| 1. |
- Frid, Ingvar, 1945, et al.
(författare)
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Brain death: close relatives' use of imagery as a descriptor of experience.
- 2007
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Ingår i: Journal of advanced nursing. - : Wiley. - 0309-2402 .- 1365-2648. ; 58:1, s. 63-71
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Tidskriftsartikel (refereegranskat)abstract
- AIM: This paper is a report of a study to explore the use of imagery to describe the experience of confronting brain death in a close relative. BACKGROUND: The brain death of a loved one has been described as an extremely difficult experience for close relatives, evoking feelings of anger, emotional pain, disbelief, guilt and suffering. It can also be difficult for relatives to distinguish brain death from the state of coma and thus difficult to apprehend information about the diagnosis. METHODS: Narrative theory and a hermeneutic phenomenological method guided the interpretation of 17 narratives from close relatives of brain dead patients. All narratives were scrutinized for experiences of brain death. Data were primarily collected in 1999. The primary analysis related to close relatives' experience of brain death in a loved one. A secondary analysis of the imagery they used to describe their experience was carried out in 2003. FINDINGS: Six categories of imagery used to describe the experience of confronting a diagnosis of brain death in a loved one emerged: chaotic unreality; inner collapse; sense of forlornness; clinging to the hope of survival; reconciliation with the reality of death; receiving care which gives comfort. Participants also identified two pairs of dimensions to describe their feelings about the relationship between their brain dead relative's body and personhood: presence-absence and divisibility-indivisibility. Being confronted with brain death meant entering into the anteroom of death, facing a loved one who is 'living-dead', and experiencing a chaotic drama of suffering. CONCLUSION: It is very important for members of the intensive care unit team to recognize, face and respond to these relatives' chaotic experiences, which cause them to need affirmation, comfort and caring. Relatives' use of imagery could be the starting point for a caring conversation about their experiences, either in conversations at the time of the death or when relatives are contacted in a later follow-up.
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| 2. |
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| 3. |
- Frid, Ingvar, 1945, et al.
(författare)
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On the use of narratives in nursing research
- 2000
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Ingår i: Journal of Advanced Nursing. - 0309-2402. ; 32:3, s. 695-703
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Tidskriftsartikel (refereegranskat)abstract
- On the use of narratives in nursing research Narratives have always been a path to knowledge in nursing care but are a recent element within nursing research. Therefore, this article deals with the narrative and its use within nursing research. First, the use of narratives in nursing care and nursing research is examined. Second, Paul Ricoeur's narrative theory with its dimensions of interpretation, time, action and ethics is presented as a possible methodological basis. Third, the use of Ricoeur's narrative theory in nursing research is examined, showing that, at present, support mainly comes from Ricoeur's text interpretation theory. Finally, a nursing research approach to the narrative, based on the life-world, is suggested. PMID: 11012814 [PubMed - indexed for MEDLINE]
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| 5. |
- Nilsson, Stefan, 1972, et al.
(författare)
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Evaluating pictorial support in person-centred care for children (PicPecc) : A protocol for a crossover design study
- 2021
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Ingår i: BMJ Open. - : BMJ Publishing Group Ltd. - 2044-6055. ; 11:5
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Tidskriftsartikel (refereegranskat)abstract
- Introduction This study protocol outlines the evaluation of the pictorial support in person-centred care for children (PicPecc). PicPecc is a digital tool used by children aged 5-17 years to self-report symptoms of acute lymphoblastic leukaemia, who undergo high-dose methotrexate treatments. The design of the digital platform follows the principles of universal design using pictorial support to provide accessibility for all children regardless of communication or language challenges and thus facilitating international comparison.Methods and analysis Both effect and process evaluations will be conducted. A crossover design will be used to measure the effect/outcome, and a mixed-methods design will be used to measure the process/implementation. The primary outcome in the effect evaluation will be self-reported distress. Secondary outcomes will be stress levels monitored via neuropeptides, neurosteroids and peripheral steroids indicated in plasma blood samples; frequency of in-app estimation of high levels of distress by the children; children's use of analgesic medicine and person centeredness evaluated via the questionnaire Visual CARE Measure. For the process evaluation, qualitative interviews will be carried out with children with cancer, their legal guardians and case-related healthcare professionals. These interviews will address experiences with PicPecc in terms of feasibility and frequency of use from the child's perspective and value to the caseworker. Interview transcripts will be analysed using an interpretive description methodology.Ethics and dissemination Ethical approval was obtained from the Swedish Ethical Review Authority (reference 2019-02392; 2020-02601; 2020-06226). Children, legal guardians, healthcare professionals, policymaking and research stakeholders will be involved in all stages of the research process according to Medical Research Council's guidelines. Research findings will be presented at international cancer and paediatric conferences and published in scientific journals.Trial registration ClinicalTrials.gov; NCT04433650.
