| 1. |
- Bellotti, Elisa, et al.
(författare)
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Ambivalent and Consistent Relationships : The Role of Personal Networks in Cases of Domestic Violence
- 2021
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Ingår i: Social Inclusion. - : Cogitatio. - 2183-2803 .- 2183-2803. ; 9:4, s. 211-221
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Tidskriftsartikel (refereegranskat)abstract
- Social networks are usually considered as positive sources of social support, a role which has been extensively studied in the context of domestic violence. To victims of abuse, social networks often provide initial emotional and practical help as well useful information ahead of formal institutions. Recently, however, attention has been paid to the negative responses of social networks. In this article, we advance the theoretical debate on social networks as a source of social support by moving beyond the distinction between positive and negative ties. We do so by proposing the concepts of relational ambivalence and consistency, which describe the interactive processes by which people, intentionally or inadvertently, disregard—or align with—each other’s role‐relational expectations, therefore undermining—or reinforcing—individual’s choices of action. We analyse the qualitative accounts of 19 female victims of domestic violence in Sweden, who described the responses of their personal networks during and after the abuse. We observe how the relationships embedded in these networks were described in ambivalent and consistent terms, and how they played a role in supporting or undermining women in reframing their loving relationships as abusive; in accounting or dismissing perpetrators’ responsibilities for the abuse; in relieving women from role‐expectations and obligations or in burdening them with further responsibilities; and in supporting or challenging their pathways out of domestic abuse. Our analysis suggests that social isolation cannot be considered a simple result of a lack of support but of the complex dynamics in which support is offered and accepted or withdrawn and refused.
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| 2. |
- Boethius, Susanne, et al.
(författare)
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The double-edged sword – abused women’s experiences of digital technology
- 2022
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Ingår i: European Journal of Social Work. - : Informa UK Limited. - 1468-2664 .- 1369-1457.
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Tidskriftsartikel (refereegranskat)abstract
- Technology has become a vital part of people’s lives. Mobile phones, smart phones, social media platforms, apps and other internet-connected devices and software have changed our way of interacting with each other, as well as managing everyday tasks. In this article, the use of such technology is discussed in relation to its integration in the lives of women who are victims of domestic violence. The study is based on interviews with 21 Swedish women, all abused by their former husband or boyfriend. The empirical data demonstrates how technology is used by the perpetrators as a means of coercive control. The analysis shows that the accessibility of digital media enables the abuser to be constantly present in the woman’s life, even after she has left him. However, the same technology is also important to the women, enabling them to manage victimisation, monitor the perpetrators, store evidence, obtain information, gain support and keep in touch with family and friends. This article reveals the use of technology in IPV as a ‘double-edged sword’; providing the capacity to protect and even to use as a ‘counter-strike’ by victims, as well as enhancing perpetrators’ capacity to harm.
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| 3. |
- Boethius, Susanne, et al.
(författare)
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The double-edged sword - abused womens experiences of digital technology : Det Tveeggade Svärdet – Teknologins Betydelse för Kvinnor som Utsätts för Våld i Nära Relation
- 2023
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Ingår i: European Journal of Social Work. - : Routledge; Taylor & Francis. - 1369-1457 .- 1468-2664. ; 26:3, s. 506-518
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Tidskriftsartikel (refereegranskat)abstract
- Technology has become a vital part of peoples lives. Mobile phones, smart phones, social media platforms, apps and other internet-connected devices and software have changed our way of interacting with each other, as well as managing everyday tasks. In this article, the use of such technology is discussed in relation to its integration in the lives of women who are victims of domestic violence. The study is based on interviews with 21 Swedish women, all abused by their former husband or boyfriend. The empirical data demonstrates how technology is used by the perpetrators as a means of coercive control. The analysis shows that the accessibility of digital media enables the abuser to be constantly present in the womans life, even after she has left him. However, the same technology is also important to the women, enabling them to manage victimisation, monitor the perpetrators, store evidence, obtain information, gain support and keep in touch with family and friends. This article reveals the use of technology in IPV as a double-edged sword; providing the capacity to protect and even to use as a counter-strike by victims, as well as enhancing perpetrators capacity to harm.
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| 4. |
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| 5. |
- Rahman, Atiqur, et al.
