| 1. |
- Berntsson, Shala G., 1964-, et al.
(författare)
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Cerebellar ataxia and intrathecal baclofen therapy : Focus on patients´ experiences
- 2017
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Ingår i: PLOS ONE. - : Public Library of Science (PLoS). - 1932-6203. ; 2:6
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Tidskriftsartikel (refereegranskat)abstract
- Elucidating patients´ experiences of living with chronic progressive hereditary ataxia and the symptomatic treatment with intrathecal baclofen (ITB) is the objective of the current study. A multicenter qualitative study with four patients included due to the rare combination of hereditary ataxia and ITB therapy was designed to elucidate participants' experiences through semi-structured interviews. The transcribed text was analyzed according to content analysis guidelines. Overall we identified living in the present/ taking one day at a time as the main theme covering the following categories: 1) Uncertainty about the future as a consequence of living with a hereditary disease; The disease; 2) Impact on life as a whole, 3) Influence on personal life in terms of feeling forced to terminate employment, 4) Limiting daily activities, and 5) ITB therapy, advantages, and disadvantages. Uncertainty about the future was the category that affected participants' personal life, employment, and daily activities. The participants' experience of receiving ITB therapy was expressed in terms of improved quality of life due to better body position and movement as well as better sleep and pain relief.
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| 2. |
- Davallius, Carl-Axel, 1960-, et al.
(författare)
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Hälsorelaterad information via Internet : Hinder och möjligheter för individen
- 2006
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Ingår i: Vård i Norden. - 0107-4083 .- 1890-4238. ; 26:4, s. 37-40
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Tidskriftsartikel (refereegranskat)abstract
- Increasingly people use the Internet to find health-related information. However, to obtain information of good quality there may be obstacles. The aim of this literature review was to gain knowledge about use of the Internet in developing health related knowledge. Two questions were posted: What factors can be obstacles in understanding health-related information on the Internet? What effects can health related information obtained from the Internet have for the user? In a systematic search in CINAHL and Pubmed, and a systematic review of two specific journals from the years 2000 to 2004, 14 scientific articles were found. Use of the Internet is related to the individual’s age, socio-economical factors, ethnicity, and health. Information obtained from the Internet may influence the patient-caregiver relation, as well as the individual’s sense of security and independence. There are learning needs for the individual in how to use the Internet and needs for improvement of the search-engines and websites
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| 3. |
- Davallius, Carl-Axel, et al.
(författare)
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Quality of some Swedish websites on ‘Heart attack’ assessed with the EU quality criteria
- 2009
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Ingår i: Vård i Norden. - Oslo, Norge : Sykepleiernes Samarbeid i Norden. - 0107-4083 .- 1890-4238. ; 29:1, s. 9-13
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To evaluate quality of websites containing health information about heart attack in the Swedish language, accessible via one common used search engine available to the general public. Background: Increasingly, information about different health problems is sought on the Internet. From a layman perspective, such information can be hard to find, to understand and to trust. Health care professionals should be able to inform and teach the individual safe ways of finding health information of good quality on the Internet, which involves assessments of the websites. Methods: In one common used search engine, the Google, one search was performed during February 2006. Seventy websites were evaluated using one or all the European Union (EU) quality criteria. Findings: No website met all the criteria, but websites found on the search engines first search pages, met the criteria in the best way. Those websites were primarily aimed at mediating health information to the general public provided by government authorities, county councils, universities and companies. Conclusions: Ethnic minority groups, and individuals with low literacy skills/or visual impairments, may have difficulties finding suitable information. The EU quality criteria need to be refined in order to better assess the quality on different kind of websites.
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| 4. |
- Engström, Maria, 1958-, et al.
(författare)
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Thalamo-striato-cortical determinants to fatigue in multiple sclerosis
- 2013
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Ingår i: Brain and Behavior. - : Wiley. - 2162-3279 .- 2162-3279. ; 3:6, s. 715-728
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Tidskriftsartikel (refereegranskat)abstract
- Background The aim was to explore the thalamo-striato-cortical theory of central fatigue in multiple sclerosis (MS) patients with self-reported fatigue. If the theory correctly predicted fatigue based on disruptions of the thalamo-striato-cortical network, we expected altered brain activation in this network in MS participants while performing a complex cognitive task that challenged fatigue. Methods
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| 5. |
- Fex, Angelika, 1955-, et al.
(författare)
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Health–illness transition among persons using advanced medical technology at home
- 2011
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Ingår i: Scandinavian Journal of Caring Sciences. - : Blackwell. - 0283-9318 .- 1471-6712. ; 25:2, s. 253-261
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Tidskriftsartikel (refereegranskat)abstract
- This study aimed to elucidate meanings of health–illness transition experiences among adult persons using advanced medical technology at home. As an increasing number of persons perform self-care while using different sorts of advanced medical technology at home, knowledge about health–illness transition experiences in this situation may be useful to caregivers in supporting these patients. A qualitative design was used. Five women and five men, all of whom performed self-care at home, either using long-term oxygen therapy from a ventilator or oxygen cylinder, or performing peritoneal or haemodialysis, were interviewed. Ethics committee approval was obtained. Informed consent was received from all participants, and ethical issues concerning their rights in research were raised. The interviews were analysed using a phenomenological hermeneutical methodology, including both an inductive and a deductive structural analysis. This method offers possibilities to obtain an increased understanding by uncovering a deeper meaning of lived experiences through interviews transcribed as texts. The health–illness transition for adult persons in this context was found to mean a learning process of accepting, managing, adjusting and improving daily life with technology, facilitated by realizing the gain from technology at home. Further, the meaning of the health–illness transition experience was interpreted as contentment with being part of the active and conscious process towards transcending into a new state of living, in which the individual and the technology were in tune. The healthy transition experience was characterized by human growth and becoming. This study elucidates one meaning of health–illness transition experiences in relation to the use of advanced medical technology on a more generic level, independent of the specific type of technology used. A positive attitude towards technology at home facilitates the transition.
