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| 2. |
- Jävholm, Stina, 1971, et al.
(författare)
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The choice of Pre-implantation Genetic Diagnostis (PGD), a qualitative study among men and women
- 2014
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Ingår i: Journal of Reproductive and Infant Psychology. - : Informa UK Limited. - 0264-6838 .- 1469-672X. ; 32:1, s. 57-69
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Tidskriftsartikel (refereegranskat)abstract
- Background: Previous qualitative studies have shown that the decision to undergo Pre-implantation Genetic Diagnosis (PGD) is a demanding situation that increases psychological burden and activates moral beliefs and cognitive assessments. Most studies are based on women’s experiences. Studies about the choice are mostly done in a hypothetical setting. Objective: The aim of this study was to investigate psychological aspects, the influence of the healthcare system and ethical considerations in relation to men and women’s decision to undergo PGD. Method: Nineteen couples (19 women and 17 men) all planning and eligible for PGD in Sweden were interviewed. Data were analysed with a thematic approach. Results: The analysis lead to the formation of a master theme, labelled Choosing. In addition, three subthemes emerged – In relation to myself, In relation to the child, and In relation to the society – and nine underlying categories. No differences were found between men and women concerning emotional depth or cognitive recognition of the decision. Conclusion: The men and women in this study were a heterogeneous group with great variations in reproductive history. However, they expressed common themes about what affected them in their deciding to undergo PGD. The themes are complex and activate ethical reasoning. The results of the present study are relevant for pre-PGD counselling, and indicate that support should be provided to men as well as to women.
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- Lilja, Josefine, et al.
(författare)
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Mindfulness Based Cognitive Therapy. Experiences of everyday life and relapse prevention in primary care
- 2015
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Ingår i: Psychology. - : Scientific Research Publishing, Inc.. - 2152-7180 .- 2152-7199. ; 6:4, s. 464-477
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Tidskriftsartikel (refereegranskat)abstract
- The concept of mindfulness has attracted a growing body of research within behavioural medicine over the last decade. Mindfulness-based cognitive therapy (MBCT) has been developed to prevent relapse among people who suffer recurrent depression. Studies show impressive results, with a decrease in the risk of relapse of up to 50%. However, primary care patients’ own experiences and MBCT’s effectiveness as a relapse program and aid to their ability to deal with everyday life remain relatively unexplored. The aim of the study, therefore, was to examine how primary care patients with recurrent depression perceive the usefulness of MBCT in preventing relapse. Nineteen patients who had participated in a MBCT program for recurrent depression within a primary care setting were interviewed 12 months after treatment. Qualitative thematic analysis was used to identify, analyse, and report patterns in the interviews. Analysis suggests two overarching themes, “Strategies for remission” and “Personal development”. This study brings new information about what participants in MBCT classes describe as the most useful interventions for relapse prevention. The formal and informal meditation exercises focused on the body and the breath were described as the most important strategies for remission and the mindfulness practice gave the participants an enhanced self-knowledge that helped them to better deal with everyday stress and interpersonal functioning. The findings also indicate that traditional cognitive behavioural interventions, such as behaviour activation and establishing a maintenance plan, might not be as essential to relapse prevention as formerly thought.
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| 5. |
- Behrns, Ingrid, 1961, et al.
(författare)
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A comparison of Written and Spoken Narratives in Aphasia.
- 2011
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Ingår i: the 12th International Conference of the EARLI Special Interest Group on Writing, 8th to 10th of September 2010, Heidelberg, Germany.
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Konferensbidrag (refereegranskat)abstract
- Background: Early research in aphasiology seemed to view writing as written speech, implying that the symptoms would be the same in written and spoken output. However, different patterns for how difficulties are manifested in written versus spoken language have since been observed. The impressions from untrained readers add an important perspective to clinicians in how patients are able to participate in everyday life outside the clinical setting. Aim: The aim of the present study was to explore how a personal narrative told by a group of persons with aphasia differed between written and spoken language, and to compare this with findings from narratives told by participants in a reference group. Method: Eight participants with aphasia and ten participants with no neurological disorder were asked to take part in the project. The participants produced a free narration entitled ‘I have never been so afraid’, first in a written version and then also in a spoken version. The stories were analysed through holistic assessments made by 60 participants without earlier experience of aphasia and through measurement of lexical and syntactic variables. Results: The untrained readers and listeners rated the stories told by the referencegroup higher than the stories told by the participants with aphasia. The written stories made by the persons with aphasia were however rated as easier to understand, more interesting and more coherent than their spoken versions. Regression analysis revealed that the length of the stories (number of words) and word-level errors were to some extent predicting factors of the ratings, but interestingly enough not necessarily in the sense that longer and more correctly spelled stories were always rated higher. Discussion: The results showed that the impression of a written text is probably due to a very complicated network of variables. For persons suffering from aphasia it is important that they are offered language rehabilitation that includes written language. However, results also indicates that the goals for writing training have to be set individually and that more factors except spelling has to be considered when planning therapy.
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| 6. |
- Boström, Petra, 1972, et al.
(författare)
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Child's positive and negative impacts on parents-A person-oriented approach to understanding temperament in preschool children with intellectual disabilities.
