| 1. |
- Kamsvåg, Tove, 1986-, et al.
(författare)
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Prevention of oral mucositis with cryotherapy in children undergoing hematopoietic stem cell transplantations-a feasibility study and randomized controlled trial
- 2020
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Ingår i: Supportive Care in Cancer. - : Springer Science and Business Media LLC. - 0941-4355 .- 1433-7339.
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Tidskriftsartikel (refereegranskat)abstract
- Purpose To evaluate the feasibility of oral cryotherapy (OC) in children and to investigate if OC reduces the incidence of severe oral mucositis (OM), oral pain, and opioid use in children undergoing hematopoietic stem cell transplantation (HSCT). Methods Fifty-three children, 4-17 years old, scheduled for HSCT in Sweden were included and randomized to OC or control using a computer-generated list. OC instructions were to cool the mouth with ice for as long as possible during chemotherapy infusions with an intended time of >= 30 min. Feasibility criteria in the OC group were as follows: (1) compliance >= 70%; (2) considerable discomfort during OC < 20%; (3) no serious adverse events; and (4) ice administered to all children. Grade of OM and oral pain was recorded daily using the WHO-Oral Toxicity Scale (WHO-OTS), Children's International Oral Mucositis Evaluation Scale, and Numerical Rating Scale. Use of opioids was collected from the medical records. Results Forty-nine children (mean age 10.5 years) were included in analysis (OC = 26, control = 23). The feasibility criteria were not met. Compliance was poor, especially for the younger children, and only 15 children (58%) used OC as instructed. Severe OM (WHO-OTS >= 3) was recorded in 26 children (OC = 15, control = 11). OC did not reduce the incidence of severe OM, oral pain, or opioid use. Conclusion The feasibility criteria were not met, and the RCT could not show that OC reduces the incidence of severe OM, oral pain, or opioid use in pediatric patients treated with a variety of conditioning regimens for HSCT.
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| 2. |
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| 3. |
- Börjeson, Martin, 1959-, et al.
(författare)
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Föreningsidrotten ur ett civilsamhällesperspektiv: idrott i spänningsfältet mellan stat, marknad och familj
- 2009
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Ingår i: Svensk Idrottsforskning. - 1103-4629. ; 18:3, s. 19-25
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Tidskriftsartikel (refereegranskat)abstract
- I denna artikel presenteras ett större forskningsprojekt med syfte att studera och analysera den ideellt organiserade idrotten som samhällsfenomen utifrån ett civilsamhällesperspektiv. Detta har inte tidigare gjorts i Sverige. I teoretiskt avseende handlar det om att utifrån teorier och forskningsresultat i aktuell forskning om det civila samhället generera nya perspektiv och ny kunskap om föreningsidrotten som en del av det svenska civilsamhället. I ett institutionellt avseende handlar det om att utveckla ett vetenskapligt samarbete i korsvägen mellan två forskningstraditioner; dels civilsamhällesforskningen företrädd av Enheten för forskning om det civila samhället vid Ersta Sköndal Högskola, dels samhällsvetenskaplig idrottsforskning företrädd av enheten Idrottsvetenskap vid Malmö Högskola.
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| 4. |
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| 5. |
- Hvenmark, Johan, 1969-, et al.
(författare)
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Revisiting the political nature of corporate philanthropic foundations : the case of Sweden
- 2020
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Ingår i: Handbook on corporate foundations. - Cham, Switzerland : Springer Publishing Company. - 3030257614 - 9783030257613 - 3030257584 - 9783030257583 ; , s. 253-269
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Bokkapitel (refereegranskat)abstract
- Almost a decade ago, it was argued that scholarly knowledge largely overlooked the political nature of foundations in favor of issues related to legislation, board composition, management, and societal contributions. As this argument still seems to apply, the aim of this chapter is to explore the political nature of corporate foundations (CFs). To meet this aim, this chapter draws out the contours of an emergent social imaginary concerning welfare provision from the outlook of CFs. The analysis builds on both survey data regarding CFs in Sweden and interviews with representatives from four different Swedish CFs, concerning the interlock between organizational visions and perceived contributions to welfare in this national context. A main conclusion in the chapter relates to the intermediary position of these organizations as they straddle the boundaries of corporate contexts and a public welfare system where they have a potential to influence both these worlds simultaneously, by carrying norms, values, and practices between them. It is also here that parts of the political significance of CFs can be found—both as expressions and containers of an emergent political vision of welfare in society.
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| 6. |
- Reuther, Christina, et al.