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| 6. |
- Fex, Angelika, 1955-, et al.
(författare)
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Living with an adult family member using advanced medical technology at home
- 2011
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Ingår i: Nursing Inquiry. - : Wiley. - 1320-7881 .- 1440-1800. ; 18:4, s. 336-347
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Living with an adult family member using advanced medical technology at home An increased number of chronically ill adults perform self-care while using different sorts of advanced medical technology at home. This hermeneutical study aimed to gain a deeper understanding of the meaning of living with an adult family member using advanced medical technology at home. Eleven next of kin to adults performing self-care at home, either using long-term oxygen from a cylinder or ventilator, or performing peritoneal or haemodialysis, were interviewed. The qualitative interviews were analysed using a Gadamerian methodology. The main interpretation explained the meaning as rhythmical patterns of connectedness versus separation, and of sorrow versus reconciliation. Dependence on others was shown in the need for support from healthcare professionals and significant others. In conclusion, next of kin took considerable responsibility for dependent-care. All next of kin were positive to the idea of bringing the technology home, even though their own needs receded into the background, while focusing on the best for the patient. The results were discussed in relation to dependent-care and transition, which may have an influence on the self-care of next of kin and patients. The study revealed a need for further nursing attention to next of kin in this context.
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| 7. |
- Fex, Angelika, 1955-, et al.
(författare)
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Self-care agency and perceived health among people using advanced medical technology at home
- 2012
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Ingår i: Journal of Advanced Nursing. - : Wiley. - 0309-2402 .- 1365-2648. ; 68:4, s. 806-815
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Tidskriftsartikel (refereegranskat)abstract
- Aim.This article reports a study of self-care agency and perceived health in a groupof people using advanced medical technology at home. Background.An increasing number of people are using medical technology for selfcare.Few studies describe daily life in this context at an overriding level, irrespectiveof the specific sort of technology. A connection between self-care, perceived healthand sense of coherence has previously been implied. Methods.A descriptive, comparative, cross-sectional quantitative design was used.Data were collected from a questionnaire during the winter of 2009/2010. Thequestionnaire addressed perceived health and daily life with medical technology.Swedish versions of the Appraisal of Self-care Agency scale and the 13-item versionof Antonovsky’s sense of coherence scale were included. Results.The questionnaire was answered by 180 adults performing self-care athome involving long-term oxygen, a ventilator, or peritoneal- or haemo-dialysis.Health-related and technology-related variables in daily life were mostly highlysatisfactory. Perceived health was rated significantly lower among participants usinglong-term oxygen. Sufficient sense of coherence, knowledge of how to use technology,close contact with others and not feeling helpless contributed positively toself-care agency. Positive contributing factors for perceived health were being satisfiedwith life, having an active life and not feeling helpless, whereas age was anegative factor. Conclusion.Daily life is manageable for people in this context. Long-term oxygentreatment and advanced age can be regarded as risk factors for perceiving ill health.
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| 8. |
- Flensner, Gullvi, 1945-, et al.
(författare)
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A pathway towards reconciliation and wellbeing : A spouse's experiences of living with a partner diagnosed with early-onset dementia
- 2018
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Ingår i: Nordisk sygeplejeforskning. - : Scandinavian University Press / Universitetsforlaget AS. - 1892-2678 .- 1892-2686. ; 8:02, s. 136-149
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Tidskriftsartikel (refereegranskat)abstract
- When someone falls ill with dementia it affects the whole family. Therefore, the aim of thisqualitative single case study was to increase understanding of one female spouse´s experiencesof living with a husband/partner diagnosed with early-onset dementia before the ageof 40 years. Two open-ended interviews with the female spouse were performed sixmonths apart and analysed for narrative structure and themes. The single case is describedin the form of a story and organised along a time line comprising four phases; «Somethingis wrong», «Becoming aware of what is wrong», «Life is restricted» and «Towards reconciliation».Healthcare professionals should meet spouses with respect, listen to them and providepractical support, thus giving them the opportunity to rest, obtain respite and time ontheir own to enable reconciliation and wellbeing.
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| 9. |
- Flensner, Gullvi, 1945-
(författare)
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Det vetenskapliga ämnet
- 2014. - 2.
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Ingår i: Att bli sjuksköterska. - Lund : Studentlitteratur AB. - 9789144089782 ; , s. 85-106
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Bokkapitel (populärvet., debatt m.m.)
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| 10. |
- Flensner, Gullvi, 1945-
(författare)
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Det vetenskapliga ämnet
- 2010. - 1
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Ingår i: Att bli sjuksköterska. - Lund : Studentlitteratur. - 9789144054117 ; , s. 85-107
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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