured open-ended in-depth interview has been used with support of a theme guide reflecting different aspects of time. The data consist of 26 interviews from 23 participants receiving palliative care. The study was carried out from April 2009 to February 2010 in the respondent’s home or at different palliative care units in Hordaland County in Norway.Preliminary result: Time, context and care are related. The patients feeling of security for themselves and their relatives determine whether the time feels good or bad. It is evident that our relationship to time is expressed by body language. The body also communicates a rhythm, when health worker and the patients have different rhythm the care can become an unpleasant experience. Patients, relatives and health workers are in different aspects of time, normally we are prospective, when death are approaching the future become uncertain, which can entail that it is a challenge to meet in harmony in the present.
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| 4. |
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| 5. |
- Ellingsen, Sidsel, et al.
(författare)
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The pendulum time of life : the experience of time, when living with severe incurable disease—a phenomenological and philosophical study
- 2015
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Ingår i: Medicine, Health care and Philosophy. - Dordrecht : Springer Netherlands. - 1386-7423 .- 1572-8633. ; 18:2, s. 203-215
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to gain a deeper understanding of the experience of time when living with severe incurable disease. A phenomenological and philosophical approach of description and deciphering were used. In our modern health care system there is an on-going focus on utilizing and recording the use of time, but less focus on the patient’s experience of time, which highlights the need to explore the patients’ experiences, particularly when life is vulnerable and time is limited. The empirical data consisted of 26 open-ended interviews with 23 participants receiving palliative care at home, in hospital or in a nursing home in Norway. The theoretical frameworks used are mainly based upon K. Martinsens philosophy of care, K. E. Løgstrup phenomenological philosophy, in addition to C. Saunders’ hospice philosophy, L. Feigenberg’s thanatology and U. Qvarnström’s research exploring patient’s reactions to impending death. Experience of time is described as being a movement that moves the individual towards death in the field of opposites, and deciphered to be a universal, but a typical and unique experience emerging through three integrated levels: Sense of time; where time is described as a movement that is proceeding at varying speeds. Relate totime; where the awareness of limited life changes the understanding of time to be more existential. Being in time; where limited time seems to clarify the basic living conditions and phenomena of life. The existence of life when the prospect of death is present is characterized by emotional swings that move within polarizing dimensions which is reflected in the experience of time illustrated as the moves of the pendulum in a grandfather clock. The diversity of the experience of time is oscillating between going fast or slow, being busy or calm, being unpredictable but predictable, safe or unsafe and between being good or bad, depending on the embodied situation of the individual. © 2014, Springer Science+Business Media Dordrecht.
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| 6. |
- Glasdam, Stinne, et al.
(författare)
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Læring af klinisk praksis i mødet med patienter og pårørende
- 2013
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Ingår i: Læring i og af klinisk praksis. - 9788717042421 ; , s. 51-63
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Bokkapitel (refereegranskat)abstract
- Abstract in Danish Kapitlet handler om, hvordan patienter og pårørende har en aktiv del i sundhedsprofessionelles, herunder studerendes, læring af og i klinisk praksis. Først vises hvordan patienter mere struktureret og organiseret har været brugt i undervisningssituationer af studerende inden for sundhedsområdet. Dernæst argumenteres for læringsmulighederne i de konkrete møder med patienter og pårørende, som hele tiden er til stede i den kliniske praksis, og der problematiseres over, hvordan menneskers liv og måder at leve liv på også har betydning for, hvem sundhedsprofessionelle ser og ikke-ser i deres kliniske praksis; patientens autonomi og ret hertil diskuteres endvidere i det lys. Kundskabsformer løftes frem og diskuteres med udgangspunkt i Aristoteles, og der argumenteres for at møderne mellem sundhedsprofessionelle og patienter og pårørende i klinisk praksis er sammensatte, komplekse situationer, som fordrer, at alle kundskabsformer sættes i spil for at kunne handle adækvat i selve situationen. Det vises, hvordan patienter og pårørende kan hjælpe den sundhedsprofessionelle, den studerende, til viden om deres liv, til viden om deres kroppe, til viden om deres sygdom og til viden om at leve med og håndtere disse sygdomme. Endvidere vises, hvordan patienter og pårørende kan hjælpe den sundhedsprofessionelle, den studerende, til at lære det praktiske håndelag gennem at stille deres kroppe til rådighed for øvelse. Udfordringerne for disse møder – og læringspotentialer - ligger i at turde overskride os selv og det sundhedssystem, vi arbejder inden for rammerne af for at finde tid og rum til disse møder med patienterne og de pårørende i vores daglige kliniske praksis.
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