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| 2. |
- Gholiha, Alex, et al.
(författare)
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Stora luckor i journaler vid vård i livets slutskede : Journaluppgifter saknas för data inrapporterade till Palliativregistret
- 2011
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Ingår i: Läkartidningen. - : Sveriges läkarförbund. - 0023-7205 .- 1652-7518. ; 108:16-17, s. 918-921
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Tidskriftsartikel (refereegranskat)abstract
- Dokumentation av vårdåtgärder och bedömningar är väsentlig för en optimal palliativ vård. I denna studie har vi jämfört åtgärder som inrapporterats till Svenska palliativregistret i samband med dödsfall med den befintliga journaldokumentationen. Genom slumpmässigt urval deltog totalt 14 registeraktiva vårdenheter representerande de fem vanligaste enhetstyperna. De tio senaste dödsfallen på varje enhet granskades med fokus på vårdinnehållet sista veckan i livet. Bristfällig journaldokumentation noterades i stor utsträckning (8–76 procent). Behovet av tydliga sökord är stort för att såväl läkares som sjuksköterskors journaldokumentation ska kunna leva upp till modern standard vad gäller palliativa vårdinsatser i livets slutskede.
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| 3. |
- Lundstrom, Staffan, et al.
(författare)
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Developing a national quality register in end-of-life care: The Swedish experience
- 2012
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Ingår i: Palliative Medicine. - : SAGE Publications (UK and US). - 0269-2163 .- 1477-030X. ; 26:4, s. 313-321
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Tidskriftsartikel (refereegranskat)abstract
- Background: The complexity of end-of-life care, represented by a large number of units caring for dying patients, different types of organizations and difficulties in identification and prognostication, signifies the importance of finding ways to measure the quality of end-of-life care. less thanbrgreater than less thanbrgreater thanAim: To establish, test and manage a national quality register for end-of-life care. less thanbrgreater than less thanbrgreater thanDesign: Two questionnaires were developed with an attempt to retrospectively identify important aspects of the care delivered during the last week in life. An internet-based IT platform was created, enabling the physician and/or nurse responsible for the care during the last week in life to register answers online. less thanbrgreater than less thanbrgreater thanSetting: Units caring for dying people, such as hospital wards, home care units, palliative in-patient care units and nursing facilities. less thanbrgreater than less thanbrgreater thanResults: The register received status as a National Quality Register in 2006. More than 30,000 deaths in nursing facilities, hospital wards, palliative in-patient units and private homes were registered during 2010, representing 34% of all deaths in Sweden and 58% of the cancer deaths. less thanbrgreater than less thanbrgreater thanConclusions: We have shown that it is feasible to establish a national quality register in end-of-life care and collect data through a web-based system. Ongoing data analyses will show in what way this initiative can lead to improved quality of life for patients and their families. There is an ongoing process internationally to define relevant outcome measures for quality of care at the end-of-life in different care settings; the registry has a potentially important role in this development.
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| 4. |
- Martinsson, Lisa, et al.
(författare)
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Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care
- 2011
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Ingår i: ACTA ONCOLOGICA. - : Informa Healthcare. - 0284-186X .- 1651-226X. ; 50:5, s. 642-647
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Tidskriftsartikel (refereegranskat)abstract
- Quality in health care is important to measure and palliative care is no exception. The Swedish Register of Palliative Care (SRPC) is a national quality register that focuses on the last week of life. It collects data with an end of life questionnaire (ELQ), which is validated in this study. Material and methods. This study included 169 consecutive patients who had died at a palliative unit. That unit had developed a computerized end of life medical record module that enabled a comparison between reported data and medical records, illustrating the validity of the registry questionnaire. The paper versions of the ELQs filled in at the unit were also inspected to determine the extent of registration mistakes when completing the web questionnaire. Results. Data from the medical records and data from the ELQs reported to the SRPC showed a congruity of 22 to 100%. A working limit of acceptable congruity was set to 80%. Eight questions fell below that line. Some of these differences were caused by systematic errors. The paper versions filled in at the unit and the data from the ELQs reported to the SRPC had a congruity of between 96% and 100%, with the exception of one question about pain evaluation, which had 91% congruity. Discussion. The results in this study will be used to improve and further develop the register. Some questions need to be more specific to promote more valid registrations. Consensus on quality issues in end-of-life care would simplify the work of writing and answering the questionnaire. It is desirable to perform a similar study at hospital wards that do not specialize in palliative care; however, the anticipated lack of palliative documentation could make such a study difficult to perform.
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