(författare)
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E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer : A qualitative study
- 2024
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Ingår i: Digital Health. - : Sage Publications. - 2055-2076. ; 10
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Tidskriftsartikel (refereegranskat)abstract
- Background: Childhood cancer treatment completion can be a period of vulnerability for parents and is associated with mental health difficulties such as depression and anxiety. We developed an internet-administered, guided, low-intensity cognitive behavioural therapy-based self-help intervention (EJDeR) for parents delivered on the U-CARE-portal (Portal). The acceptability and feasibility of EJDeR and study procedures were examined using a single-arm feasibility trial (ENGAGE). Results indicated that EJDeR and ENGAGE study procedures are acceptable and feasible, however, a need for clinical and technical modifications to EJDeR and refinements to ENGAGE study procedures was identified.Objectives: This study aimed to explore the acceptability and feasibility of EJDeR and ENGAGE study procedures from the perspective of e-therapists to inform clinical and technical modifications to EJDeR and refinements to study procedures prior to progression to a superiority randomised controlled trial.Methods: We conducted semi-structured interviews with 10 e-therapists. Data were analysed using manifest content analysis.Results: We identified three categories relating to the acceptability and feasibility of EJDeR: (a) Support to e-therapists (subcategories: Clinical supervision and Technical difficulties); (b) Guidance to parents (subcategories: Support protocols and Synchronous communication); and (c) Content (subcategories: Relevancy of the intervention and Pacing of the intervention). We identified four categories relating to the acceptability and feasibility of study procedures: (a) Recruitment and training of e-therapists (subcategories: Definition of the role and Training program); (b) Retention of parents (subcategories: Parent suitability and screening and Frequency of weekly Portal assessments); (c) Retention of e-therapists (subcategories: Administrative requirements and Communication with the research team); and (d) The Portal.Conclusions: EJDeR and study procedures were considered acceptable and feasible, however, clinical and technical modifications and refinements to study procedures were suggested to enhance acceptability and feasibility. Results may also inform implementation considerations for both EJDeR and other similar digital psychological interventions.
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| 7. |
- Reuther, Christina, et al.
(författare)
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E-therapists' views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer : A qualitative study
- 2024
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Ingår i: Digital Health. - : Sage Publications. - 2055-2076. ; 10
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Tidskriftsartikel (refereegranskat)abstract
- Background: Childhood cancer treatment completion can be a period of vulnerability for parents and is associated with mental health difficulties such as depression and anxiety. We developed an internet-administered, guided, low-intensity cognitive behavioural therapy-based self-help intervention (EJDeR) for parents delivered on the U-CARE-portal (Portal). The acceptability and feasibility of EJDeR and study procedures were examined using a single-arm feasibility trial (ENGAGE). Results indicated that EJDeR and ENGAGE study procedures are acceptable and feasible, however, a need for clinical and technical modifications to EJDeR and refinements to ENGAGE study procedures was identified.Objectives: This study aimed to explore the acceptability and feasibility of EJDeR and ENGAGE study procedures from the perspective of e-therapists to inform clinical and technical modifications to EJDeR and refinements to study procedures prior to progression to a superiority randomised controlled trial.Methods: We conducted semi-structured interviews with 10 e-therapists. Data were analysed using manifest content analysis.Results: We identified three categories relating to the acceptability and feasibility of EJDeR: (a) Support to e-therapists (subcategories: Clinical supervision and Technical difficulties); (b) Guidance to parents (subcategories: Support protocols and Synchronous communication); and (c) Content (subcategories: Relevancy of the intervention and Pacing of the intervention). We identified four categories relating to the acceptability and feasibility of study procedures: (a) Recruitment and training of e-therapists (subcategories: Definition of the role and Training program); (b) Retention of parents (subcategories: Parent suitability and screening and Frequency of weekly Portal assessments); (c) Retention of e-therapists (subcategories: Administrative requirements and Communication with the research team); and (d) The Portal.Conclusions: EJDeR and study procedures were considered acceptable and feasible, however, clinical and technical modifications and refinements to study procedures were suggested to enhance acceptability and feasibility. Results may also inform implementation considerations for both EJDeR and other similar digital psychological interventions.Trial registration number ISRCTN 57233429
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| 8. |
- Vamstad, Johan, 1977-, et al.
