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- Benning, Pierre, et al.
(författare)
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Collaboration processes A State of the Art
- 2010
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- The key objective of InPro is to define and support a new way of working with integrateddesign from a life cycle perspective, capturing client requirements and collaboration betweenstakeholders during the early design phase of a construction project. This phasestarts with the first client contact and ends with the delivery of a design proposal, withrecognisable functions, visualised for easy understanding and with a cost calculation tosupport the clients' go/no-go decision.The aim of Work Package 2 is to develop model-based and knowledge-based workingmethods for the Early Design phase. This will result in a systematic integration of lifecycledesign processes in new construction or renovation of buildings, taking into accountthe added values for society/citizens, clients/users, and the construction sector. ThisWork Package will also propose a framework for the collaboration process between involvedparties.The aim of Task 2.2 "Collaboration Processes" is to develop this framework for collaborationin the Early Design process, where all partners share information in a common OpenInformation Environment delivered by WP5 and add knowledge to the project. Thisframework of collaboration is a concept related to the needs of shared guidelines in orderto work efficiently together, generally defined in a contract. This framework will answerto the main question:How to create concurrent and iterative working processes with clear decisionmilestones?and includes other key questions:How to create functional working groups that represent different competenciesor backgrounds, including conflict resolution conceptsHow to to establish trustHow to balance between formal and informal communication channelsHow to communicate design changes in a virtual building model between concurrentlyworking design teams, e.g. by managing, categorising and highlightingdesign changesHow to reuse knowledgeIt also includes project and contractual issues management, progress monitoring, strategiesfor delegation of responsibility, methods for risk assessment and strategies for continuousimprovements based on measured Key Performance Indicators developed in Task1.3.
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| 2. |
- Boyle, Breidge, et al.
(författare)
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Estimating Global Burden of Disease due to congenital anomaly : An analysis of European data
- 2018
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Ingår i: Archives of Disease in Childhood: Fetal and Neonatal Edition. - : BMJ. - 1359-2998 .- 1468-2052. ; 103:1, s. 22-28
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Tidskriftsartikel (refereegranskat)abstract
- Objective To validate the estimates of Global Burden of Disease (GBD) due to congenital anomaly for Europe by comparing infant mortality data collected by EUROCAT registries with the WHO Mortality Database, and by assessing the significance of stillbirths and terminations of pregnancy for fetal anomaly (TOPFA) in the interpretation of infant mortality statistics. Design, setting and outcome measures EUROCAT is a network of congenital anomaly registries collecting data on live births, fetal deaths from 20 weeks' gestation and TOPFA. Data from 29 registries in 19 countries were analysed for 2005-2009, and infant mortality (deaths of live births at age <1 year) compared with the WHO Mortality Database. Eight EUROCAT countries were excluded from further analysis on the basis that this comparison showed poor ascertainment of survival status. Results According to WHO, 17%-42% of infant mortality was attributed to congenital anomaly. In 11 EUROCAT countries, average infant mortality with congenital anomaly was 1.1 per 1000 births, with higher rates where TOPFA is illegal (Malta 3.0, Ireland 2.1). The rate of stillbirths with congenital anomaly was 0.6 per 1000. The average TOPFA prevalence was 4.6 per 1000, nearly three times more prevalent than stillbirths and infant deaths combined. TOPFA also impacted on the prevalence of postneonatal survivors with non-lethal congenital anomaly. Conclusions By excluding TOPFA and stillbirths from GBD years of life lost (YLL) estimates, GBD underestimates the burden of disease due to congenital anomaly, and thus declining YLL over time may obscure lack of progress in primary, secondary and tertiary prevention.
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| 3. |
- Greenlees, Ruth, et al.
(författare)
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Paper 6: EUROCAT Member Registries: Organization and Activities
- 2011
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Ingår i: Birth Defects Research Part C: Embryo Today: Reviews. - : Wiley. - 1542-975X. ; 91:Suppl. 1, s. 51-100
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Forskningsöversikt (refereegranskat)abstract
- BACKGROUND: EUROCAT is a network of population-based congenital anomaly registries providing standardized epidemiologic information on congenital anomalies in Europe. There are three types of EUROCAT membership: full, associate, or affiliate. Full member registries send individual records of all congenital anomalies covered by their region. Associate members transmit aggregate case counts for each EUROCAT anomaly subgroup by year and by type of birth. This article describes the organization and activities of each of the current 29 full member and 6 associate member registries of EUROCAT. METHODS: Each registry description provides information on the history and funding of the registry, population coverage including any changes in coverage over time, sources for ascertaining cases of congenital anomalies, and upper age limit for registering cases of congenital anomalies. It also details the legal requirements relating to termination of pregnancy for fetal anomalies, the definition of stillbirths and fetal deaths, and the prenatal screening policy within the registry. Information on availability of exposure information and denominators is provided. The registry description describes how each registry conforms to the laws and guidelines regarding ethics, consent, and confidentiality issues within their own jurisdiction. Finally, information on electronic and web-based data capture, recent registry activities, and publications relating to congenital anomalies, along with the contact details of the registry leader, are provided. CONCLUSIONS: The registry description gives a detailed account of the organizational and operational aspects of each registry and is an invaluable resource that aids interpretation and evaluation of registry prevalence data. Birth Defects Research (Part A) 91: S51-S100, 2011. (C) 2011 Wiley-Liss, Inc.
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