| 1. |
- Andershed, Birgitta, et al.
(författare)
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An isolated involvement in mental health care : Experiences of parents of young adults.
- 2017
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 26:7-8, s. 1053-1065
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Tidskriftsartikel (refereegranskat)abstract
- AIM: The aim of this study was to explore parents' involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of "Involvement in the light - involvement in the dark" in the context of mental health care.BACKGROUND: Mental illness has increased among young people in high-income countries and suicide is now the leading cause of death for this group. Because of their disease, these young people may have difficulty in carrying out daily, taken-for-granted, tasks. Consequently, they often become dependent on their parents, and their parents shoulder a considerable responsibility.DESIGN AND METHODS: A secondary descriptive design with a deductive content analysis was used. Ten parents who have a son or daughter with long-term mental illness (aged 18 - 25) were interviewed. The deductive analysis was based on the caring theory of "Involvement in the light - Involvement in the dark".RESULTS: The results are described using the following concepts in the theory: "Knowing", "Doing", "Being" and "Attitude of the health professionals". The result are to a great extent consistent with the "Involvement in the dark" metaphor, which describes an isolated involvement in which the parents were not informed, seen or acknowledged by the health professionals. Continuous support by professionals with a positive attitude was described as being of decisive importance for meaningful involvement. This article is protected by copyright. All rights reserved.
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| 2. |
- Ewertzon, Mats, 1956-, et al.
(författare)
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A lonely life journey bordered with struggle : being a sibling of an individual with psychosis
- 2012
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Ingår i: Issues in Mental Health Nursing. - Philadelphia, USA : Informa Healthcare. - 0161-2840 .- 1096-4673. ; 33:3, s. 157-164
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Tidskriftsartikel (refereegranskat)abstract
- Research suggests that siblings of individuals with severe mental illness are affected by the situation of their affected sibling and that the health care services seem to partly fail in meeting their needs for support. The aim of this study was therefore to explore how siblings of individuals with a psychotic illness, and who have participated in a support group, experience their situation. Thirteen informants participated in focus group interviews, which were analysed by inductive content analysis. The findings were interpreted in an overall single theme: A lonely life journey bordered with struggle. This theme consists of three categories: facing existential thoughts, facing ambiguity in approach and engagement, and facing disparate attitudes and expectations.
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| 3. |
- Ewertzon, Mats, et al.
(författare)
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Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
- 2018
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Ingår i: Journal of Advanced Nursing. - : Wiley-Blackwell. - 0309-2402 .- 1365-2648. ; 74:8, s. 1839-1850
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Tidskriftsartikel (refereegranskat)abstract
- AimTo adapt the Family Involvement and Alienation Questionnaire (FIAQ) for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability. BackgroundInvolvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach. To explore this issue, a broad instrument that can be used in different care contexts is needed. DesignA psychometric evaluation study, with a cross-sectional design. MethodThe content validity of the FIAQ was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015-2016). A sample of 325 family members participated, 103 of whom in a test-retest evaluation. Both parametric and non-parametric methods were used. ResultsThe content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the FIAQ (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test-retest reliability. ConclusionThe study provides evidence that the FIAQ (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care.
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| 4. |
- Ewertzon, Mats
(författare)
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Anhöriga till vuxna personer med psykisk ohälsa : en kunskapsöversikt om betydelsen av stöd
- 2015
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Att vara anhörig till en person med psykisk ohälsa kan vara förenat med omfattande svårigheter, men också med empati och kärlek till att vilja hjälpa och stödja sin närstående. Kontakt och stöd från personal inom vård och omsorg och andra anhöriga med liknande erfarenheter kan vara betydelsefullt för att hantera situationen. Trots goda intentioner i svenska styrdokument framkommer i flera utredningar och forskning, att anhörigas behov av kontakt och anpassat stöd från vård och omsorg inte alla gånger tillgodoses i tillräcklig omfattning.Syftet med föreliggande kunskapsöversikt är därför att presentera exempel på stödjande insatser för vuxna anhöriga (18 år eller äldre), till vuxna personer (18 år eller äldre) med psykisk ohälsa och den dokumenterade betydelse och/eller effekt som stödet kan ha för anhöriga. Det skall tilläggas att syftet inte är att jämföra eller dra slutsatser om vilka stödinsatser som är mest betydelsefulla eller effektiva.Litteratursökning av svensk och internationell forskning och utvecklingsarbeten genomfördes i olika databaser. Sökningen omfattade aspekter som: psykisk ohälsa, anhöriga, stöd och betydelse samt effekt. Efter en första granskning av 854 studier bedömdes slutligen 54 vara relevanta för kunskapsöversiktens syfte och frågeställningar. Av dessa har 18 studier genomförts i Sverige. Studierna