| 1. |
|
|
| 2. |
|
|
| 3. |
|
|
| 4. |
|
|
| 5. |
- Skeppner, Elisabet, et al.
(författare)
-
Dyadic aspects of sexual well-being and penile carcinoma : a prospective study
-
Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Introduction. Coping with a diagnosis of cancer and, its treatment and recovery is a dyadic process within a relationship. Sexual dysfunctions and problems of penile cancer may add to the demands of coping. There are clinical reasons to view a couple’s sexuality, alone and together, as dependent factors for successful treatment.Aim. The prospective study aimed to describe the dyadic aspects of sexual well-being and life satisfaction before and one year after organ-sparing laser treatment of penile carcinoma.Methods. A consecutive series of 29 patients with penile carcinoma suitable for laser treatment were included together with their partners; median age was 60 (37-73) years and 57 (30-72) years, respectively. Length of partner relationship ranged between 1 and 54 years; median 29 years. The participants completed structured interviews before treatment, and at 6 months’ and 12 months’ follow-up. The interview addressed sexual activities, sexual functions, verbal (sexual) communication skills, and life satisfaction.Main outcome measures. The interviews contained almost the same questions for patients and partners at all three measuring points. Moreover, three well-validated instruments were included: HADS, IIEF-5, and LiSat-11. Most of the questions were extracted from a national representative study of Swedish men and women and from this sample an ad hoc comparator population of 935 men and 809 women was selected.Results. There were no significant differences between interview data at 6 and 12 months’ follow-up. Eight out of 29 couples had not been sexually active for several years before diagnosis and did not resume activity; further 4 couples had ceased having penetrative intercourse at follow-up. Sexual dysfunctions were common among men, especially decreased sexual interest and dyspareunia and about a fourth of the women had decreased vaginal lubrication before treatment. At follow-up increased sexual function was found, with the exception of erectile function and partners’ orgasm. The couples showed within-couple agreement concerning sexual activities, erectile dysfunction, retarded ejaculation, and lubrication dysfunction. Relatively few (41%) had an ongoing verbal mutual communication about their sexuality. Overall life satisfaction was found to be at par with the general population as most of domains of closeness, health, leisure and provision. Exceptions were patients somatic health and, at follow-up, sexual satisfaction. Couples with an active partner-related sexual life at follow-up showed coherence in high satisfaction with life as a whole. Sexually inactive couples showed coherence in being dissatisfied with their sexual life at baseline as well as after 12 months.
|
|
| 6. |
- Skeppner, Elisabet [Elisabeth], 1962-
(författare)
-
Penile carcinoma : from first symptom to sexual function and life satisfaction following organ-sparing laser treatment
- 2012
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The overall aim of this thesis was to describe how patients with penile carcinoma experienced their symptoms, treatment seeking and the impact of the diagnosis and treatment on sexual function, sexual activity and life satisfaction. The thesis contains two studies of patients treated with organ-sparing laser therapy, a retrospective study (Papers II and III) of 46 patients treated between 1986-2000 and a prospective study (Papers I and IV) of 50 patients between 2005 and 2009 and additional 34 partners. In both studies face-to-face interviews were used with a structured questionnaire; and self-assessment instruments IIEF-5, LiSat-11, and HADS. An ad hoc comparator population of men aged 34–74 years from a nationally representative investigation of sexual life and life satisfaction in Swedes was chosen for some of the questions concerning sexuality and life satisfaction. We found a delay of more than 6 months in 37% of the patients in the retrospective study and 65% of the patients in the prospective study. The single most important reason for patients’ delay was embarrassment. Nine patients had a doctors’ delay of more than 3 months from first special visit until diagnosis. Eight of these patients consulted dermatologists and were subjected to repeated biopsies, leaving premalignant results (I, II). All patients younger than 75 years (34/46) in the retrospective study reported that they were sexual active before treatment, 80% of these had resumed their activity by the time of the interview. Furthermore, except for satisfaction with somatic health, similar—or even higher—proportions of patients than comparators were satisfied with life as a whole and with other domains of life including satisfaction with sexual life (III). We found that 21/29 couples were sexually active with intercourse before treatment and 17 couples resumed their activity. Two items differed markedly from the comparators; considerably fewer patients were satisfied with their somatic health, and satisfaction with sexual life (at 12 months follow-up). Couples with an active partner-related sexuality at 12 months follow-up, reported coherence in high satisfaction with life as a whole (IV).In conclusion, patients with penile carcinoma delay for a long time after identifying symptoms before seeking contact with the health care system. This delay is mainly caused by embarrassment in describing the symptom to health care personnel and deficient knowledge about the disease. Organ- sparing technique offers good, satisfying cosmetic results and the possibility of maintaining sexual activity and function to a great extent.
|
|
| 7. |
- Skeppner, Elisabet, et al.
