| 1. |
- Hubel, Marie, et al.
(författare)
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Brief report : development and initial testing of a questionnaire version of the Environmental Rating Scale (ERS) for assessment of residential programs for individuals with autism
- 2008
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Ingår i: Journal of autism and developmental disorders. - : Springer. - 0162-3257 .- 1573-3432. ; 38:6, s. 1178-1183
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Tidskriftsartikel (refereegranskat)abstract
- There is a lack of validated autism-specific outcome measures for large-scale evaluation of the effectiveness of psycho-educational programmes. To fill this gap the Environment Rating Scale (ERS) was adapted from an interview version to a staff-completed questionnaire version (ERS-Q). The ERS-Q was tested regarding data quality, validity, reliability and ease of understanding amongst 18 residential staff members. The ERS-Q and ERS showed comparable reliability (alpha = 0.89 and 0.93, respectively) and their correlation was 0.73. These observations support that the ERS interview can be adapted into a questionnaire without substantial loss of conceptual meaning. However, further evaluations in larger samples are needed to more firmly evaluate the measurement properties.
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| 2. |
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| 3. |
- Hübel, Marie, et al.
(författare)
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Brief Report: Development and Initial Testing of a Questionnaire Version of the Environmental Rating Scale (ERS) for Assessment of Residential Programs for Individuals with Autism
- 2008
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Ingår i: Journal of Autism and Developmental Disorders. - : Springer Science and Business Media LLC. - 0162-3257 .- 1573-3432. ; 38:6, s. 1178-1183
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Tidskriftsartikel (refereegranskat)abstract
- There is a lack of validated autism-specific outcome measures for large-scale evaluation of the effectiveness of psycho-educational programmes. To fill this gap the Environment Rating Scale (ERS) was adapted from an interview version to a staff-completed questionnaire version (ERS-Q). The ERS-Q was tested regarding data quality, validity, reliability and ease of understanding amongst 18 residential staff members. The ERS-Q and ERS showed comparable reliability (alpha = 0.89 and 0.93, respectively) and their correlation was 0.73. These observations support that the ERS interview can be adapted into a questionnaire without substantial loss of conceptual meaning. However, further evaluations in larger samples are needed to more firmly evaluate the measurement properties.
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| 4. |
- Hübel, Marie
(författare)
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PSYCHO-PEDAGOGICAL WORK AMONG INDIVIDUALS WITH AUTISM SPECTRUM DISORDERS IN COMMUNITY-BASED ACCOMMODATION. Development and psychometric testing of the Environmental Rating Scale Questionnaire (ERS-Q) for assessment of residential programmes.
- 2008
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The increased prevalence of individuals with Autism Spectrum Disorders (ASD) challenges society to evaluate the quality and efficacy of community based psycho-pedagogical programmes in order to achieve progress and to attain an acceptable level of quality of life for its citizens. The overarching aim of this thesis was to gain knowledge about staff’s pedagogical work and to provide a method for assessment of the quality of residential programmes for individuals with ASD in community-based accommodation. The single-case study (Papers I–III) provides information about a case history exploring the four staff members’ perception of the everyday life of an adolescent boy with autism studied during 3.5 years through the staff’s daily diary notes and personal interviews with them. Relationships between staff’s pedagogical work, their work situation and the adolescent boy’s quality of life were illuminated and findings demonstrated how poor links between pedagogy and work organisation had a negative effect on his life situation as well as on the caregivers’ teamwork and private life situation. Staff’s use of pedagogical strategies was identified as successful or unsuccessful, indicating periods of development as well as stagnation of his abilities. As long as the staff predominantly used successful pedagogical strategies the boy showed no or few signs of regression in his abilities and behaviour. On the contrary, he showed a few signs of taking the initiative to communicate. The boy’s stagnation in several important skills was interpreted as an outcome of the failure to integrate the boy into society and illuminated staff’s need of sufficient training in special pedagogy with support for a high degree of structure. The findings from the single-case study inspired an evaluation of the pedagogical work at group homes in Sweden. The development of the (ERS-Q) (Papers IV-V) was prompted by the need for an instrument to assess the quality of residential treatment programme in large-scale studies. The American interview instrument Environmental Rating Scale (ERS) was adapted from an interview version to a staff-completed questionnaire version (ERS-Q). Tests regarding data quality, validity, reliability and ease of understanding showed good measurement properties and conceptual and theoretical agreement as well as comparable reliability with the ERS, indicating that the effectiveness of residential treatment programmes can be measured in a valid way by the ERSQ. Further, the results suggest that the ERS-Q is useful in surveys as well as in comparative studies. Key words: Autism Spectrum Disorders, TEACCH, Pedagogical work, Quality of Life, Community-based accommodation, Staff,
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| 5. |
- Hubel, Marie, et al.