är genomförda med såväl kvantitativa som kvalitativa metoder.Vid tematisk analys av studierna framkom två huvudområden. Det ena omfattade stöd från personal inom hälso- och sjukvård och socialtjänst. Det delades in i sex delområden; psykopedagogiska interventioner, telefonrådgivning i grupp, webbaserat stöd, samtal och bemötande, delaktighet i vård och omsorg, samt vård och omsorg till den närstående med psykisk ohälsa. Det andra huvudområdet omfattade stöd från personer med egen erfarenhet som anhörig till person med psykisk ohälsa, omfattande tre delområden; ömsesidiga stödgrupper, individuella samtalsträffar och stöd via telefon.Insatserna hade genomförts i grupp eller individuellt likväl som direkt eller indirekt stöd, där indirekt stöd främst riktades till den närstående med psykisk ohälsa, vilket i sin tur kan underlätta situationen för anhöriga. Innehållet i insatserna hade stora variationer. Några återkommande aspekter var information, utbildning, rådgivning, problemlösning och stresshantering, delaktighet i vård och omsorg, bemötande från personal och erfarenhetsutbyte med andra anhöriga. Resultatet indikerar att stödinsatserna på många olika sätt kan vara betydelsefulla för anhöriga själva, såväl fysiskt, psykiskt som socialt, men också av betydelse för att hantera situationen och på så sätt stödja sin närstående med psykisk ohälsa. Psykopedagogiska interventioner och ömsesidiga stödgrupper som leds av andra anhöriga var de insatser som omfattade flest studier, såväl systematiska forskningsöversikter som enskilda studier. Resultaten av dessa indikerade minskad belastning, ökad kunskap om sjukdomen och behandling, samt ökad möjlighet att hantera situationen.Några studier indikerade också att inställningen till den närstående med psykisk ohälsa hade förändrats, samt att socialt stöd i grupp var betydelsefullt för att minska social isolering och känsla av ensamhet. Utvärderingarna hade i nästan alla studier genomförts inom ett år efter insatsen avslutats, vilket medför betydande begränsningar i vilken långtidseffekt insatserna haft. Insatserna genomfördes av olika organisationer och personer, som landsting, kommun, intresseorganisationer, privat och projekt under avgränsad tid. I några studier genomfördes de i samarbete mellan flera organisationer.Resultatet i kunskapsöversikten är inte en total kartläggning av forskning som genomförts om stöd för anhöriga till personer med psykisk ohälsa. Det är exempel på olika former av stöd och där det finns utvärdering som beskriver dess betydelse. Det finns säkerligen fler studier som beskriver detta område som inte inkluderats i resultatet, både i Sverige och internationellt. Allt som framkommer i resultatet är inte överförbart eller generaliserbart i andra sammanhang än där det genomförts. Detta på grund av metodologiska begränsningar i vissa studier eller att det finns geografiska, kulturella eller andra aspekter som begränsar resultatens överförbarhet.Utifrån resultatet av kunskapsöversikten och från anhörigas erfarenheter i andra sammanhang, kan följande områden ses som betydelsefulla att beakta vid förändring och utveckling av stöd till anhöriga:Information på samhällsnivå; information om var vård för personer med psykisk ohälsa och stöd för anhöriga finns att tillgå.Strukturerade former av anhörigstöd; olika former av psykopedagogiska insatser, ömsesidiga stödgrupper, webbaserat stöd och individuellt samtalsstöd.Bemötande från personal inom vård och omsorg. ➢ Anhörigas delaktighet i vård och omsorg.Beaktande av sekretessen ur anhörigas och deras närståendes perspektiv såväl som ur vård- och omsorgspersonals perspektiv.Vård och omsorg av den närstående som också beaktar anhörigas behov av trygghet.Att utveckling sker i nära samarbete mellan vård och omsorg, samt intresseorganisationer så att allas kompetens och erfarenhet tas tillvara.Förhoppningen är att dessa exempel på stöd som framkommit i kunskapsöversikten kan bidra till kunskap och inspiration för utveckling och förändring av stödjande insatser för vuxna anhöriga som har en vuxen närstående med psykisk ohälsa. Det är också betydelsefullt att det ges förutsättningar till fortsatt dokumentation och utvärdering av insatser som andra kan ta del av.
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| 5. |
- Ewertzon, Mats, 1956-, et al.
(författare)
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Developing the concept of family involvement and the alienation questionnaire in the context of psychiatric care
- 2008
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Ingår i: International Journal of Mental Health Nursing. - London : Wiley- Blackwell. - 1445-8330 .- 1447-0349. ; 17:6, s. 439-449
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Tidskriftsartikel (refereegranskat)abstract
- Research shows that family members of persons with a mental illness often experience a lack of involvement in the psychiatric care of their relative. An interpretation of the findings of these studies raises the question whether the family members’ experience of not being involved can be conceptualised in terms of alienation towards mental health services from their encounter with psychiatric care. In order to explore this possibility, the Family Involvement and Alienation Questionnaire (FIAQ) was constructed, guided by relevant theoretical frameworks and empirical research. The content validity of the questionnaire was evaluated by two groups of experienced researchers who had sound knowledge of the theoretical frameworks used. Validity based on the response process was evaluated by parents of persons with mental illness. The reliability of the questionnaire was evaluated by a test-retest design, in a group of 15 family members. The data were analysed by a non-parametric statistical method. The results of the validity and reliability evaluations show that of the 46 original items 28 items in the questionnaire would be useful in exploring the concept of family involvement and alienation in the context of psychiatric care. Further, minor modification may make the FIAQ useful in exploring these concepts in other settings.