(författare)
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Eldercare services for people with and without a dementia diagnosis : an analysis of Swedish registry data
- 2021
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Ingår i: BMC Health Services Research. - : Springer Science and Business Media LLC. - 1472-6963. ; 21:1
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Tidskriftsartikel (refereegranskat)abstract
- Background: The growing number of people living with dementia (PlwD) implies an increase in the demand for eldercare services in Sweden like in many other countries. Few studies have analyzed the use of eldercare services for PlwD. The aim of the present study is to investigate the association between demographic factors (age, sex, cohabiting status) and the use of municipal eldercare services (including both home care and residential care) for older adults with dementia compared to older adults without dementia in Sweden.Methods: This study used several nationwide Swedish registers targeting all individuals aged 65 and above living in Sweden in 2014 and still alive 31st of March 2015 (n = 2,004,409). The primary outcomes variables were different types of eldercare service, and all participants were clustered based on age, sex, cohabiting status, and dementia diagnosis. In addition to descriptive statistics, we performed multivariate logistic regression models for binary outcomes and linear regression models for continuous outcomes.Results: Results showed that (1) older age is a significantly strong predictor for the use of eldercare services, although PlwD start using eldercare at an earlier age compared with people without dementia; (2) women tend to receive more eldercare services than men, especially in older age, although men with dementia who live alone are more likely than women living alone to receive eldercare; (3) having a dementia diagnosis is a strong predictor for receiving eldercare. However, it was also found that a substantial proportion of men and women with dementia did not receive any eldercare services.Conclusions: We found that people with a dementia diagnosis use more as well as start to use eldercare services at an earlier age than people without dementia. However, further research is needed to investigate why a substantial part of people with a dementia diagnosis does not have any eldercare at all and what the policy implications of this might be.
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| 6. |
- Rahman, Atiqur, et al.
(författare)
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People Living with a Dementia Diagnosis with No Eldercare at all : Who Are They?
- 2022
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Ingår i: Journal of Aging & Social Policy. - : Informa UK Limited. - 0895-9420 .- 1545-0821. ; 34:6, s. 876-893
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Tidskriftsartikel (refereegranskat)abstract
- Dementia is a non-curable disease that progressively affects people’s ability to handle their everyday life. Still, previous Swedish research found that many people living with dementia (PlwD) do not use any eldercare. In this study, we investigated the association between not using eldercare services and key social background factors: years with dementia, hospital care, and country of birth for PlwD. We identified all people aged 65+ diagnosed with dementia between January 2006 and March 2015 (n = 43,372) using secondary data analysis of information taken from multiple Swedish nationwide registers. Results showed that not using eldercare was more common among younger age groups and men. The likelihood of having no eldercare was three times higher for those cohabiting; notably, almost a fifth of the PlwD who had the diagnosis for four years or more did not have eldercare at all. Finally, people born outside Europe used eldercare less than persons born in Sweden. Since the public dementia policy in Sweden is basically geared toward PlwD in a later stage and primarily in residential care, there has been almost no policy development around the needs and rights of PlwD in their homes. This study provides a ground for reconsidering dementia policy regardless of the ethnic and cultural backgrounds of PlwD.
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| 7. |
- Rahman, S M Atiqur, et al.
(författare)
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Long-term care use among people living with dementia : a retrospective register-based study from Sweden
- 2022
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Ingår i: BMC Geriatrics. - : Springer Science and Business Media LLC. - 1471-2318. ; 22
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Tidskriftsartikel (refereegranskat)abstract
- Background: Although many people with dementia need progressive support during their last years of life little is known to what extent they use formal long-term care (LTC). This study investigates the use of LTC, including residential care and homecare, in the month preceding death, as well as the number of months spent in residential care, among Swedish older decedents with a dementia diagnosis, compared with those without a dementia diagnosis.Methodology: This retrospective cohort study identified all people who died in November 2019 in Sweden aged 70 years and older (n = 6294). Dementia diagnoses were collected from the National Patient Register (before death) and the National Cause of Death Register (death certificate). The use of LTC was based on the Social Services Register and sociodemographic factors were provided by Statistics Sweden. We performed regression models (multinomial and linear logistic regression models) to examine the association between the utilization of LTC and the independent variables.Results: Not only dementia diagnosis but also time spent with the diagnosis was crucial for the use of LTC in the month preceding death, in particular residential care. Three out of four of the decedents with dementia and one fourth of those without dementia lived in a residential care facility in the month preceding death. People who were diagnosed more recently were more likely to use homecare (e.g., diagnosis for 1 year or less: home care 29%, residential care 56%), while the predicted proportion of using residential care increased substantially for those who had lived longer with a diagnosis (e.g., diagnosis for 7 + years: home care 11%, residential care 85%). On average, people with a dementia diagnosis stayed six months longer in residential care, compared with people without a diagnosis.Conclusions: People living with dementia use more LTC and spend longer time in residential care than those without dementia. The use of LTC is primarily influenced by the time with a dementia diagnosis. Our study suggests conducting more research to investigate differences between people living with different dementia diagnoses with co-morbidities.
