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| 2. |
- Golsäter, Marie, 1962-, et al.
(författare)
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Parents’ perceptions of how nurses care for children as relatives of an ill patient : Experiences from an oncological outpatient department
- 2019
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Ingår i: European Journal of Oncology Nursing. - Amsterdam : Elsevier. - 1462-3889 .- 1532-2122. ; 39, s. 35-40
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Tidskriftsartikel (refereegranskat)abstract
- Purpose:Research has shown that a child's knowledge about what is happening to a parent when he/she has a cancer disease is crucial to the child's health and wellbeing. Therefore the purpose of this study was to explore parents’ perceptions of how nurses in clinical practice care for children as relatives when one parent in the family has a cancer disease.Method:A qualitative explorative design with interviews was used. Altogether 28 parents (17 patients and 11 partners) were interviewed. The transcripts from the interviews were subjected to qualitative content analysis.Results:The parents perceive that the nurses make efforts to support the child as well as them as parents, but feel that the care needs to be more tailored to the specific child and his/her situation. The children are initially invited, generally informed and seen by the nurses, but the parents perceive that they themselves need repeated support and advice over time to uphold their parental responsibility for caring for their children during the illness trajectory.Conclusion:The parents argue for the importance of receiving repeated advice and support for how to talk to their children about the disease and treatment. The parents describe how the nurses were helpful by asking after the children and explaining the value of their visiting the hospital.
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| 3. |
- Granlund, Mats, 1954-, et al.
(författare)
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Tidig upptäckt - tidig insats (TUTI) : slutrapport
- 2015
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Ur sammanfattningen: Små barns psykiska hälsa har de senaste åren uppmärksammats mer än tidigare. De insatser som görs för att stärka hälsa hos små barn har visat sig ge goda effekter på barns psykiska hälsa senare i livet. Förskolan har lyfts fram både som en miljö i vilken barns psykiska ohälsa tidigt kan upptäckas men också som en miljö som genom tidiga insatser kan främja god psykisk hälsa och ge skydd mot ohälsa. Angående små barn i Sverige saknas en samlad kunskap om väl validerade instrument för att mäta psykisk ohälsa hos små barn, förekomsten av psykisk ohälsa och även om de åtgärder som görs i förskolan för att skydda mot senare negativ utveckling av psykisk hälsa hos barnen. Uppdraget från Socialstyrelsen handlar om att validera ett instrument för att mäta beteendeproblem hos små barn och att kartlägga förekomsten av beteendeproblem hos små barn. Även åtgärder som utförs i förskolan för gruppen kartläggs. Fokus ligger alltså på tidig upptäckt och tidig insats (TUTI) när det gäller små barn som uppvisar beteendeproblem i förskolan.
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| 4. |
- Stenmarker, Margaretha, et al.
(författare)
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Everyday life during the childhood cancer trajectory—childhood cancer survivors’ descriptions of the role of caring support
- 2023
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Ingår i: Frontiers in Rehabilitation Sciences. - : Frontiers Media S.A.. - 2673-6861. ; 4
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Tidskriftsartikel (refereegranskat)abstract
- Background: Being diagnosed with cancer in childhood often has a direct impact on the child’s opportunities to participate in activities and the child’s sense of belonging in different life situations. Experiences of illness in youth affect the lives of these individuals in numerous ways and they need pronounced support to regain their normal life after treatment.Purpose: To illustrate how childhood cancer survivors describe the role of the caring support provided by healthcare professionals at diagnosis and during the cancer trajectory.Methods: A mixed methods approach was applied. Swanson’s Theory of Caring was used to deductively analyze the answers in a study-specific questionnaire with Likert scales (1–5). Descriptive and comparative statistics and exploratory factor analyses were performed.Results: Sixty-two former patients, diagnosed with solid tumors/lymphoma in 1983 to 2003 in Sweden, participated. The mean time passed since treatment was 15.7 years. Swanson’s caring processes Being with and Doing for were the most prominent loading categorical factor indicators. Higher scores for healthcare professionals being emotionally present (Being with), doing for others what they would do for themselves (Doing for) and being willing to understand the sick child’s situation (Knowing) were highlighted by survivors older than 30 years, compared to those younger than 30 years (p=0.041, p=0.045, and p=0.013, respectively). An increased vulnerability regarding their ability to cope with difficulties (Maintain belief) was found among participants who were treated during adolescence, related to schoolchildren (p=0.048), and among those who had been treated with extra-cranial irradiation in comparison with no extra-cranial irradiation (p=0.004). The role of having a partner in comparison with being single was underlined among those who felt they had acquired the tools they needed to take care of themselves (Enabling) (p=0.013). The total explained variance was 63%.Conclusions: A person-centered care approach during treatment for childhood cancer, reflected by a caring model, highlights the role of healthcare professionals being emotionally present, involving children, performing actions, and with an approach that has potential long-term implications. Childhood cancer patients and survivors need not only clinically competent professionals, but professionals who provide caring interactions with compassion.