(författare)
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Psychometric properties of the questionnaire version (ERS-Q) of the Environmental Rating Scale (ERS) for assessment of residential programmes for individuals with autism
- 2010
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Ingår i: Scandinavian Journal of Disability Research. - 1501-7419 .- 1745-3011. ; 12:4, s. 245-256
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Tidskriftsartikel (refereegranskat)abstract
- The Environmental Rating Scale (ERS) is the only autism spectrum disorders (ASD) specific tool for assessment of residential services and treatment models. However, one limitation with the ERS is its dependence on expert observations and interviews, particularly in larger scale studies. The ERS has therefore been adapted into a staff self-report questionnaire (ERS-Q). Here the measurement properties of the ERS-Q were examined according to traditional test theory criteria. Data provided support for summation of raw item scores into total and subscale ERS-Q scores and item-total correlations indicated that items within scales tap a common construct, suggesting that the ERS-Q is useful in survey as well as interventional studies. As such the ERS-Q appears a valuable addition to the current ASD research toolbox. The Environmental Rating Scale (ERS) is the only autism spectrum disorders (ASD) specific tool for assessment of residential services and treatment models. However, one limitation with the ERS is its dependence on expert observations and interviews, particularly in larger scale studies. The ERS has therefore been adapted into a staff self-report questionnaire (ERS-Q). Here the measurement properties of the ERS-Q were examined according to traditional test theory criteria. Data provided support for summation of raw item scores into total and subscale ERS-Q scores and item-total correlations indicated that items within scales tap a common construct, suggesting that the ERS-Q is useful in survey as well as interventional studies. As such the ERS-Q appears a valuable addition to the current ASD research toolbox.
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| 6. |
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| 7. |
- Hübel, Marie, et al.
(författare)
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Quality of Life of an Adolescent Boy with Autism and Intellectual Impairment, a unique housing situation.
- 2006
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Ingår i: International Journal of Disability, Community and Rehabilitation. - 1703-3381. ; 5:1
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Tidskriftsartikel (refereegranskat)abstract
- Abstract in UndeterminedIndividuals with the diagnosis of autism need well-functioning home environment to make progress and achieve an acceptable level of quality of life (QoL). Long-term mapping of the daily life of individual persons with disabilities with the purpose of understanding their living situation is rare. The present study deals with the QoL of an adolescent boy with autism and intellectual impairment and living in an apartment of his own together with four caregivers, during a period of three and a half years. This single case study reports the qualitative analysis of the caregivers' open diary and repeated interviews capturing the boy's daily life and explores the staff's experiences of the boy's living situation. The results describe how important aspects for the QoL such as communication, activities, mood and regulation, were influenced by the boy's home care environment. The staff paid most attention to the boy's mood and meal-related situations and seemed to be unaware of the importance of improving communication. Findings in the diary and the interviews indicate that the boy seemed to regress in important skills and abilities despite the efforts of the staff.
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| 8. |
- Hübel, Marie, et al.
(författare)
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Staff's Collaborative work process with an adolescent boy with autism and intellectual disability in a community-based sheltered housing
- 2008
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Ingår i: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 10:1, s. 49-66
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this single-case study was to describe the staff's collaborative work process for a period of 3.5 years caring for an adolescent boy with autism and intellectual disabilities living in an apartment of his own together with his caregivers. The longitudinal data included the staff's (two men and two women) common open diary, repeated individual interviews and focus group interviews. Detailed content analysis of the diary and the interviews indicated that the staff's perceptions of their pedagogical work, teamwork and work conditions changed from a positive to a largely negative view, appearing to affect the pedagogical strategies adopted. Also, it became visible that the unique work situation, involving a lack of actual goals, feedback and pedagogical supervision may have negatively affected the collaborative work process and the staff's effort to establish structure and consensus in the pedagogical work.
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