(författare)
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Bygg- och bogemenskaper : Visioner och verklighet från ett svårfångat kunskapsfält
- 2024
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Denna rapport utgör en forskningsöversikt över litteratur som undersökt förutsättningar, möjligheter och utmaningar för hållbart boende i form av bygg- och bogemenskaper. Byggemenskaper är kollektiva projekt där deltagare aktivt bidrar till att skapa sitt framtida boende, med varierande grad av privat och gemensamt utrymme. Bogemenskaper är kollektiva boendeformer med varierande grad av gemenskap, deltagande och styrning. De kan inkludera gemensamma ytor, aktiviteter och tjänster, och de har ofta sociala mål som miljö, integration och hållbarhet.I dag är bygg- och bogemenskaper relativt marginella fenomen på den svenska bostadsmarknaden. Men de skulle kunna vara en del i ett svar på några av våra största samhällsutmaningar. En sådan utmaning är den åldrande befolkningen och de sociala och ekonomiska följder den kommer att få för Sveriges kommuner och regioner. Bogemenskaper har visat sig kunna erbjuda en slags medelväg mellan individuellt boende och institutionsboende som kan bryta social isolering, erbjuda ömsesidigt stöd och skapa en känsla av sammanhang särskilt för äldre.En stor ödesfråga kopplat till byggande och boende är klimatkrisen. Bogemenskaper har också visat sig kunna minska de boendes miljö- och klimatavtryck genom att resurser och utrymmen delas. Byggemenskaper har dessutom visat sig vara ett sätt för miljömedvetna personer att försöka bygga mindre miljöbelastande bostäder åt sig själva genom innovativt användande av ny teknik. Både bygg- och bogemenskaper kan organisera och tillvarata engagemang i miljö- och klimatfrågor, och dessutom kan de i bästa fall verka som ”skolor i miljötänkande” och som skyltfönster för miljö- och klimatsmarta boendeformer.Syftet med denna rapport är att sammanställa existerande kunskap om bygg- och bogemenskaper för att skapa en mer sammanhållen bild av potential och begränsningar för dem i relation till dessa utmaningar. Rapporten försöker besvara följande frågor:Vad kännetecknar bygg-och bogemenskaper?Vilka samhällsvisioner knyts till bygg- och bogemenskaper?Vad kännetecknar de som deltar i bygg- och bogemenskaper?Vilka typer av hinder stöter bygg- och bogemenskaper på?Rapportens resultat visar att det finns många argument för att det ligger i samhällets intresse att verka för fler bygg- och bogemenskaper. Det som framför allt talar emot bygg- och bogemenskaper är att de huvudsakligen verkar attrahera en begränsad del av befolkningen. De som deltar i bygg- och bogemenskaper är vanligtvis socialt engagerade, ofta mer högutbildade och något äldre än allmänheten, och de är mindre heterogena än samhället i övrigt vad gäller etnisk och kulturell bakgrund. Den stora utmaningen förpolitiska ambitioner om att öka antalet bygg- och bogemenskaper är därför att finna sätt att göra dem tillgängliga och attraktiva för fler och bredare grupper i samhället. Därutöver stöter byggemenskaper ofta på hinder vad gäller till exempel finansiering, byggnormer som är dåligt anpassade, och krångliga beslutsprocesser.
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| 9. |
- Vamstad, Johan, 1977-, et al.
(författare)
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Charitable giving in a universal welfare state : Charity and social rights in Sweden
- 2013
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Ingår i: Nonprofit and Voluntary Sector Quarterly. - : SAGE Publications. - 0899-7640 .- 1552-7395. ; 42:2, s. 285-301
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this article is to explore how charitable giving is structured in a universal welfare state. The article presents new data based on more than 200 national fundraising campaigns in Sweden during the past 60 years. The varying success of these campaigns for different causes creates a historical pattern of charitable giving under a social democratic welfare regime. Which causes are still considered urgent and appropriate for donations in a country where welfare is considered to be a social right, and how have these attitudes developed over time? More specifically, the article analyses differences in the success of campaigns for domestic and for international causes, including several subcategories of campaigns. The results not only show that Swedes give considerably more money to causes not addressed by the state but also that charitable giving in Sweden is increasing for all types of causes.
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| 10. |
- Ander, Malin, et al.
(författare)
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Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence : a 10-year follow-up study
- 2016
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Ingår i: Psycho-Oncology. - : Wiley. - 1057-9249 .- 1099-1611. ; 25:5, s. 582-589
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The main aim was to investigate the development of health-related quality of life (HRQOL) and symptoms of anxiety and depression in a cohort diagnosed with cancer during adolescence from shortly after up to 10 years after diagnosis.Methods: Participants (n = 61) completed the SF-36 and the HADS shortly; six, 12, and 18 months; and two, three, four, and 10 years (n = 28) after diagnosis. Polynomial change trajectories were used to model development.Results: Polynomial change trajectories showed an initial increase which abated over time into a decrease which abated over time for the SF-36 subscales Mental Health and Vitality; an initial decline which abated over time into an increase for HADS anxiety; and an initial decline which abated over time into an increase which abated over time for HADS depression. The SF-36 mental component summary showed no change from two to 10 years after diagnosis whereas the SF-36 physical component summary showed an increase from two years after diagnosis which declined over time. Ten years after diagnosis 29% reported possible anxiety.Conclusions: Development of HRQOL and symptoms of anxiety and depression appears to be nonlinear among persons diagnosed with cancer during adolescence. Well into permanent survivorship an increase in symptoms of anxiety is shown and approximately a third of the participants report possible anxiety. The findings indicate the need for: studies designed to pinpoint the times of highest psychological risk, clinical follow-up focusing on psychological problems, and development of effective psychological interventions for survivors of adolescent cancer
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