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| 6. |
- Segesten, K, et al.
(författare)
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Kommentarer
- 2004
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Ingår i: Närståendes behov. - Stockholm : Svensk sjuksköterskeförening. ; , s. 112-5
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 7. |
- Sundin, Anders, 1966, et al.
(författare)
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Prerequisites for extensive computer manikin analysis - An example with hierarchical task analysis, file exchange protocol and a relational database
- 2001
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Ingår i: SAE Digital Human Modeling for Design and Engineering International Conference and Exposition.
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Konferensbidrag (refereegranskat)abstract
- In this case study, a human factors engineering (HFE) analysis was carried out in the preliminary design phase of the Cupola. Cupola is a European Space Agency (ESA) module for manned space flights for the International Space Station (ISS) as part of a Barter Arrangement between ESA and the United States National Aeronautics and Space Administration (NASA). Manikin software was used early in the design process before the production of any flight hardware. The manikin analysis was supported by the use of hierarchical task analysis, a file exchange protocol and a relational database. This paper describes methodological aspects of the use of the supporting methods. Results show that hierarchical task analysis, a file exchange protocol and a relational database are prerequisites for successful extensive manikin analysis.
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| 8. |
- Öhlén, Joakim, 1958, et al.
(författare)
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Berättelseforskning i Sverige – några exempel
- 2004
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Ingår i: Berättelsens praktik och teori - narrativ forskning i ett hermeneutiskt perspektiv, Carola Skott (red.). - Lund : Studentlitteratur. - 9789144033365 ; , s. 51-64, s. 51-63
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 9. |
- Öhlen, Joakim, 1958-, et al.
(författare)
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Relatives in end-of-life care – part 2 : a theory for enabling safety
- 2007
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 16:2, s. 382-390
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To develop a goal-oriented praxis theory for enabling safety for relatives when an adult or older patient is close to end-of-life.BACKGROUND: This is the second part of a project focusing on the situation and needs of relatives in end-of-life care. Our interpretation of the existing corpus of knowledge pertaining to the needs of close relatives in this situation showed the significance of relatives' need for safety.METHOD: The theory was developed step-by-step, through triangulation of critical review of empirical research in the field, our own clinical experiences from end-of-life care, renewed literature searches and theoretical reasoning.THEORY: The foundation for the theory is taken from the ethical intention of the philosopher Paul Ricoeur. From this, the theory focuses on relatives in the context of end-of-life care with the goal of enabling safety. This is proposed by four aphorisms functioning as safety enablers and these are directed towards the professional's approach and attitude, the relative's concern for the patient, the specific situation for the relative and the patient's end-of-life period as a period in the life of the relative.RELEVANCE TO CLINICAL PRACTICE: Implications for end-of-life practice are considered and include aspects for promotion of just institutions in end-of-life care, the significance of negotiated partnership in end-of-life care, enabling safety for relatives living in existential and practical uncertainty in connection with end-of-life care and diversity of relatives' preferences as they live through this particular period.
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