- 2011
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Ingår i: Research in Developmental Disabilities. - : Elsevier BV. - 0891-4222 .- 1873-3379. ; 32, s. 1860-1871
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Tidskriftsartikel (refereegranskat)abstract
- Background: Despite previous efforts to understand temperament in children with intellectual disability (ID), and how child temperament may affect parents, the approach has so far been unidimensional. Child temperament has been considered in relation to diagnosis, with the inherent risk of overlooking individual variation of children’s temperament profiles within diagnostic groups. The aim of the present study was to identify temperamental profiles of children with ID, and investigate how these may affect parents in terms of positive and negative impacts. Method: Parent-rated temperament in children with ID was explored through a personoriented approach (cluster analysis). Children with ID (N = 49) and typically developing (TD) children (N = 82) aged between 4 and 6 years were clustered separately. Results: Variation in temperament profiles was more prominent among children with ID than in TD children. Out of the three clusters found in the ID group, the disruptive, and passive/withdrawn clusters were distinctly different from clusters found in the TD group in terms of temperament, while the cluster active and outgoing was similar in shape and level of temperament ratings of TD children. Children within the disruptive cluster were described to have more negative and less positive impacts on mothers compared to children within the other clusters in the ID group. Conclusions: Mothers who describe their children as having disruptive temperament may be at particular risk for experiencing higher parenting stress as they report that the child has higher negative and lower positive impacts than other parents describe. The absence of a relationship between child temperament profile and positive or negative impact on fathers may indicate that fathers are less affected by child temperament. However, this relationship needs to be further explored.
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| 8. |
- Boström, Petra, 1972, et al.
(författare)
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Openness and avoidance–a longitudinal study of fathers of children with intellectual disability.
- 2014
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Ingår i: Journal of Intellectual Disability Research. - : Wiley. - 0964-2633 .- 1365-2788. ; 58:9, s. 810-821
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Tidskriftsartikel (refereegranskat)abstract
- Background Fathers' interactions with children who have intellectual disabilities (ID) or developmental delays (DD) have increased over the past few decades and may be expected to continue to increase as maternal and paternal roles, along with other gender roles, become more equal. The aim of the present study was to explore fathers' experiences of parenthood in relation to a child with ID/DD from the initial discovery of the disability to 5 years later. Methods Fathers' experiences of parenting children with ID/DD were explored in a longitudinal framework. Seven Swedish fathers of young children with ID/DD participated in a series of semi-structured interviews from 2005 to 2010, and their accounts were subjected to interpretative phenomenological analysis. Results The analysis revealed three themes: (1) An interrupted path – no longer taking things for granted, which describes the fathers' reactions to their children's diagnosis; (2) Being a good father, which describes the fathers' overall perceptions of their parenting of a child with ID/DD; and (3) Dealing with the unexpected, which describes fathers' individual ways of integrating, managing, and living with the knowledge of their child's disability over the 5 years during which fathers were interviewed. Conclusions Fathers' individual paths need to be taken into consideration when offering psychological support to families of children with ID/DD.
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| 9. |
- Boström, Petra, 1972, et al.
(författare)
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Parents' descriptions and experiences of young children recently diagnosed with intellectual disability
- 2010
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Ingår i: Child Care Health and Development. - : Wiley. - 0305-1862 .- 1365-2214. ; 36:1, s. 93-100
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of the present study was to explore the variation of parents' descriptions and experiences of their child that was recently identified to have an intellectual disability (ID). Methods: The study applied interpretative phenomenological analysis and analysis of narrative style looking at content and form of parental narratives. Data was collected from nine fathers and eight mothers through semi-structured interviews within 6 months following diagnosis. Results: Analysis revealed three factors indicating the parents' level of processing: (1) emotional expressions regarding the child - varying between limited (distanced or idealized) and balanced/affectionate; (2) experience of the disability - varying between preoccupation and acceptance; and (3) time orientation - varying in terms of flexibility and temporal focus. Conclusions: Although parents of children with ID describe negative emotions in relation to the child and the disability, most of these parents also describe positive emotions that seemed to balance the negative experiences. © 2009 The Authors. Journal compilation © 2009 Blackwell Publishing Ltd.
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| 10. |
- Boström, Petra, 1972, et al.
(författare)
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Protection and Restriction: A Mixed Methods Study of Self-reported Wellbeing among Youth with Intellectual Disabilities
- 2018
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Ingår i: JARID: Journal of applied research in intellectual disabilities. - : Wiley. - 1360-2322 .- 1468-3148. ; 31:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: As most mental health studies of school-aged children with intellectual and developmental disabilities (IDD) are based on proxy ratings, the subjective views of these young persons are rarely explored. The present study explores experiences of well-being, mental ill-health, family, school, and peer relations in students in special education. Methods: Ten students in special education, aged 13–16 years, answered the Wellbeing in Special Education Questionnaire (WellSEQ) and participated in semi-structured interviews. Data were analyzed using a mixed methods phenomenological research approach. Results: The general agreement between questionnaire responses and interview accounts appears to be good, and the students emphasized mainly positive emotions and good mental health. Students described their school environment and family relations as inclusive contexts experienced as both protective and restrictive. Conclusion: Using well-adapted research instruments enables students with IDD to communicate subjective experiences of well-being and how it relates to aspects of their everyday environment.
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