| 1. |
- Henriksson, Anette, 1967-, et al.
(författare)
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Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness
- 2012
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Ingår i: Palliative Medicine. - London, United Kingdom : SAGE Publications. - 0269-2163 .- 1477-030X. ; 26:7, s. 930-938
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Tidskriftsartikel (refereegranskat)abstract
- Background: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. Aim: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness. Design: Correlational. Setting/participants: The study took place in four settings including advanced palliative care. The scales were tested in a sample of 125 family members of persons with life-threatening illness. All three scales were tested in relation to distribution of item and scale scores, missing data patterns, dimensionality, convergent validity and reliability. Results: The results in this study indicate that the Swedish versions of The Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale are valid, reliable and user-friendly scales. Confirmatory factor analysis showed that the scales were unidimensional and all demonstrated Cronbach's alpha values of ≥0.9. Conclusions: As a result of this study it is anticipated that the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale could provide a basis for collaborative research between different countries and make international studies more comparable and generalizable despite differences in language and culture. © 2011 The Author(s).
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| 2. |
- Henriksson, Anette, 1967-, et al.
(författare)
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Effects of a support group programme for patients with life-threatening illness during ongoing palliative care
- 2013
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Ingår i: Palliative Medicine. - London, United Kingdom : SAGE Publications (UK and US). - 0269-2163 .- 1477-030X. ; 27:3, s. 257-264
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Tidskriftsartikel (refereegranskat)abstract
- Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. less thanbrgreater than less thanbrgreater thanAim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care. less thanbrgreater than less thanbrgreater thanDesign: A prospective quasi-experimental design, including an intervention group and a comparison group, was used. less thanbrgreater than less thanbrgreater thanSettings/participants: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons. less thanbrgreater than less thanbrgreater thanResults: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes. less thanbrgreater than less thanbrgreater thanConclusions: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.
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| 3. |
- Holm, Maja, et al.
(författare)
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Preparing for family caregiving in specialized palliative home care : an ongoing process
- 2015
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Ingår i: Palliative & Supportive Care. - 1478-9515 .- 1478-9523. ; 13:3, s. 767-775
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Tidskriftsartikel (refereegranskat)abstract
- Objective: Family caregivers have been given increasing importance in palliative home care and face a great responsibility as caregivers for patients suffering from incurable illness. Preparedness for caregiving has been found to moderate negative effects and promote well-being in family caregivers. The aim of our study was to explore family caregivers' own experiences of preparing for caregiving in specialized palliative home care.Method: An interpretive descriptive design was chosen. A strategic sampling method was applied with a focus on participants who rated their preparedness as high and low using a structured instrument. Qualitative interviews were completed with 12 family caregivers. They were analyzed using a constant-comparative technique.Results: Family caregivers described their experience of preparing for caregiving as an ongoing process, rather than something done in advance. The process was illustrated through three subprocesses: "awaring" (realizing the seriousness of the situation), "adjusting" (managing a challenging situation), and "anticipating" (planning for the inevitable loss).Significance of results: Knowledge about the process of preparedness for caregiving and its subprocesses could be valuable to healthcare professionals, given the positive effects shown by preparedness in this context. Being able to recognize the different subprocesses of preparedness for caregiving could provide healthcare professionals with opportunities to support family caregivers in managing them. Preparedness for caregiving should be seen as a process to be supported and promoted continuously in palliative home care, not just at enrollment.
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| 4. |
- Wahlgren, Catarina, 1967-
(författare)
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En bild säger mer än tusen ord : Barns perspektiv, positioner och påverkansmöjligheter i förskolans dokumentationspraktik
- 2023
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The overall aim of this thesis is to examine children's perspectives, positions and possibilities for participation in Swedish preschool documentation practice. The empirical data consists of 1575 photographs from six preschool classes located in different suburban areas. The thesis includes four articles that examine different aspects of the practice of pedagogical documentation. In the first article the children's own stories about the photographs are analysed. In the second article, notions of the child from photographs presented on the preschool walls and from the Swedish Curriculum for the Preschool are compared. The third article examines the content and circulation of digital photographs. Finally, the fourth article explores how children are portrayed in photographs of outdoor activities. All articles are grounded in theories about power and knowledge production, such as discourse theory, and discuss intersections between age, gender, ethnicity and class.The results show that children are capable of creating their own stories in interaction with photographs. However, their stories tend to be gender specific although the photographs mediate gender neutrality. The children mainly described their mutual relationships and, to a lesser extent, the displayed activities. The photographs align with trends of schoolification and masculine-coded production and accomplishment, while care and play are made invisible in the photographs. However, the outdoor photographs, stand out in the sample as they make children visible as sensitive and closely attached to nature. Unlike indoors photographs, outdoor photographs visibilized feminine-coded values as desirable. Outdoor and digitally circulated photographs often displayed children as anonymous, and as neutral in terms of gender and ethnicity. This could be positive since children were able to include themselves in activities represented in the photographs. At the same time, the photographs became impersonal and sometimes insipid; as the anonymisation made children's experiences and knowledge production invisible.The thesis concludes that notions of the child, communicated in preschool photographs, are conform and make competence appear as production and accomplishment, while alternative ways of being a preschool child are made invisible. Therefore, a feminist definition of professionalisation is suggested in order to increase children's participation and incorporate alternative stories in preschool knowledge production, which, in turn, can challenge the notion of the competent child.
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