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| 6. |
- Almqvist, Lena, 1963-, et al.
(författare)
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Special support for behavior difficulties and engagement in Swedish preschools
- 2018
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Ingår i: Frontiers in Education. - : Frontiers Media S.A.. - 2504-284X. ; 3
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Tidskriftsartikel (refereegranskat)abstract
- The Swedish preschool curriculum stipulates that all children independent of support needs should attend mainstream preschool groups, with equal opportunities for learning and engagement. Preschool teachers are responsible for paying attention to children in need of special support to achieve this. How support is provided for children in need of special support due to behavior difficulties in Swedish preschools varies, however. Some children, often formally identified as in need of special support, are supported by preschool staff supervised by external services. Other children receive support initiated and implemented by preschool staff, without supervision from external services. A further number of children receive no support for behavior difficulties, on top of what is provided to all children. This study investigated associations between support format (i.e. supervised support, staff-initiated support or no additional support), support content (i.e. implementation of support), behavior difficulties, socio-demographics and engagement. A mixed methods approach was used with a sample of 232 preschool children 15 to 71 months with assessed behavior difficulties. Preschool staff reported on the children's engagement, behavior difficulties, socio-demographics and support provision. Logistic regression models were used to analyze the probability of children receiving either support format. Content analysis was used to categorize the support content, reported by preschool staff through open-ended questions. Point-biserial correlations were used to test associations between support content, behavior, socio-demographics and engagement. All children receiving supervised support for behavior difficulties were formally identified by external services as in need of special support. Supervised support was also more common if children disturbed the free play in the preschool group, with the most frequent support being collaboration with external teams. Staff-initiated support was most commonly given to children with high engagement, and for children who are not early second language learners. These children were most frequently supported by staff paying attention to negative behavior. Children who were not perceived as a burden to the group were less likely to receive any form of additional support. Ways of managing the preschool group seem to guide support strategies for children with behavior difficulties, rather than child-focused strategies emphasizing engagement in everyday activities.
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| 7. |
- Andersson, Ann-Christine, 1968-, et al.
(författare)
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Identification of children as relatives with a systematic approach: a prerequisite in order to offer advice and support
- 2018
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Ingår i: Quality Management in Health Care. - : Wolters Kluwer. - 1063-8628 .- 1550-5154. ; 27:3, s. 172-177
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to elucidate conditions at all system levels in a specific health care service to develop practices for identification of children as relatives. An interactive research approach with the intention to create mutual learning between practice and research was used. The participating health care service cared for both clinic in- and outpatients with psychiatric disorders. Health care professionals from different system levels (micro, meso, macro) participated, representing different professions. At the first project meeting, it was obvious that there was no systematic approach to identify children as relatives. At the micro level, activities such as a pilot survey and an open house activity were carried out. At the meso level, it was discussed how to better support collaboration between units. At the management (macro) level, it was decided that all units should appoint at least one child agent, with the aim to increase collaboration throughout the whole health care service. To change focus, in this case from only parents to inclusion of children, is an important challenge faced by health care services when forced to incorporate new policies and regulations. The new regulations contribute to increased complexity in already complex organizations. This study highlights that such challenges are underestimated.