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| 8. |
- Rahman, S M Atiqur, et al.
(författare)
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Patterns of long-term care utilization during the last five years of life among Swedish older adults with and without dementia
- 2023
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Ingår i: PLOS ONE. - : PUBLIC LIBRARY SCIENCE. - 1932-6203. ; 18:10
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Tidskriftsartikel (refereegranskat)abstract
- AimsThe aims of this study were to compare the patterns of long-term care (LTC) use (no care, homecare, residential care) among people with and without dementia aged 70+ in Sweden during their last five years of life and its association with sociodemographic factors (age, gender, education, cohabitation status) and time with a dementia diagnosis.MethodsThis retrospective cohort study included all people who died in November 2019 aged 70 years and older (n = 6294) derived from several national registers. A multinomial logistic regression was conducted to identify which sociodemographic factors predicted the patterns of LTC use.ResultsResults showed that the time with a dementia diagnosis and cohabitation status were important predictors that influence the patterns of LTC use during the last five years of life. Nearly three-quarters of people living with dementia (PlwD) used residential care during the last five years of life. PlwD were more likely to reside in residential care close to death. Women who lived alone, with or without dementia, used residential care to a higher degree compared to married or cohabiting women.ConclusionsAmong people without a dementia diagnosis, as well as those who were newly diagnosed, it was common to have no LTC at all, or use LTC only for a brief period close to death. During the last five years of life, PlwD and those living alone more often entered LTC early and used residential care for a longer time compared to people without dementia and people living alone, respectively.
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| 9. |
- Rahman, S M Atiqur, 1986-
(författare)
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People living with dementia using eldercare in Sweden
- 2023
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Dementia is a major public health concern. Due to the progressive nature of the disease, people living with dementia (PlwD) may experience challenges at different stages of dementia deriving from functional, cognitive, and communicative disabilities and as a consequence experience restriction in performing everyday tasks. As a result, PlwD have an increasing demand for eldercare (including homecare and residential care), especially during the last years of life. This thesis aims at contributing to the understanding of the utilization of eldercare among older adults with and without dementia aged 65+ in Sweden. Although previous studies on eldercare use largely focused on older adults in general, less attention has been paid to PlwD. Little is also known about the group of PlwD who do not have any eldercare at all and the relationship between the likelihood of having or not having eldercare, the number of years with a dementia diagnosis, and the influence of social demographic factors. In order to be able to offer an integrated life in society for PlwD it is important to understand the structure of care provisions. The objective of this thesis is to investigate (1) what type of eldercare services people with and without dementia aged 65+ use during the last years of life; (2) who the people diagnosed with dementia are that do not use any eldercare at all; and (3) which socio-demographic factors influence the use of eldercare among PlwD. Using multiple health registers, the thesis captured cross-sectional as well as longitudinal data in order to examine the utilization of eldercare among people with and without dementia. The main findings showed that (1) the use of residential care was more common among PlwD compared with those without dementia diagnosis during the last years of life; (2) PlwD with no eldercare were comprised of people in their early stage of dementia, living with partners/married/cohabiting, were more likely men as well as foreign-born; and (3) cohabitation status of PlwD was one of the crucial factors for utilizing eldercare during the last years of life. The thesis identified that a considerable proportion of older adults aged 65+ do not use dementia care even if they have a dementia diagnosis—something that is especially true for people with an older age, women, and living alone. The main argument drawn from this thesis is that not only the diagnosis of dementia but the years living with the diagnosis was the primary predictor for eldercare utilization among older adults aged 65+ years in Sweden. More explorative research is needed about the care needs of PlwD and policy makers must be aware of the need for individualized homecare services for PlwD in order to provide possibilities for a good life quality for PlwD.
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