(författare)
-
Treatment-seeking, aspects of sexual activity and life satisfaction in men with laser-treated penile carcinoma
- 2008
-
Ingår i: European Urology. - Amsterdam : Elsevier. - 0302-2838 .- 1873-7560. ; 54:3, s. 631-639
-
Tidskriftsartikel (refereegranskat)abstract
- ObjectivesThe aims were to assess the initial symptoms of penile carcinoma and patients’ time frame in treatment seeking, and to describe the effect of laser treatment on sexual activity and life satisfaction.Patients and methodsA retrospective face-to-face structured interview study of patients laser treated for localised penile carcinoma at the department of Urology in Örebro, Sweden, during 1986 to 2000. Sixty-seven was treated and 58 of them (mean age, 63 yr; range, 34–90) were alive at the time of this study. Forty-six (79%) agreed to participate.ResultsNinety-six percent of the patients recalled their first symptom of penile carcinoma. Superficial ulceration and fissures were the most common symptoms (39%). Thirty-seven percent delayed seeking treatment for more than 6 mo.The patients had a greater lifetime number of sexual partners and a greater lifetime prevalence of STIs than a Swedish representative comparator population.Some aspects of sexual life, such as manual stimulation/caressing and fellatio, decreased markedly after laser treatment.Patient satisfaction with life as a whole was approximately the same as that of the general population.ConclusionsPatients delayed seeking treatment for a considerable period, despite awareness of the first local symptoms. Men with laser-treated localised penile carcinoma resume their sexual activities to a large extent after the treatment. Except for satisfaction with somatic health, similar—or even higher—proportions of patients than comparators are satisfied with life as a whole and with other domains of life including satisfaction with sexual life.Take Home MessageIn this study of 46 men who received laser treatment for localised penile carcinoma, we found that they resumed their sexual activities to a great extent and coped well with nearly all aspects of life after the treatment.
|
|
| 8. |
|
|
| 9. |
- Wang, Rongrong, et al.
(författare)
-
Cross-cultural adaptation of Life Satisfaction Checklist-11 among persons with stroke in China : A reliability and validity study
- 2021
-
Ingår i: Physiotherapy Research International. - : John Wiley & Sons. - 1358-2267 .- 1471-2865. ; 26:2
-
Tidskriftsartikel (refereegranskat)abstract
- Objective: The aim of the present study was to develop a cross-cultural adaptation and to evaluate the validity and reliability of a Chinese version of the LiSat-11 test.Methods: LiSat-11 was translated into Chinese according to standardized procedures. A cross-sectional descriptive study was conducted to examine its reliability and validity, in accordance to COnsensus-based Standards for the election of health Measurements Instruments guidelines, among persons with stroke approximately 3 years after their discharge from rehabilitation. Participants completed the LiSat-11, 36-Item Short-Form Health Survey (SF-36), National Institutes of Health Stroke Scale (NIHSS), modified Rankin Scale (mRS), Barthel Index (BI) and Hospital Anxiety and Depression Scale (HADS). To examine the test-retest reliability, thirty of these participants completed LiSat-11 again after 2 weeks.Results: In total, 60 persons with stroke were recruited. The Chinese version of LiSat-11 demonstrated good internal consistency with Cronbach's alphas at 0.82. Ceiling effects were found in five of the eleven items of LiSat-11, and there was a floor effect in one item. LiSat-11 had moderate to high correlations with SF-36 with Spearman's correlation coefficient (rho) ranging from 0.44 to 0.73 (p < 0.01) in a concurrent validity test, and high correlations were also found between LiSat-11 and HADS-A/D in a convergent validity test with rho = -0.63/-0.67 (p < 0.01). Low correlations with NIHSS, BI and mRS were found in a divergent validity test, rho = -0.25, 0.17 and -0.26, respectively.Conclusion: The current study verified that the translated Chinese version of the Life Satisfaction Checklist-11 is a reliable and valid tool for measuring the life satisfaction of persons with chronic stroke.
|
|
| 10. |
- Wiklander, Maria, et al.
(författare)
-
Feasibility of a self-help web-based intervention targeting young cancer patients with sexual problems and fertility distress
- 2017
-
Ingår i: Supportive Care in Cancer. - : Springer. - 0941-4355 .- 1433-7339. ; 25:12, s. 3675-3682
-
Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: The purpose of the study is to evaluate the feasibility of a self-help web-based intervention to alleviate sexual problems and fertility distress in adolescents and young adults with cancer.METHODS: Twenty-three persons with cancer (19 women and 4 men, age 18-43, 1-5 years post-diagnosis of lymphoma, breast, gynecologic, central nervous system, or testicular cancer) were recruited to test a 2-month web-based program targeting sexual problems or fertility distress. The programs were organized in modules with educational and behavior change content, including texts, illustrations, exercises, and video vignettes. The program also included a discussion forum and an "ask the expert" forum. In addition, the sexuality program offered two telephone consultations. Feasibility (regarding demand, acceptability, preliminary efficacy, and functionality) was evaluated with the website system data, telephone interviews, continuous online evaluations, and study-specific measures.RESULTS: Fifteen participants completed four modules or more. Most of the program features were used and well accepted by these "committed users." The web-based format enabled flexible use by participants with diverse needs. Preliminary efficacy was indicated by self-reported increased knowledge and skill in handling sexual problems and fertility distress. The website was easy to use and functioned well technically.CONCLUSIONS: The present study indicated that this web-based intervention was feasible for adolescents and young adults with cancer. The effectiveness of the intervention in decreasing sexual problems and fertility distress will be tested in a population-based randomized controlled trial for adolescents and young adults with cancer.TRIAL REGISTRATION: ISRCTN36621459.
|
|