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| 8. |
- Andersson, Ann-Christine, 1968-, et al.
(författare)
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Learning through networking in healthcare and welfare : The use of a breakthrough collaborative in the Swedish context
- 2020
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Ingår i: International Journal of Healthcare Management. - : Maney Publishing. - 2047-9700 .- 2047-9719. ; 13:3, s. 236-244
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Tidskriftsartikel (refereegranskat)abstract
- Breakthrough Collaborative (BC) aims at learning through networking, mainly at micro level, and is used as a tool to improve care and welfare organizations. The aim of this study was to explore and illuminate the challenges when applying BC model at meso and macro level. In 2010, the Swedish Health and Medical Services Act stated the responsibility of healthcare professionals to consider children’s needs as relatives. This study uses an interactive collaborative research model. To support healthcare organizations in the implementation of the regulation, county councils/regions in Sweden were invited to take part in a BC during 2015. Six teams from different county councils/regions participated. Team members were interviewed several times during the project time. Data were analyzed with an explorative and descriptive qualitative content analysis. The result illuminates the challenges faced when applying BC at meso and macro level. Most challenges concern preparation, support structures and system connections. There are similarities with the challenges met at micro level when BC is used at meso and macro level. But it seems even more important to consider how the team is constituted at meso and macro level to make use of the learnings and achieve long-term impact in the home organization.
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| 9. |
- Bäckström, Caroline A., et al.
(författare)
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Midwives' Experiences of Providing the "Inspirational Lecture" as a Care Intervention for Expectant Parents : A Qualitative Study
- 2020
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Ingår i: Frontiers In Public Health. - : Frontiers Media S.A.. - 2296-2565. ; 8
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Tidskriftsartikel (refereegranskat)abstract
- Background: In most Western countries, ordinary parental classes exist and have become a well-established form of professional support within midwifery care, even though some of these classes lack evidence of benefits for the parents. A Swedish randomized controlled trial including an intervention as a pilot study, revealed that a type of parental preparatory professional support provided for expectant parents, the "inspirational lecture," showed a tendency to be beneficial for parents' birth experience, and their perceived quality of parental couple relationship. However, there is no previous research on the midwives' experiences from providing the inspirational lecture. Carrying out research on midwives' experiences from providing the lecture, could bring future opportunities to provide a work-integrated learning (WIL) related to professionals' skills, and the pedagogic used. Aim: To elucidate midwives' experiences about providing the inspirational lecture as a care intervention for expectant parents. Methods: Midwives were interviewed and data were analyzed using qualitative content analysis. Results: The midwives strived to put childbirth into a comprehensive and manageable context for the expectant parents, during the inspirational lecture. For this, different approaches were used to make expectant parents understand how the parents themselves can be engaged participants in their own birth. Conclusion and Clinical Implications: The midwives used the inspirational lecture to provide the expectant parents with knowledge about how they, as a parental couple, could cooperate and feel safe in relation to the upcoming birth. This could be understood as if the midwives were striving to facilitate the integrative power of the parental couple, which is the couples' ability to gather their joint power. These results can assist midwives and serve as a reference for providing parental classes for expectant parents with a focus on promoting both the parents' individual as well as mutual skills.
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| 10. |
- Bäckström, Caroline A., et al.
(författare)
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Quality of couple relationship among first-time mothers and partners, during pregnancy and the first six months of parenthood
- 2018
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Ingår i: Sexual & Reproductive HealthCare. - : Elsevier. - 1877-5756 .- 1877-5764. ; 17, s. 56-64
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Tidskriftsartikel (refereegranskat)abstract
- HighlightsSocial support is associated with first-time mothers’ and partners’ perceived quality of couple relationship six months after birth.Sense of Coherence is associated with first-time mothers’ perceived quality of couple relationship six months after birth.First-time mothers’ and partners’ Sense of Coherence increase between pregnancy and six months after birth.Partners’ feelings for parenthood is associated with first-time mothers’ perception of quality of couple relationship six months after birth.First-time mothers’ and partners’ perceived quality of couple relationship is decreasing after childbirth.
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