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| 6. |
- Ewertzon, Mats, 1956-
(författare)
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Familjemedlem till person med psykossjukdom : bemötande och utanförskap i psykiatrisk vård
- 2012
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis focused on the situation of family members of persons with psychotic illness, particular on their experience of the approach of the healthcare professionals and of their feelings of alienation regarding the professional care of their family member. A further aim was to explore how siblings who have participated in a support group for siblings experienced their situation.A questionnaire was developed that enabled the aims of this thesis to be investigated (I). Seventy family members from various parts of Sweden participated, and data were collected via the questionnaire developed in study I (II-III). Thirteen siblings who previously had participated in a support group participated in follow-up focus groups interviews (IV).The questionnaire developed was shown to be reliable and valid in these studies (I). In many cases, the participants had experienced an approach from professionals that indicated that they did not experience openness, confirmation and cooperation, and that they felt powerless and socially isolated in relation to the care. There was also found to be a certain degree of association between how the participants experienced the approach and whether they felt alienation (II). The majority of the participants considered openness, confirmation, and cooperation to be important aspects of professional’s approach. The result also identified a low level of agreement between the participants’ experience and what they considered to be significant in the professional’s approach (III). The findings revealed the complexity of being a sibling of an individual with psychotic illness. Participating in a support group for siblings can be of importance in gaining knowledge and minimizing feelings of being alone (IV).Although the psychiatric care services in Sweden have been aware of the importance of cooperating with family members, the results indicated that there is a need for further research in this area.
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| 7. |
- Ewertzon, Mats, et al.
(författare)
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Family member's expectation of the psychiatric healthcare professionals' approach towards them
- 2011
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Oxford : Blackwell Publishing. - 1351-0126 .- 1365-2850. ; 18:2, s. 146-157
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Tidskriftsartikel (refereegranskat)abstract
- The importance of involving family members in the care of individuals with schizophrenia or other psychotic illnesses has received increasing attention within psychiatric health-care services. However, several studies suggest that family members often experience a lack of involvement. Furthermore, research indicates that family members’ experience of the professional’s approach has bearing on whether they feel involved or not. Thus, the aims of this study were to investigate the level of importance that the family members of individuals with schizophrenia or other psychotic illnesses ascribe to the professionals’ approach, the level of agreement between their experiences and what they consider as important, and aspects they consider to be important with regards to contact with professionals. Seventy family members from various parts of Sweden participated. Data were collected by the Family Involvement and Alienation Questionnaire and open-ended questions. The median level and quartiles were used to describe the distribution, and percentage agreement was analysed. Open-ended questions were analysed by qualitative content analysis. The results reveal that the majority of the participants consider Openness, Confirmation, and Cooperation as important aspects of a professional’s approach. Continuity emerged as an additional aspect. The results show a low level of agreement between the participants’ experience and what they consider as important.
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| 8. |
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| 9. |
- Ewertzon, Mats, 1956-, et al.
(författare)
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Family members' involvement in psychiatric care : experiences of the healthcare professionals' approach and feeling of alienation
- 2010
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Ingår i: Journal of Psychiatric and Mental Health Nursing. - Oxford : Blackwell Publishing. - 1351-0126 .- 1365-2850. ; 17:5, s. 422-432
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Tidskriftsartikel (refereegranskat)abstract
- The involvement of family members in psychiatric care is important for the recovery of persons with psychotic disorders and subsequently reduces the burden on the family. Earlier qualitative studies suggest that the participation of family members can be limited by how they experience the professionals’ approach, which suggests a connection to the concept of alienation. Thus, the aim of this study was in a national sample investigate family members’ experiences of the psychiatric health-care professionals’ approach. Data were collected by the Family Involvement and Alienation Questionnaire (FIAQ). The median level and quartiles were used to describe the distributions and data were analysed with non-parametric statistical methods. Seventy family members of persons receiving psychiatric care participated in the study. The results indicate that a majority of the participants respond that they have experiencing a negative approach from the professionals, indicating lack of confirmation and cooperation. The results also indicate that a majority of the participants felt powerlessness and social isolation in the care being provided, indicating feelings of alienation. A significant but weak association was found between the family members´ experiences of the professionals´ approach and their feelings of alienation.
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| 10. |
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